SMA Treatment Acceleration Act of 2009
Latest action · Apr 29, 2009 Referred to the Subcommittee on Health.
Progress
Where this bill reached, and when. A stage with no date was not reached; one that failed a vote and later carried shows the date it carried.
- IntroducedApr 28, 2009
- Passed HouseNot reached
- Passed SenateNot reached
- To the PresidentNot reached
- Became lawNot reached
Summary
SMA Treatment Acceleration Act of 2009 - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH) to establish a national clinical trials network for spinal muscular atrophy by upgrading and unifying spinal muscular atrophy clinical trial sites and recruiting new investigators and sites. Requires the Director to ensure that such network: (1) conducts coordinated, multisite, clinical trials of therapies and clinical approaches to the treatment of spinal muscular atrophy; and (2) rapidly and efficiently disseminates scientific findings to the field.
Requires the Director to: (1) establish a data coordinating center with respect to spinal muscular atrophy; and (2) expand and intensify NIH programs with respect to preclinical translation research related to spinal muscular atrophy.
Requires the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to enhance and support a spinal muscular atrophy patient registry to provide for expanded epidemiological research towards improving awareness, management, treatment, and prevention of spinal muscular atrophy. Requires the Secretary to ensure the collection and analysis of longitudinal data related to individuals of all ages.
Directs the Secretary to establish the Interagency Spinal Muscular Atrophy Research Coordinating Committee. Sets forth the duties of the Committee, including to develop a comprehensive strategy related to spinal muscular atrophy research and other related neurological diseases and disorders.
Requires the Secretary to establish a program to provide information and education on spinal muscular atrophy to health professionals and the general public.
Cosponsors 119
Members who signed on, in the order they did. Signatures ran from Apr 28, 2009 to Nov 15, 2010; 1 is an original cosponsor, there from the day it was introduced.
| Seat | Cosponsor | Signed on | |
|---|---|---|---|
| R-VA | Eric Cantor | Original | Apr 28, 2009 |
| D-NY | Carolyn B. Maloney | Apr 29, 2009 | |
| R-OH | Patrick J. Tiberi | Apr 30, 2009 | |
| D-OH | Steve Driehaus | Apr 30, 2009 | |
| R-VA | Robert J. Wittman | May 5, 2009 | |
| R-FL | C. W. Bill Young | May 12, 2009 | |
| R-VA | Frank R. Wolf | May 12, 2009 | |
| D-PA | Joe Sestak | May 12, 2009 | |
| R-LA | John Fleming | May 12, 2009 | |
| R-WA | Cathy McMorris Rodgers | May 14, 2009 | |
| D-OR | David Wu | Jun 2, 2009 | |
| R-MI | Thaddeus G. McCotter | Jun 2, 2009 | |
| R-SC | Joe Wilson | Jun 3, 2009 | |
| D-NY | Edolphus Towns | Jun 9, 2009 | |
| D-RI | James R. Langevin | Jun 9, 2009 | |
| R-MS | Gregg Harper | Jun 10, 2009 | |
| D-NY | Gregory W. Meeks | Jun 10, 2009 | |
| D-OR | Earl Blumenauer | Jul 7, 2009 | |
| D-CT | James A. Himes | Jul 7, 2009 | |
| D-CA | Lois Capps | Jul 7, 2009 | |
| D-NY | Yvette D. Clarke | Jul 7, 2009 | |
| D-NC | Mike McIntyre | Jul 13, 2009 | |
| R-FL | Adam H. Putnam | Jul 15, 2009 | |
| D-MS | Bennie G. Thompson | Jul 15, 2009 | |
| D-NY | Brian Higgins | Jul 15, 2009 | |
| R-VA | Bob Goodlatte | Jul 17, 2009 | |
| D-SD | Stephanie Herseth Sandlin | Jul 17, 2009 | |
| D-NY | Eric J. J. Massa | Jul 29, 2009 | |
| D-NY | John J. Hall | Jul 30, 2009 | |
| D-NY | Steve Israel | Jul 30, 2009 | |
| R-KY | Harold Rogers | Jul 31, 2009 | |
| R-PA | Charles W. Dent | Sep 8, 2009 | |
| D-NJ | Steven R. Rothman | Sep 8, 2009 | |
| R-NC | Walter B. Jones | Sep 8, 2009 | |
| D-CA | Zoe Lofgren | Sep 9, 2009 | |
| D-PA | Tim Holden | Sep 14, 2009 | |
| R-AL | Spencer Bachus | Sep 21, 2009 | |
| D-MA | Barney Frank | Sep 22, 2009 | |
| D-VA | Robert C. "Bobby" Scott | Sep 22, 2009 | |
| R-LA | Rodney Alexander | Sep 23, 2009 | |
| D-FL | Debbie Wasserman Schultz | Sep 29, 2009 | |
| R-VA | J. Randy Forbes | Sep 29, 2009 | |
| R-NY | Peter T. King | Sep 29, 2009 | |
| R-GA | Tom Price | Sep 29, 2009 | |
| D-TN | Jim Cooper | Sep 30, 2009 | |
| D-VA | Rick Boucher | Oct 1, 2009 | |
| R-NE | Jeff Fortenberry | Oct 6, 2009 | |
| D-WI | Tammy Baldwin | Oct 6, 2009 | |
| D-IL | Bobby L. Rush | Oct 8, 2009 | |
| D-VI | Donna M. Christensen | Oct 8, 2009 | |
| D-TX | Gene Green | Oct 8, 2009 | |
| D-FL | Kathy Castor | Oct 8, 2009 | |
| D-IA | Bruce L. Braley | Oct 13, 2009 | |
| D-NC | G. K. Butterfield | Oct 13, 2009 | |
| R-GA | Lynn A. Westmoreland | Oct 13, 2009 | |
| D-TN | Bart Gordon | Oct 21, 2009 | |
| D-VA | James P. Moran | Nov 2, 2009 | |
| D-MI | Dale E. Kildee | Nov 16, 2009 | |
| R-TX | Ted Poe | Nov 16, 2009 | |
| D-OH | Charles A. Wilson | Nov 17, 2009 | |
| D-MN | Collin C. Peterson | Nov 19, 2009 | |
| D-VA | Glenn C. Nye | Nov 19, 2009 | |
| D-OK | Dan Boren | Dec 1, 2009 | |
| D-CA | Fortney Pete Stark | Dec 1, 2009 | |
| R-FL | Ileana Ros-Lehtinen | Dec 1, 2009 | |
| R-TX | Michael T. McCaul | Dec 1, 2009 | |
| D-WI | Ron Kind | Dec 1, 2009 | |
| D-WI | Steve Kagen | Dec 7, 2009 | |
| R-TX | Ralph M. Hall | Dec 8, 2009 | |
| D-NM | Martin Heinrich | Dec 10, 2009 | |
| D-NY | Louise McIntosh Slaughter | Dec 11, 2009 | |
| D-PA | Christopher P. Carney | Dec 16, 2009 | |
| D-CA | Grace F. Napolitano | Jan 12, 2010 | |
| D-GA | Henry C. "Hank" Johnson, Jr. | Jan 12, 2010 | |
| D-CA | Barbara Lee | Jan 20, 2010 | |
| D-CA | Anna G. Eshoo | Jan 26, 2010 | |
| D-NY | Timothy H. Bishop | Feb 24, 2010 | |
| R-MI | Fred Upton | Feb 26, 2010 | |
| R-PA | Tim Murphy | Feb 26, 2010 | |
| D-MA | Edward J. Markey | Mar 2, 2010 | |
| D-CA | Jackie Speier | Mar 3, 2010 | |
| D-GA | Sanford D. Bishop, Jr. | Mar 3, 2010 | |
| D-PA | Jason Altmire | Mar 9, 2010 | |
| D-NY | Paul Tonko | Mar 15, 2010 | |
| D-NJ | Albio Sires | Apr 13, 2010 | |
| D-MP | Gregorio Kilili Camacho Sablan | Apr 13, 2010 | |
| D-NY | Jerrold Nadler | Apr 13, 2010 | |
| D-CA | John Garamendi | Apr 13, 2010 | |
| R-PA | Joseph R. Pitts | Apr 15, 2010 | |
| D-MN | Keith Ellison | Apr 15, 2010 | |
| D-MS | Gene Taylor | Apr 28, 2010 | |
| D-GA | John Barrow | Apr 28, 2010 | |
| D-NY | Eliot L. Engel | Apr 29, 2010 | |
| R-MO | Blaine Luetkemeyer | May 4, 2010 | |
| D-IL | Daniel Lipinski | May 4, 2010 | |
| D-OH | Mary Jo Kilroy | May 5, 2010 | |
| D-MS | Travis Childers | May 6, 2010 | |
| D-NY | Daniel B. Maffei | May 11, 2010 | |
| R-IL | Mark Kirk | May 11, 2010 | |
| D-CA | Doris O. Matsui | May 13, 2010 | |
| D-ME | Michael H. Michaud | May 18, 2010 | |
| D-VA | Gerald E. Connolly | May 24, 2010 | |
| D-KY | Ben Chandler | Jun 8, 2010 | |
| D-PA | Chaka Fattah | Jun 8, 2010 | |
| D-CA | Bob Filner | Jun 16, 2010 | |
| D-LA | Charlie Melancon | Jun 22, 2010 | |
| D-NC | David E. Price | Jul 1, 2010 | |
| R-IA | Tom Latham | Jul 13, 2010 | |
| D-GA | John Lewis | Jul 15, 2010 | |
| R-OR | Greg Walden | Jul 30, 2010 | |
| R-NC | Howard Coble | Aug 10, 2010 | |
| D-MA | John W. Olver | Sep 14, 2010 | |
| D-PA | Michael F. Doyle | Sep 14, 2010 | |
| D-AR | Mike Ross | Sep 14, 2010 | |
| D-MA | Niki Tsongas | Sep 16, 2010 | |
| D-CT | Christopher Murphy | Sep 22, 2010 | |
| D-NY | Scott Murphy | Sep 23, 2010 | |
| D-PA | Allyson Y. Schwartz | Sep 29, 2010 | |
| D-CA | Linda T. Sánchez | Nov 15, 2010 |
Committees 1
Where it was sent and what each committee and subcommittee did with it, in order.
| Chamber | Committee | What it did |
|---|---|---|
| House | Energy and Commerce Committee | Referred Apr 28, 2009 |
| Health Subcommittee | Referred Apr 29, 2009 |
Actions 4
Everything that happened, newest first.
- Apr 29, 2009Referred to the Subcommittee on Health.
- Apr 28, 2009Introduced in House
- Apr 28, 2009Sponsor introductory remarks on measure. (CR E993)
- Apr 28, 2009Referred to the House Committee on Energy and Commerce.
In the Congressional Record 1
Days the Record’s own index lists this bill, newest first, with the pages and the members it names. Pages starting H are the House, S the Senate, E Extensions of Remarks.
| Where | In the Record | Members | Date |
|---|---|---|---|
| Extensions | Debate and remarks E993 | Patrick J. Kennedy D-RI | Apr 28, 2009 |
Related bills 1
Companion bills and other measures the record links to this one.
| Bill | Title | Relationship | Latest action |
|---|---|---|---|
| S 1158 | SMA Treatment Acceleration Act of 2009 | Related bill | May 21, 2009 |
Titles 2
Every title it has carried, official and short, at each stage.
- Official Title as Introduced
- To authorize the Secretary of Health and Human Services to conduct activities to rapidly advance treatments for spinal muscular atrophy, neuromuscular disease, and other pediatric diseases, and for other purposes.
- Short Titles as Introduced
- SMA Treatment Acceleration Act of 2009
Subjects
Assigned by the Library of Congress. Policy area: Health.
- Department of Health and Human Services
- Executive agency funding and structure
- Government information and archives
- Health
- Health information and medical records
- Health programs administration and funding
- Medical education
- Medical research
- Musculoskeletal and skin diseases
- National Institutes of Health (NIH)
- Neurological disorders
- Research administration and funding
Text 1
Each version as it was printed, newest first.
- Apr 28, 2009Introduced in House
Everything here is as published by Congress: the summary is the Congressional Research Service's, the action wording is the clerks', and the subjects are the Library of Congress's. How far it got is read from the actions themselves, taking the most recent one of each kind, so a bill that failed a vote and later passed is shown as having passed. Records come from this bill on Congress.gov and govinfo.gov; cost estimates are the Congressional Budget Office's, and the hearings are the printed hearings GovInfo publishes, which can appear months after the hearing.
