Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2011
Latest action · Jun 16, 2011 Referred to the Subcommittee on Health.
Progress
Where this bill reached, and when. A stage with no date was not reached; one that failed a vote and later carried shows the date it carried.
- IntroducedJun 3, 2011
- Passed HouseNot reached
- Passed SenateNot reached
- To the PresidentNot reached
- Became lawNot reached
Summary
Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2011 - Amends the Public Health Service Act to require the Secretary of Health and Human Services (HHS) to establish and implement a hereditary hemorrhagic telangiectasia (HHT, a vascular genetic bleeding disorder that causes abnormalities of the blood vessels) initiative to assist in coordinating activities to improve early detection, screening, and treatment of people who suffer from HHT, focusing on advancing research on the causes, diagnosis, and treatment of HHT and increasing physician and public awareness of HHT.
Directs the Secretary to establish the HHT Coordinating Committee to develop and coordinate implementation of a plan to advance research and understanding of HHT, including by: (1) conducting or supporting research across relevant National Institutes of Health (NIH) institutes, and (2) conducting evaluations and making recommendations regarding the prioritization and award of NIH research grants relating to HHT.
Requires the Director of the Centers for Disease Control and Prevention (CDC) to carry out activities with respect to HHT, including conducting population screening and establishing an HHT resource center to provide comprehensive education on, and disseminate information about, HHT to health professionals, patients, industry, and the public. Sets forth requirements for HHT population screening, including requiring the Director of CDC to designate and provide funding for HHT Treatment Centers of Excellence.
Requires the Administrator of the Centers for Medicare & Medicaid Services (CMS) to award grants for: (1) an analysis of the Medicare Provider Analysis and Review (MEDPAR) file to develop preliminary estimates on the totals costs to Medicare for items, services, and treatments for HHT; and (2) recommendations regarding an enhanced data collection protocol to permit a more precise determination of such costs.
Cosponsors 34
Members who signed on, in the order they did. Signatures ran from Jun 3, 2011 to Sep 10, 2012; 2 are original cosponsors, there from the day it was introduced.
| Seat | Cosponsor | Signed on | |
|---|---|---|---|
| D-OR | David Wu | Original | Jun 3, 2011 |
| D-CT | James A. Himes | Original | Jun 3, 2011 |
| R-PA | Jim Gerlach | Jun 15, 2011 | |
| D-DC | Eleanor Holmes Norton | Jun 16, 2011 | |
| D-OH | Marcia L. Fudge | Jun 21, 2011 | |
| D-CT | Rosa L. DeLauro | Jun 21, 2011 | |
| D-CA | Sam Farr | Jul 6, 2011 | |
| D-MI | Gary C. Peters | Jul 7, 2011 | |
| D-MI | John Conyers, Jr. | Jul 13, 2011 | |
| D-MI | Hansen Clarke | Jul 14, 2011 | |
| D-AZ | Ed Pastor | Jul 19, 2011 | |
| R-MI | Candice S. Miller | Jul 27, 2011 | |
| D-MI | Dale E. Kildee | Sep 7, 2011 | |
| D-CT | Christopher Murphy | Sep 15, 2011 | |
| D-MA | John F. Tierney | Sep 20, 2011 | |
| D-MA | Barney Frank | Sep 29, 2011 | |
| D-TX | Eddie Bernice Johnson | Sep 29, 2011 | |
| D-CA | Jackie Speier | Sep 29, 2011 | |
| D-IL | Jesse L. Jackson, Jr. | Oct 5, 2011 | |
| R-NC | Howard Coble | Oct 14, 2011 | |
| R-MI | Thaddeus G. McCotter | Oct 14, 2011 | |
| R-FL | C. W. Bill Young | Nov 4, 2011 | |
| R-PA | Charles W. Dent | Dec 6, 2011 | |
| D-CA | Howard L. Berman | Dec 12, 2011 | |
| D-NY | Nita M. Lowey | Dec 12, 2011 | |
| D-PA | Allyson Y. Schwartz | Jan 17, 2012 | |
| D-PA | Mark S. Critz | Mar 7, 2012 | |
| D-VA | James P. Moran | Apr 16, 2012 | |
| D-NC | David E. Price | Apr 17, 2012 | |
| D-VA | Gerald E. Connolly | May 16, 2012 | |
| D-AR | Mike Ross | Jun 7, 2012 | |
| D-NY | Carolyn McCarthy | Jun 18, 2012 | |
| R-VA | Frank R. Wolf | Jun 19, 2012 | |
| R-NJ | Christopher H. Smith | Sep 10, 2012 |
Committees 2
Where it was sent and what each committee and subcommittee did with it, in order.
| Chamber | Committee | What it did |
|---|---|---|
| House | Energy and Commerce Committee | Referred Jun 3, 2011 |
| Health Subcommittee | Referred Jun 3, 2011 | |
| House | Ways and Means Committee | Referred Jun 3, 2011 |
| Health Subcommittee | Referred Jun 16, 2011 |
Actions 4
Everything that happened, newest first.
- Jun 16, 2011Referred to the Subcommittee on Health.
- Jun 3, 2011Introduced in House
- Jun 3, 2011Referred to the Committee on Energy and Commerce, and in addition to the Committee on Ways and Means, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.
- Jun 3, 2011Referred to the Subcommittee on Health.
Research
What has been written about this bill: committee reports, cost estimates, the sponsor’s authority statement, printed hearings and the Congressional Research Service’s work.
Constitutional authority
The sponsor’s statement, as printed in the page H4036.
Related bills 1
Companion bills and other measures the record links to this one.
| Bill | Title | Relationship | Latest action |
|---|---|---|---|
| S 1167 | Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2011 | Related bill | Jun 9, 2011 |
Titles 2
Every title it has carried, official and short, at each stage.
- Official Title as Introduced
- To amend the Public Health Service Act to improve the diagnosis and treatment of hereditary hemorrhagic telangiectasia, and for other purposes.
- Short Titles as Introduced
- Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2011
Subjects
Assigned by the Library of Congress. Policy area: Health.
- Advisory bodies
- Cardiovascular and respiratory health
- Health
- Health care costs and insurance
- Health facilities and institutions
- Health information and medical records
- Health programs administration and funding
- Hereditary and development disorders
- Medical research
- Medical tests and diagnostic methods
- Medicare
- Research administration and funding
Text 1
Each version as it was printed, newest first.
- Jun 3, 2011Introduced in House
Everything here is as published by Congress: the summary is the Congressional Research Service's, the action wording is the clerks', and the subjects are the Library of Congress's. How far it got is read from the actions themselves, taking the most recent one of each kind, so a bill that failed a vote and later passed is shown as having passed. Records come from this bill on Congress.gov and govinfo.gov; cost estimates are the Congressional Budget Office's, and the hearings are the printed hearings GovInfo publishes, which can appear months after the hearing.
