SMA Treatment Acceleration Act of 2009
Latest action · Apr 29, 2009 Referred to the Subcommittee on Health.
Progress
Where this bill reached, and when. A stage with no date was not reached; one that failed a vote and later carried shows the date it carried.
- IntroducedApr 28, 2009
- Passed HouseNot reached
- Passed SenateNot reached
- To the PresidentNot reached
- Became lawNot reached
Summary
SMA Treatment Acceleration Act of 2009 - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH) to establish a national clinical trials network for spinal muscular atrophy by upgrading and unifying spinal muscular atrophy clinical trial sites and recruiting new investigators and sites. Requires the Director to ensure that such network: (1) conducts coordinated, multisite, clinical trials of therapies and clinical approaches to the treatment of spinal muscular atrophy; and (2) rapidly and efficiently disseminates scientific findings to the field.
Requires the Director to: (1) establish a data coordinating center with respect to spinal muscular atrophy; and (2) expand and intensify NIH programs with respect to preclinical translation research related to spinal muscular atrophy.
Requires the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to enhance and support a spinal muscular atrophy patient registry to provide for expanded epidemiological research towards improving awareness, management, treatment, and prevention of spinal muscular atrophy. Requires the Secretary to ensure the collection and analysis of longitudinal data related to individuals of all ages.
Directs the Secretary to establish the Interagency Spinal Muscular Atrophy Research Coordinating Committee. Sets forth the duties of the Committee, including to develop a comprehensive strategy related to spinal muscular atrophy research and other related neurological diseases and disorders.
Requires the Secretary to establish a program to provide information and education on spinal muscular atrophy to health professionals and the general public.
Cosponsors 119
Members who signed on, in the order they did. Signatures ran from Apr 28, 2009 to Nov 15, 2010, with 1 there on the day it was introduced.
| Seat | Cosponsor | Signed on | |
|---|---|---|---|
| R-VA | Eric Cantor | Original | Apr 28, 2009 |
| D-NY | Carolyn B. Maloney | Apr 29, 2009 | |
| R-OH | Patrick J. Tiberi | Apr 30, 2009 | |
| D-OH | Steve Driehaus | Apr 30, 2009 | |
| R-VA | Robert J. Wittman | May 5, 2009 | |
| R-FL | C. W. Bill Young | May 12, 2009 | |
| R-VA | Frank R. Wolf | May 12, 2009 | |
| D-PA | Joe Sestak | May 12, 2009 | |
| R-LA | John Fleming | May 12, 2009 | |
| R-WA | Cathy McMorris Rodgers | May 14, 2009 | |
| D-OR | David Wu | Jun 2, 2009 | |
| R-MI | Thaddeus G. McCotter | Jun 2, 2009 | |
| R-SC | Joe Wilson | Jun 3, 2009 | |
| D-NY | Edolphus Towns | Jun 9, 2009 | |
| D-RI | James R. Langevin | Jun 9, 2009 |
Actions 4
Everything that happened, newest first.
- Apr 29, 2009Referred to the Subcommittee on Health.
- Apr 28, 2009Introduced in House
- Apr 28, 2009Referred to the House Committee on Energy and Commerce.
- Apr 28, 2009Sponsor introductory remarks on measure. (CR E993)
Related bills 1
Companion bills and other measures the record links to this one.
| Bill | Title | Relationship | Latest action |
|---|---|---|---|
| S 1158 | SMA Treatment Acceleration Act of 2009 | Related bill | May 21, 2009 |
Subjects
Assigned by the Library of Congress. Policy area: Health.
- Department of Health and Human Services
- Executive agency funding and structure
- Government information and archives
- Health
- Health information and medical records
- Health programs administration and funding
- Medical education
- Medical research
- Musculoskeletal and skin diseases
- National Institutes of Health (NIH)
- Neurological disorders
- Research administration and funding
Text 1
Each version as it was printed, newest first.
- Apr 28, 2009Introduced in House
Everything here is as published by Congress: the summary is the Congressional Research Service's, the action wording is the clerks', and the subjects are the Library of Congress's. How far it got is read from the actions themselves, taking the most recent one of each kind, so a bill that failed a vote and later passed is shown as having passed. Records come from this bill on Congress.gov and govinfo.gov.