SMA Treatment Acceleration Act
Latest action · Sep 12, 2007 Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Progress
Where this bill reached, and when. A stage with no date was not reached; one that failed a vote and later carried shows the date it carried.
- IntroducedSep 12, 2007
- Passed SenateNot reached
- Passed HouseNot reached
- To the PresidentNot reached
- Became lawNot reached
Summary
SMA Treatment Acceleration Act - Requires the Director of the National Institutes of Health (NIH) to upgrade and unify existing spinal muscular atrophy (SMA) clinical trial sites to establish a national clinical trials network for SMA. Requires the Director of NIH to ensure that such network: (1) conducts coordinated, multisite, clinical trials of pharmacological approaches to the treatment of SMA; and (2) rapidly and effectively disseminates scientific findings to the field.
Requires the Director of NIH to: (1) establish an SMA data coordinating center; and (2) expand and intensify NIH programs with respect to preclinical translation research and medicinal chemistry related to SMA.
Requires the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to enhance and provide ongoing support to the existing SMA patient registry to provide for expanded research on the epidemiology of SMA. Directs the Secretary to ensure the collection and analysis of longitudinal data related to individuals of all ages with SMA.
Requires the Secretary to establish the Spinal Muscular Atrophy Coordinating Committee to: (1) coordinate activities across NIH and with other federal health programs and activities relating to SMA; and (2) conduct a study to identify barriers to the development of drugs for treating SMA and similar genetic disorders.
Requires the Director of NIH to establish a trans-National Institutes of Health cooperative research initiative on SMA to ensure the success of the SMA projects led by the National Institute of Neurological Disorders and Stroke.
Requires the Secretary to submit recommendations to Congress to improve and expand on incentives provided under the Orphan Drug Act and related statutes to promote SMA drug development.
Cosponsors 21
Members who signed on, in the order they did. Signatures ran from Sep 12, 2007 to Jul 31, 2008; 3 are original cosponsors, there from the day it was introduced.
| Seat | Cosponsor | Signed on | |
|---|---|---|---|
| R-VA | John Warner | Original | Sep 12, 2007 |
| R-GA | Johnny Isakson | Original | Sep 12, 2007 |
| D-RI | Sheldon Whitehouse | Original | Sep 12, 2007 |
| R-GA | Saxby Chambliss | Oct 18, 2007 | |
| D-WA | Maria Cantwell | Oct 22, 2007 | |
| D-OH | Sherrod Brown | Dec 3, 2007 | |
| D-NJ | Frank R. Lautenberg | Dec 10, 2007 | |
| D-VA | Jim Webb | Dec 11, 2007 | |
| D-RI | Jack Reed | Dec 14, 2007 | |
| D-WA | Patty Murray | Dec 19, 2007 | |
| D-NM | Jeff Bingaman | Feb 11, 2008 | |
| D-CA | Barbara Boxer | Apr 1, 2008 | |
| D-CA | Dianne Feinstein | Apr 3, 2008 | |
| D-NJ | Robert Menendez | Jun 3, 2008 | |
| D-MA | John F. Kerry | Jun 12, 2008 | |
| I-VT | Bernard Sanders | Jun 23, 2008 | |
| I-CT | Joseph I. Lieberman | Jun 24, 2008 | |
| D-PA | Robert P. Casey Jr. | Jul 14, 2008 | |
| D-NY | Hillary Rodham Clinton | Jul 17, 2008 | |
| D-IL | Barack Obama | Jul 23, 2008 | |
| D-MD | Barbara A. Mikulski | Jul 31, 2008 |
Committees 1
Where it was sent and what each committee and subcommittee did with it, in order.
| Chamber | Committee | What it did |
|---|---|---|
| Senate | Health, Education, Labor, and Pensions Committee | Referred Sep 12, 2007 |
Actions 3
Everything that happened, newest first.
- Sep 12, 2007Introduced in Senate
- Sep 12, 2007Sponsor introductory remarks on measure. (CR S11510-11511)
- Sep 12, 2007Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
In the Congressional Record 1
Days the Record’s own index lists this bill, newest first, with the pages and the members it names. Pages starting H are the House, S the Senate, E Extensions of Remarks.
| Where | In the Record | Members | Date |
|---|---|---|---|
| Senate | Debate and remarks S11510 | Debbie Stabenow D-MI | Sep 12, 2007 |
Related bills 1
Companion bills and other measures the record links to this one.
| Bill | Title | Relationship | Latest action |
|---|---|---|---|
| HR 3334 | SMA Treatment Acceleration Act | Related bill | Aug 2, 2007 |
Titles 2
Every title it has carried, official and short, at each stage.
- Official Title as Introduced
- A bill to authorize the Secretary of Health and Human Services to conduct activities to rapidly advance treatments for spinal muscular atrophy, neuromuscular disease, and other pediatric diseases, and for other purposes.
- Short Titles as Introduced
- SMA Treatment Acceleration Act
Subjects
Assigned by the Library of Congress. Policy area: Health.
Text 1
Each version as it was printed, newest first.
- Sep 12, 2007Introduced in Senate
Everything here is as published by Congress: the summary is the Congressional Research Service's, the action wording is the clerks', and the subjects are the Library of Congress's. How far it got is read from the actions themselves, taking the most recent one of each kind, so a bill that failed a vote and later passed is shown as having passed. Records come from this bill on Congress.gov and govinfo.gov; cost estimates are the Congressional Budget Office's, and the hearings are the printed hearings GovInfo publishes, which can appear months after the hearing.
