Expresses the sense of Congress that: (1) the Federal Government has a responsibility to further research on von Willebrand's disease, improve access to treatment centers for all individuals with bleeding disorders, and increase funding for research; (2) the Director of the National Institutes of Health should develop a 5-year research plan concerning women with bleeding disorders; (3) the Director of the Centers for Disease Control and Prevention should continue to improve outreach, treatment, and prevention of the complications of women's bleeding disorders; (4) physicians should screen all adolescents and all adult women presenting with severe menorrhagia for von Willebrand's disease; (5) hysterectomy for excessive menstrual bleeding should not be performed without the consideration of a bleeding disorder; (6) referral of women with bleeding disorders to a federally sponsored hemophilia treatment center is critical to comprehensive treatment; (7) physicians should be encouraged to conduct clotting factor assays for carrier diagnosis and to facilitate genotyping of the disorder and patients should be referred for genetic counseling when appropriate; and (8) patient advocate organizations and medical specialty societies should continue to collaborate on public education campaigns to educate women about bleeding disorders.
Actions
Nov 14, 2003
Referred to the Subcommittee on Health.
Oct 29, 2003
Referred to the House Committee on Energy and Commerce.