EPILEPSY FOUNDATION for EPILEPSY FOUNDATION
What was lobbied
4 issue areas, each in the filer's own words, with who lobbied on it and where.
Budget/Appropriations BUD
-Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2026, support funding for epilepsy programs and research including $11.581 billion for the CDC including $12 million for the CDCs Epilepsy program and $164 million for the CDCs Safe Motherhood and Infant Health Program, $51.3 billion for the NIH, $680 million for the BRAIN Initiative, and increased funding for the Social Security Administration. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2026, support at least $29.212 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2026, support robust funding for the Food & Drug Administration; oppose provisions that could restrict access to CBD and block rescheduling of cannabis -Defense Appropriations Act, 2026, within the Congressionally Directed Medical Research Programs, support $12 million for the Epilepsy Program, $10 million for the Tuberous Sclerosis Complex program and $175 million for the TBI and Psychological Health Program. -Commerce, Justice, Science Appropriations Act, 2026, oppose provisions that could restrict access to cannabis and block rescheduling
| Lobbyist | Covered position, as disclosed |
|---|---|
| TYLER BECK | — |
| LAURA WEIDNER | — |
| ROXANNE YAGHOUBI | — |
Health Issues HCR
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage
| Lobbyist | Covered position, as disclosed |
|---|---|
| TYLER BECK | — |
| LAURA WEIDNER | — |
| ROXANNE YAGHOUBI | — |
Civil Rights/Civil Liberties CIV
-Support implementation of disability provisions in FAA reauthorization -Oppose the order to end funding for youth LGBTQ+ services on the 988 hotline -Oppose final rules on non-discrimination in public programs
| Lobbyist | Covered position, as disclosed |
|---|---|
| TYLER BECK | — |
| ROXANNE YAGHOUBI | — |
Education EDU
-Oppose changes to and Reductions of Force at the Department of Education that could impede the rights of students with disabilities
| Lobbyist | Covered position, as disclosed |
|---|---|
| TYLER BECK | — |
| ROXANNE YAGHOUBI | — |
Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.