HR 5178 · 119th Congress 2025–2027

Sickle Cell Disease Comprehensive Care Act

Latest action · Sep 8, 2025 Referred to the House Committee on Energy and Commerce.

Progress

Where this bill reached, and when. A stage with no date was not reached; one that failed a vote and later carried shows the date it carried.

  1. IntroducedSep 8, 2025
  2. Passed HouseNot reached
  3. Passed SenateNot reached
  4. To the PresidentNot reached
  5. Became lawNot reached

Summary

Sickle Cell Disease Comprehensive Care Act

This bill allows state Medicaid programs to establish health homes to provide coordinated care for individuals with sickle-cell disease. (Under current law, state Medicaid programs may establish health homes to provide coordinated care for individuals with specified chronic conditions.) States must ensure that such care includes dental and vision services.

The Centers for Medicare & Medicaid Services must issue best practices for states on how to design and implement such health homes.

Cosponsors 37

Members who signed on, in the order they did. Signatures ran from Sep 8, 2025 to Nov 2, 2026; 19 are original cosponsors, there from the day it was introduced.

SeatCosponsorSigned on
D-TXAl GreenOriginalSep 8, 2025
D-MSBennie G. ThompsonOriginalSep 8, 2025
D-LACleo FieldsOriginalSep 8, 2025
D-ILDanny K. DavisOriginalSep 8, 2025
D-FLDarren SotoOriginalSep 8, 2025
D-NCDonald G. DavisOriginalSep 8, 2025
R-GAEarl L. "Buddy" CarterOriginalSep 8, 2025
D-DCEleanor Holmes NortonOriginalSep 8, 2025
R-FLGus M. BilirakisOriginalSep 8, 2025
D-GAHenry C. "Hank" Johnson, Jr.OriginalSep 8, 2025
D-ILJonathan L. JacksonOriginalSep 8, 2025
D-NJJosh GottheimerOriginalSep 8, 2025
D-TXJulie JohnsonOriginalSep 8, 2025
D-NJLaMonica McIverOriginalSep 8, 2025
D-ILNikki BudzinskiOriginalSep 8, 2025
D-MIRashida TlaibOriginalSep 8, 2025
D-MASeth MoultonOriginalSep 8, 2025
D-ALShomari FiguresOriginalSep 8, 2025
D-ALTerri A. SewellOriginalSep 8, 2025
D-INAndré CarsonSep 9, 2025
D-MDGlenn IveySep 30, 2025
D-DESarah McBrideSep 30, 2025
D-MIShri ThanedarSep 30, 2025
D-VAEugene Simon VindmanOct 8, 2025
D-CALaura FriedmanDec 3, 2025
D-WAPramila JayapalMar 3, 2026
R-SCJoe WilsonMar 18, 2026
D-WIGwen MooreApr 14, 2026
D-VIStacey E. PlaskettApr 14, 2026
D-WASuzan K. DelBeneApr 22, 2026
D-NJHerbert C. Conaway, Jr.Jun 8, 2026
D-CAPete AguilarJun 8, 2026
D-NCAlma S. AdamsJun 23, 2026
D-CASalud O. CarbajalJun 29, 2026
D-NCValerie P. FousheeSep 2, 2026
D-LATroy A. CarterSep 14, 2026
D-CAMark DeSaulnierNov 2, 2026

Committees 1

Where it was sent and what each committee and subcommittee did with it, in order.

ChamberCommitteeWhat it did
HouseEnergy and Commerce Committee
Referred Sep 8, 2025

Actions 2

Everything that happened, newest first.

  1. Sep 8, 2025Introduced in House
  2. Sep 8, 2025Referred to the House Committee on Energy and Commerce.

In the Congressional Record 1

Days the Record’s own index lists this bill, newest first, with the pages and the members it names. Pages starting H are the House, S the Senate, E Extensions of Remarks.

WhereIn the RecordMembersDate
HouseDebate and remarks H4423Shomari Figures D-ALSep 18, 2025

Related bills 2

Companion bills and other measures the record links to this one.

BillTitleRelationshipLatest action
S 721Sickle Cell Disease Comprehensive Care ActRelated billFeb 25, 2025
HR 9877Health Equity and Accountability Act of 2026Related billSep 29, 2026

Titles 2

Every title it has carried, official and short, at each stage.

Official Title as Introduced
To amend title XIX of the Social Security Act to enable State Medicaid programs to provide comprehensive, coordinated care through a health home to individuals with sickle cell disease.
Short Title(s) as Introduced
Sickle Cell Disease Comprehensive Care Act

Subjects

Assigned by the Library of Congress. Policy area: Health.

Text 1

Each version as it was printed, newest first.

  1. Sep 8, 2025Introduced in House

Support LegiList

This page is free, carries no paywall, and is built and maintained by one person. If the record here is useful to you, a few dollars keeps it going.

Processed by Stripe in a separate window. LegiList never sees card details.

Everything here is as published by Congress: the summary is the Congressional Research Service's, the action wording is the clerks', and the subjects are the Library of Congress's. How far it got is read from the actions themselves, taking the most recent one of each kind, so a bill that failed a vote and later passed is shown as having passed. Records come from this bill on Congress.gov and govinfo.gov; cost estimates are the Congressional Budget Office's, and the hearings are the printed hearings GovInfo publishes, which can appear months after the hearing.