Hawaii House bill in Session 2026.
Status: in_committee. Latest action: January 23, 2025.
Rare Diseases; Genetic Disorders; Advisory Council; Insurance.
Establishes the rare disease advisory council to increase awareness and effective medical intervention for rare diseases. Establishes the rare disease advisory council special fund. Requires DOH and DOE to incorporate the importance of annual physical examinations for children in programs and literature. Amends the insurance code to include coverage for individuals with velocardiofacial syndrome and other genetic disorders. Exempts from cost sharing. Appropriates funds.
| Date | Event | Detail |
|---|---|---|
| 0000-00-00 | Introduced | Bill introduced |
| 2025-01-23 | Status | in_committee |
| 2025-01-23 | Latest Action | Referred to HLT/EDN, CPC, FIN, referral sheet 3 |