Delaware Rare Disease Advisory Council/Establish

What it does

The legislature's own summary of the bill, or its official long title.

This bill establishes the Delaware Rare Disease Advisory Council which, among other things, is intended to educate medical professionals, government agencies, legislators, and the public about rare diseases. There are about 7,000 known rare diseases, and they create major public health challenges. The Advisory Council is charged with engaging in activities intended to benefit rare disease patients in Delaware, including encouraging and securing funding for the development of new treatments for rare diseases.

Every action

9 steps, oldest first, as the legislature records them.

1. Mar 1, 2023CommitteeIntroduced and Assigned to Health & Social Services Committee in Senate · Senate Health & Social Services
2. Mar 8, 2023CommitteeReported Out of Committee (Health & Social Services) in Senate with 7 Favorable · Senate Health & Social Services
3. Jun 1, 2023SenateAmendment SA 1 to SB 55 - Introduced and Placed With Bill
4. Jun 8, 2023SenateAmendment SA 1 to SB 55 - Passed By Senate. Votes: 20 YES 1 ABSENT
5. Jun 8, 2023SenatePassed By Senate. Votes: 21 YES21–0 vote
6. Jun 8, 2023CommitteeAssigned to Health & Human Development Committee in House · House Health & Human Development
7. Jun 14, 2023CommitteeReported Out of Committee (Health & Human Development) in House with 3 Favorable, 6 On Its Merits · House Health & Human Development
8. Jun 20, 2023HousePassed By House. Votes: 39 YES 2 ABSENT
9. Jul 26, 2023GovernorSigned by Governor

Roll calls

3 recorded votes: 3 on the floor, 0 in committee. Each shows how every member voted.

Sponsors

The member who introduced it, joined by 13 cosponsors: 9 Democrats, 4 Republicans.

• NP Nicole PooreD Primary sponsor · District 12
• KG Krista GriffithD Joint sponsor · District 12