NATIONAL MULTIPLE SCLEROSIS SOCIETY for NATIONAL MULTIPLE SCLEROSIS SOCIETY

Health Issues HCR

H.R. 985, Fair Access for Safe and Timely Generics Act of 2019 (FAST Generics Act), support passage. H.R. 2035/S. 995, Lifespan Respite Care Reauthorization Act, support reauthorization H.R. 3208/ S.1755 - Real Emergency Access for Aging and Disability Inclusion for Disasters Act, support passage H.R. 2781 - Empower for Health Act of 2019, support passage H.R. 2296/S.1391 - FAIR Drug Pricing Act of 2019, support passage H.R. 3630 - No Surprises Act, support passage H.R. 1010, To provide that the rule entitled Short-Term, Limited Duration Insurance shall have no force or effect, support passage. H.R. 986, The Protecting Americans with Preexisting Conditions Act of 2019, support passage. H.R.1386, Expand Navigators Resources for Outreach, Learning, and Longevity (ENROLL) Act of 2019, support passage. H.R. 2408, the Ensuring Access to Quality Complex Rehabilitation technology Act, support passage. H.R 3 - Lower Drug Costs Now Act of 2019, support passage H.R. 19 - Lower Costs, More Cures Act of 2019, support passage H.R. 2387, the Stop The Overuse of Petitions and Get Affordable Medicines to Enter Soon (STOP GAMES) Act of 2019, support passage H.R. 6417, Protecting Cures Act of 2020, support passage H.R. 5800, Ban Surprise Billing Act, support passage H.R. 1595, Secure and Fair Enforcement Banking Act (SAFE Banking Act), support passage S. 1935, Family Coverage Act, support passage. S.1556, No Junk Plans Act, support passage. S.475, Reducing Existing Costs Associated with Pharmaceuticals for Seniors Act of 2019 (RX Cap Act), support passage S. 637, Combatting Unreasonable Rises and Excessively High Drug Prices Act (CURE High Drug Prices Act), support passage S.366, Forcing Limits on Abusive and Tumultuous Prices (FLAT Prices) Act, support passage S. 63, Preserve Access to Affordable Generics and Biosimilars Act, support passage S. 659, Biologic Patent Transparency Act, support passage S.1895 - Lower Health Care Costs Act, support passage S. 2543 - Prescription Drug Price Reduction Act of 2019 - support passage S. 1801, Low Cost Generics Act of 2019, support passage H.R. 1425 Patient Protection and Affordable Care Enhancement Act, support H.R. 6514, Worker Health Coverage Protection Act, Support H.R. 3832, S. 1257, Legacy IRA Act, Support H.R. 6408 - Save the Organizations that Serve America Act S.3544/H.R.6305 - Coronavirus Relief for Seniors and People with Disabilities Act of 2020, support S. 3815, RESTART Act, Oppose S. 3833/H.R. 7010/H.R.6886, Paycheck Protection Program Flexibility Act of 2020, Support S. 4032/H.R. 7324, Universal Giving Pandemic Response Act. Support passage H.R. 6892-Help Charities Protect Communities Act, Support - S.Amdt. 1566 to the CARES Act, Charitable Giving oAmendment Increases the $300 limit on the charitable giving deduction to one-third of the standard deduction ($4,000 for an individual filer/$8,000 for married joint filers) for the remainder of 2020. Support. H.R. 7663-Protecting Access to Post-COVID-19 Telehealth Act, support passage H.R. 6644/S. 3741 - Health Care At Home Act, support passage H.R. 7391- the Protect Telehealth Access Act, support passage S. 3998- the Enhancing Preparedness Through Telehealth Act, support passage

Contacted: Health & Human Services, Dept of (HHS); SENATE; Centers For Medicare and Medicaid Services (CMS); Food & Drug Administration (FDA); Natl Institutes of Health (NIH); HOUSE OF REPRESENTATIVES

Bills named: S. 475 (116th), H.R. 6305 (116th), H.R. 6892 (116th), S. 2543 (116th), S. 3833 (116th), S. 1935 (116th), S. 659 (116th), S. 637 (116th), H.R. 3208 (116th), H.R. 986 (116th), S. 1895 (116th), H.R. 19 (116th), S. 995 (116th), H.R. 985 (116th), H.R. 3832 (116th), H.R. 2035 (116th), H.R. 6417 (116th), S. 366 (116th), H.R. 7010 (116th), H.R. 6514 (116th), S. 63 (116th), S. 3544 (116th), H.R. 2408 (116th), H.R. 1425 (116th), S. 1755 (116th), H.R. 1595 (116th), H.R. 7324 (116th), H.R. 2387 (116th), S. 1556 (116th), S. 1801 (116th), H.R. 6886 (116th), S. 4032 (116th), H.R. 3 (116th), H.R. 1386 (116th), S. 1257 (116th), H.R. 3630 (116th), H.R. 7391 (116th), H.R. 5800 (116th), H.R. 2781 (116th), S. 1391 (116th), H.R. 6408 (116th), H.R. 1010 (116th), H.R. 6644 (116th), H.R. 2296 (116th), H.R. 7663 (116th), S. 3998 (116th), S. 3741 (116th), S. 3815 (116th)

Medicare/Medicaid MMM

H.R. 3215/ S. 1754 - Disaster Relief Medicaid Act, support passage H.R. 7647 H.R. 2293, the Protecting Access to Wheelchairs Act, support passage H.R. 3107, Improving Seniors Timely Access to Care Act of 2019, support passage S. 1223, the Protecting Beneficiary Access to Complex Rehab Technology Act, support passage S. 1280/HR 2477 - Beneficiary Enrollment Notification and Eligibility Simplification (BENES) Act, support passage S. 691 - Medicare Extra Rx Help Act- support passage S. 2543 - Prescription Drug Price Reduction Act of 2019 - support passage oMenendez - Lankford- Cardin-Daines Amendment 1 Incentivizing Generic and Biosimilar Use in Medicare Part D - support adoption oMenendez -Lankford - Cardin --Daines Amendment 2 Incentivizing Generic Use in Medicare Part D, support adoption S.2911, the Seniors Prescription Drug Relief Act of 2019, support passage. S.4468, COVID-19 Treatment Coverage Act, support passage

Contacted: Health & Human Services, Dept of (HHS); Food & Drug Administration (FDA); Centers For Medicare and Medicaid Services (CMS); HOUSE OF REPRESENTATIVES; SENATE; Natl Institutes of Health (NIH)

Bills named: S. 1280 (116th), S. 1754 (116th), S. 1223 (116th), S. 4468 (116th), H.R. 3215 (116th), H.R. 3107 (116th), H.R. 2293 (116th), S. 2911 (116th), H.R. 7647 (116th), H.R. 2477 (116th), S. 691 (116th), S. 2543 (116th)

Budget/Appropriations BUD

H.R. 7608, H.R. 7616 - Labor, Health and Human Services, Education, Defense, Military Construction and Veterans Affairs, and Food and Drug Administration Appropriations Acts for fiscal year 2021 Defense Appropriations Act, 2021, support $20 million for the MSRP. Department of Labor, Health and Human Services and Education and Related Agencies Appropriations Act, 2021: $471 million for the Agency for Healthcare Research and Quality (AHRQ) $8.45 billion for the Centers for Disease Control and Prevention (CDC) inclusive of $5 million for the National Neurological Conditions Surveillance Program authorized in the 21st Century Cures Act; $10 million for the Lifespan Respite Care Program; Robust funding for Medicare and Medicaid and protection of Medicaids current financing structure At least $44.7 billion for the National Institute of Health (NIH), including funds provided to the agency through the 21st Century Cures Act (P.L. 114-255) for targeted initiative; $150 million for the Patient Centered Outcomes Research Institute (PCORI); and $13.5 billion for the Social Security Administration to include report language that directs a review of funding for all of the VA Centers of Excellence and enact a strategy that ensures these important programs are funded in a consistent and transparent manner and that the funding meets the scope and scale of their missions. $3.6 billion for the Food and Drug Administration Supporting same funding levels in Senate for these programs. H.R. 6202 Families First Coronavirus Response Act - supplemental appropriations and health provisions related to the COVID-19 pandemic, support passage S.3548 Coronavirus Aid, Relief, and Economic Security Act (CARES Act)- supplemental appropriations and health/economic stimulus relating to the COVID-19 pandemic, support passage.

Contacted: HOUSE OF REPRESENTATIVES; Natl Institutes of Health (NIH); SENATE; Food & Drug Administration (FDA); Centers For Medicare and Medicaid Services (CMS); Health & Human Services, Dept of (HHS)

Bills named: H.R. 6202 (116th), H.R. 7608 (116th), S. 3548 (116th), H.R. 7616 (116th)

Medical/Disease Research/Clinical Labs MED

H.R. 7308/S.4286 Research Investment to Spark the Economy Act (RISE) Act, support passage oSupport Markey Amendment in the Nature of a Substitute to add provisions allowing for $2 billion in funding for non-profit research stalled by the COVID-19 pandemic and $1 billion in funding to aid in clinical trial sites. S.2400/ H.R. 4322 - Expanding Cannabis Research and Information Act, support passage H.R. 3439 - Reauthorization of the Patient Centered Outcomes Research Institute, support reauthorization.

Contacted: Centers For Medicare and Medicaid Services (CMS); HOUSE OF REPRESENTATIVES; Natl Institutes of Health (NIH); SENATE; Food & Drug Administration (FDA); Health & Human Services, Dept of (HHS)

Bills named: S. 2400 (116th), H.R. 7308 (116th), H.R. 3439 (116th), S. 4286 (116th), H.R. 4322 (116th)

Civil Rights/Civil Liberties CIV

Signed on to letter dated 4.16.20 to HHS Secretary Azar and Office of Civil Rights (OCR) Director Severino urging further executive action and additional guidance to assure any care rationing plans fully comply with federal anti-discrimination laws.

Foreign entity interest: No foreign interests.

Contacted: Food & Drug Administration (FDA); SENATE; Centers For Medicare and Medicaid Services (CMS); HOUSE OF REPRESENTATIVES; Natl Institutes of Health (NIH); Health & Human Services, Dept of (HHS)

Transportation TRA

N/A

Contacted: Food & Drug Administration (FDA); SENATE; Health & Human Services, Dept of (HHS); Centers For Medicare and Medicaid Services (CMS); HOUSE OF REPRESENTATIVES; Natl Institutes of Health (NIH)