ARTEMIS POLICY GROUP LLC for NATIONAL BLEEDING DISORDER FOUNDATION (FKA NATIONAL HEMOPHILIA FOUNDATION)
What was lobbied
6 issue areas, each in the filer's own words, with who lobbied on it and where.
Medicare/Medicaid MMM
H.R. 1, One Big Beautiful Bill Act Reimbursement for hemophilia services and treatments in Medicare Reimbursement for hemophilia services and treatments in Medicaid Preserving and expanding access to Medicaid Issues related to 1115 and 1332 of the Social Security Act; policies related to work requirements, reinsurance and block grants in Medicaid
| Lobbyist | Covered position, as disclosed |
|---|---|
| LESLIE BRADY | Health Policy Advisor/Legislative Assistant, Rep. Brian Higgins |
| MIRIAM GOLDSTEIN New | — |
| JOHANNA GRAY | Intern, Senator Barack Obama |
| ELLEN RIKER | — |
Health Issues HCR
Blood and plasma safety and awareness Bleeding disorders awareness
| Lobbyist | Covered position, as disclosed |
|---|---|
| LESLIE BRADY | Health Policy Advisor/Legislative Assistant, Rep. Brian Higgins |
| MIRIAM GOLDSTEIN New | — |
| JOHANNA GRAY | Intern, Senator Barack Obama |
| ELLEN RIKER | — |
Insurance INS
H.R. 1, One Big Beautiful Bill Act Implementation of the Affordable Care Act The HELP Copays Act (S. 864, H.R. 6423) Coverage of hemophilia treatments and services in private insurance plans, including the alternative funding model Policies related to copay accumulator adjustor and maximizer programs Policies related to the extension of enhanced advanced premium tax credits, including HR 247, HR 1, HR 5371, S 46, HR 1834. Protect patients from substandard and junk insurance products
| Lobbyist | Covered position, as disclosed |
|---|---|
| LESLIE BRADY | Health Policy Advisor/Legislative Assistant, Rep. Brian Higgins |
| MIRIAM GOLDSTEIN New | — |
| JOHANNA GRAY | Intern, Senator Barack Obama |
| ELLEN RIKER | — |
Budget/Appropriations BUD
Funding for federal hemophilia programs in FY26 House and Senate Labor-HHS Appropriations bills NIH FY26 appropriations
| Lobbyist | Covered position, as disclosed |
|---|---|
| LESLIE BRADY | Health Policy Advisor/Legislative Assistant, Rep. Brian Higgins |
| MIRIAM GOLDSTEIN New | — |
| JOHANNA GRAY | Intern, Senator Barack Obama |
| ELLEN RIKER | — |
Pharmacy PHA
Issues related to hemophilia treatments, specialty pharmacies and the 340B drug purchasing program
| Lobbyist | Covered position, as disclosed |
|---|---|
| LESLIE BRADY | Health Policy Advisor/Legislative Assistant, Rep. Brian Higgins |
| MIRIAM GOLDSTEIN New | — |
| JOHANNA GRAY | Intern, Senator Barack Obama |
| ELLEN RIKER | — |
Medical/Disease Research/Clinical Labs MED
Hemophilia research, prevention, surveillance and service programs and issues
| Lobbyist | Covered position, as disclosed |
|---|---|
| LESLIE BRADY | Health Policy Advisor/Legislative Assistant, Rep. Brian Higgins |
| MIRIAM GOLDSTEIN New | — |
| JOHANNA GRAY | Intern, Senator Barack Obama |
| ELLEN RIKER | — |
Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.