1st Quarter - Report — CURE SMA for CURE SMA (2025)

Firm

CURE SMA

Client

CURE SMA

Income

—

Expenses

$75,000

Expense method

A: Lobbying Disclosure Act definitions

What was lobbied

10 issue areas, each in the filer's own words, with who lobbied on it and where.

Health Issues HCR

Research into spinal muscular atrophy, timely access to care, treatments, medical devices, and home and community-based services, Give Kids a Chance Act (H.R.1261/ S.932- FDA Pediatric Priority Review Voucher Program), DOD Peer-Reviewed Medical Research Program, Labor-Health and Human Services, and Education Appropriations bill, Family Caregiver Awareness, Resources, and Education (CARE) Partnerships Act, Pediatric Palliative Care Homes, National Institutes of Health funding

Lobbyist	Covered position, as disclosed
SARAH BELLISH	—
MAYNARD FRIESZ	—

Contacted: Centers For Medicare and Medicaid Services (CMS); Natl Institutes of Health (NIH); Health & Human Services, Dept of (HHS); Food & Drug Administration (FDA); Defense, Dept of (DOD); HOUSE OF REPRESENTATIVES; SENATE

Bills named: S. 932 (119th), H.R. 1261 (119th)

Budget/Appropriations BUD

2025 Budget Resolution, National Institutes of Health research into spinal muscular atrophy, U.S. Department of Defense Peer-Reviewed Medical Research in spinal muscular atrophy, Medicaid home and community-based services, housing (Sec. 811 Housing for People with Disabilities & Mainstream Housing Choice Vouchers), Defense Health Research Programs (Congressionally Directed Medical Research Programs), Labor-HHS-Education Appropriations bill, Transportation-HUD Appropriations bill

Lobbyist	Covered position, as disclosed
SARAH BELLISH	—
MAYNARD FRIESZ	—

Contacted: Defense, Dept of (DOD); SENATE; Natl Institutes of Health (NIH); HOUSE OF REPRESENTATIVES; Centers For Medicare and Medicaid Services (CMS); Health & Human Services, Dept of (HHS); Housing & Urban Development, Dept of (HUD)

Civil Rights/Civil Liberties CIV

Supplemental Security Income Savings Penalty Elimination Act (H.R.2540/ S.1234), disability marriage penalty, home and community-based services, Individuals with Disabilities Act (P.L. 101-336), ENABLE Act (H.R.1436/S.627),

Lobbyist	Covered position, as disclosed
SARAH BELLISH	—
MAYNARD FRIESZ	—

Contacted: SENATE; HOUSE OF REPRESENTATIVES

Bills named: S. 627 (119th), H.R. 2540 (119th), H.R. 1436 (119th), S. 1234 (119th)

Aviation/Airlines/Airports AVI

FAA Reauthorization Act of 2024 (P.L. 118-63); Air Carrier Access Act (P.L. 99-435), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs Final Rule

Lobbyist	Covered position, as disclosed
SARAH BELLISH	—
MAYNARD FRIESZ	—

Contacted: SENATE; HOUSE OF REPRESENTATIVES; Transportation, Dept of (DOT)

Defense DEF

U.S. Department of Defense Peer-Reviewed Medical Research Program Research in Spinal Muscular Atrophy, Defense Health Research Programs (Congressionally Directed Medical Research Programs)

Lobbyist	Covered position, as disclosed
SARAH BELLISH	—
MAYNARD FRIESZ	—

Contacted: HOUSE OF REPRESENTATIVES; Defense, Dept of (DOD); SENATE

Housing HOU

Transportation-HUD Appropriations bill, housing for people with disabilities (Sec. 811 Housing for People with Disabilities & Mainstream Housing Choice Vouchers)

Lobbyist	Covered position, as disclosed
SARAH BELLISH	—
MAYNARD FRIESZ	—

Contacted: SENATE; HOUSE OF REPRESENTATIVES; Housing & Urban Development, Dept of (HUD)

Medical/Disease Research/Clinical Labs MED

medical research in spinal muscular atrophy, National Institutes of Health funding, U.S. Department of Defense peer reviewed research in spinal muscular atrophy

Lobbyist	Covered position, as disclosed
SARAH BELLISH	—
MAYNARD FRIESZ	—

Contacted: SENATE; Natl Institutes of Health (NIH); Defense, Dept of (DOD); HOUSE OF REPRESENTATIVES

Medicare/Medicaid MMM

Medicaid home and community-based services, Medicaid funding, 2025 Budget Resolution, durable medical equipment, Pediatric Palliative Care Homes

Lobbyist	Covered position, as disclosed
SARAH BELLISH	—
MAYNARD FRIESZ	—

Contacted: Health & Human Services, Dept of (HHS); SENATE; HOUSE OF REPRESENTATIVES; Centers For Medicare and Medicaid Services (CMS)

Taxation/Internal Revenue Code TAX

ENABLE Act (H.R.1436/ S.627), Mobility Means Freedom Act (H.R.2320), Achieving a Better Life Experience (ABLE) Act (P.L. 113-295)

Lobbyist	Covered position, as disclosed
SARAH BELLISH	—
MAYNARD FRIESZ	—

Contacted: HOUSE OF REPRESENTATIVES; SENATE

Bills named: S. 627 (119th), H.R. 1436 (119th), H.R. 2320 (119th)

Transportation TRA

FAA Reauthorization Act of 2024 (P.L. 118-63); Air Carrier Access Act (P.L. 99-435), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs Final Rule, Transportation-HUD Appropriations bill

Lobbyist	Covered position, as disclosed
SARAH BELLISH	—
MAYNARD FRIESZ	—

Contacted: Transportation, Dept of (DOT); HOUSE OF REPRESENTATIVES; SENATE

Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.