3rd Quarter - Amendment — NATIONAL ORGANIZATION FOR RARE DISORDER… for NATIONAL ORGANIZATION FOR RARE DISORDER… (2017)

Firm

NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)

Client

NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)

Income

—

Expenses

—

No amount is shown when the filer reports less than $5,000 for the period, which the form does not ask them to state.

Versions of this report

Every filing the register holds for this firm, client and period, oldest first. The most recent one is the version LegiList counts.

Filing	Filed	Amount	Counted
3rd Quarter - Report	Oct 13, 2017	—	Replaced
3rd Quarter - Amendment (this page)	Jul 30, 2019	—	Yes

What was lobbied

One issue area, each in the filer's own words, with who lobbied on it and where.

Health Issues HCR

Healthcare reform. Healthcare Common Procedure Coding Systems for biosimilars. Medicare Part D. Medicare DOS policy. Graham-Cassidy amendment to H.R.1628. Better Care Reconciliation Act. Children's Health Insurance Program Reauthorization. Medical Nutrition Equity Act; H.R.2587, S.1194. FDA Reauthorization Act; H.R.2430. FDA Office of Patient Affairs. Orphan Drug Tax Credit. Right to Try Act; H.R.878, S.204. FDA Funding. NIH Funding. Zika Appropriations. Newborn Screening Appropriations.

Lobbyist	Covered position, as disclosed
PAUL MELMEYER	—
MARTHA L RINKER	—

Contacted: Food & Drug Administration (FDA); White House Office; Centers For Medicare and Medicaid Services (CMS); Natl Institutes of Health (NIH); Social Security Administration (SSA); HOUSE OF REPRESENTATIVES; SENATE; Health & Human Services, Dept of (HHS)

Bills named: H.R. 2587 (115th), H.R. 2430 (115th), H.R. 1628 (115th), S. 204 (115th), H.R. 878 (115th), S. 1194 (115th)

Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.