3rd Quarter - Report

NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD) for NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)

A later version of this report replaces this one, so LegiList's totals use the current version instead. This page shows this version exactly as filed.

Firm
Client
Income
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Expenses
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No amount is shown when the filer reports less than $5,000 for the period, which the form does not ask them to state.

Versions of this report

Every filing the register holds for this firm, client and period, oldest first. The most recent one is the version LegiList counts.

Filing Filed Amount Counted
3rd Quarter - Report (this page) Oct 13, 2017 — Replaced
3rd Quarter - Amendment Jul 30, 2019 — Yes

What was lobbied

One issue area, each in the filer's own words, with who lobbied on it and where.

Health Issues HCR

Healthcare reform Healthcare Common Procedure Coding Systems for biosimilars Medicare Part D Medicare DOS policy Graham-Cassidy amendment to H.R.1628 Better Care Reconciliation Act Children's Health Insurance Program Reauthorization Medical Nutrition Equity Act; H.R.2587, S.1194 FDA Reauthorization Act; H.R.2430 FDA Office of Patient Affairs Orphan Drug Tax Credit Right to Try Act; H.R.878, S.204 FDA Funding NIH Funding Zika Appropriations Newborn Screening Appropriations

LobbyistCovered position, as disclosed
PAUL MELMEYER —
MARTHA L RINKER Vice President of Public Policy

Contacted: Health & Human Services, Dept of (HHS); SENATE; HOUSE OF REPRESENTATIVES; Food & Drug Administration (FDA); Social Security Administration (SSA); Natl Institutes of Health (NIH); White House Office; Centers For Medicare and Medicaid Services (CMS)

Bills named: S. 1194 (115th), H.R. 2430 (115th), H.R. 1628 (115th), S. 204 (115th), H.R. 878 (115th), H.R. 2587 (115th)

Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.