Providing Realistic Opportunity To Equal and Comparable Treatment for Rare Act
Latest action · Dec 17, 2024 Referred to the Subcommittee on Health.
Progress
Where this bill reached, and when. A stage with no date was not reached; one that failed a vote and later carried shows the date it carried.
- IntroducedOct 26, 2023
- Passed HouseNot reached
- Passed SenateNot reached
- To the PresidentNot reached
- Became lawNot reached
Summary
Providing Realistic Opportunity To Equal and Comparable Treatment for Rare Act or the PROTECT Rare Act
This bill provides for coverage under the Medicare prescription drug benefit, Medicaid, and private health insurance of certain drugs that are used to treat rare diseases or conditions (i.e., diseases or conditions that affect 200,000 or fewer individuals). Such drugs must be supported by peer-reviewed research or medical experts and must not have been reviewed unfavorably in specified compendia or used in a way that conflicts with approved labels.
Cosponsors 26
Members who signed on, in the order they did. Signatures ran from Oct 26, 2023 to Sep 16, 2024; 3 are original cosponsors, there from the day it was introduced.
| Seat | Cosponsor | Signed on | |
|---|---|---|---|
| R-PA | Mike Kelly | Original | Oct 26, 2023 |
| D-CA | Mike Thompson | Original | Oct 26, 2023 |
| R-FL | Neal P. Dunn | Original | Oct 26, 2023 |
| D-MN | Dean Phillips | Nov 1, 2023 | |
| D-NM | Melanie A. Stansbury | Jan 5, 2024 | |
| R-FL | Gus M. Bilirakis | Jan 12, 2024 | |
| D-NJ | Mikie Sherrill | Jan 17, 2024 | |
| R-PA | Brian K. Fitzpatrick | Jan 29, 2024 | |
| D-DC | Eleanor Holmes Norton | Jan 29, 2024 | |
| D-TN | Steve Cohen | Feb 5, 2024 | |
| R-NE | Don Bacon | Feb 13, 2024 | |
| D-TX | Lizzie Fletcher | Feb 14, 2024 | |
| D-NC | Donald G. Davis | Feb 15, 2024 | |
| D-MA | Lori Trahan | Feb 28, 2024 | |
| R-IA | Mariannette Miller-Meeks | Feb 28, 2024 | |
| D-MI | Shri Thanedar | Feb 28, 2024 | |
| D-IL | Mike Quigley | Feb 29, 2024 | |
| R-TX | August Pfluger | Mar 5, 2024 | |
| D-NJ | Josh Gottheimer | Mar 5, 2024 | |
| D-CA | Salud O. Carbajal | Mar 6, 2024 | |
| D-MD | David J. Trone | Mar 19, 2024 | |
| D-NY | Paul Tonko | May 14, 2024 | |
| D-CO | Joe Neguse | May 16, 2024 | |
| R-NC | Richard Hudson | May 16, 2024 | |
| D-MA | Jake Auchincloss | Sep 6, 2024 | |
| D-FL | Sheila Cherfilus-McCormick | Sep 16, 2024 |
Committees 2
Where it was sent and what each committee and subcommittee did with it, in order.
| Chamber | Committee | What it did |
|---|---|---|
| House | Energy and Commerce Committee | Referred Oct 26, 2023 |
| Health Subcommittee | Referred Nov 3, 2023 | |
| House | Ways and Means Committee | Referred Oct 26, 2023 |
| Health Subcommittee | Referred Dec 17, 2024 |
Actions 4
Everything that happened, newest first.
- Dec 17, 2024Referred to the Subcommittee on Health.
- Nov 3, 2023Referred to the Subcommittee on Health.
- Oct 26, 2023Introduced in House
- Oct 26, 2023Referred to the Committee on Energy and Commerce, and in addition to the Committee on Ways and Means, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.
Research
What has been written about this bill: committee reports, cost estimates, the sponsor’s authority statement, printed hearings and the Congressional Research Service’s work.
Constitutional authority
The sponsor’s statement, as printed in the Congressional Record, vol. 169, no. 177, October 26, 2023, page H5176.
Titles 2
Every title it has carried, official and short, at each stage.
- Official Title as Introduced
- To amend titles XVIII and XIX of the Social Security Act and title XXVII of the Public Health Service Act to refine the set of information sources for determining coverage of certain drugs and biologicals used in the treatment or management of a rare disease or condition, and for other purposes.
- Short Title(s) as Introduced
- Providing Realistic Opportunity To Equal and Comparable Treatment for Rare Act
Subjects
Assigned by the Library of Congress. Policy area: Health.
Text 1
Each version as it was printed, newest first.
- Oct 26, 2023Introduced in House
Everything here is as published by Congress: the summary is the Congressional Research Service's, the action wording is the clerks', and the subjects are the Library of Congress's. How far it got is read from the actions themselves, taking the most recent one of each kind, so a bill that failed a vote and later passed is shown as having passed. Records come from this bill on Congress.gov and govinfo.gov; cost estimates are the Congressional Budget Office's, and the hearings are the printed hearings GovInfo publishes, which can appear months after the hearing.
