Ending the Diagnostic Odyssey Act of 2019
Latest action · Aug 5, 2019 Referred to the Subcommittee on Health.
Progress
Where this bill reached, and when. A stage with no date was not reached; one that failed a vote and later carried shows the date it carried.
- IntroducedAug 2, 2019
- Passed HouseNot reached
- Passed SenateNot reached
- To the PresidentNot reached
- Became lawNot reached
Summary
Ending the Diagnostic Odyssey Act of 2019
This bill allows state Medicaid programs to cover whole genome sequencing services for certain individuals.
Specifically, states may cover such services for individuals under the age of 21 (or a lower age, if the state chooses) and for former foster youth under the age of 26 who (1) have been referred or admitted to an intensive care unit or seen by a medical specialist for a suspected genetic or undiagnosed disease, or (2) are suspected by a medical specialist to have a neonatal- or pediatric-onset genetic disease.
The Centers for Medicare & Medicaid Services may award grants to assist states in developing plans to cover such services.
Cosponsors 20
Members who signed on, in the order they did. Signatures ran from Aug 2, 2019 to Nov 2, 2020; 2 are original cosponsors, there from the day it was introduced.
| Seat | Cosponsor | Signed on | |
|---|---|---|---|
| R-IL | John Shimkus | Original | Aug 2, 2019 |
| D-CA | Juan Vargas | Original | Aug 2, 2019 |
| R-PA | Brian K. Fitzpatrick | Aug 16, 2019 | |
| D-CA | Harley Rouda | Sep 26, 2019 | |
| D-NY | Antonio Delgado | Oct 15, 2019 | |
| R-MO | Billy Long | Oct 28, 2019 | |
| D-CA | Susan A. Davis | Oct 28, 2019 | |
| D-FL | Darren Soto | Oct 29, 2019 | |
| D-CA | Tony Cárdenas | Nov 8, 2019 | |
| R-FL | Gus M. Bilirakis | Nov 26, 2019 | |
| D-CA | J. Luis Correa | Dec 3, 2019 | |
| D-DC | Eleanor Holmes Norton | Jan 28, 2020 | |
| D-CA | Julia Brownley | Jan 29, 2020 | |
| D-CA | Ami Bera | Feb 21, 2020 | |
| D-PA | Chrissy Houlahan | Feb 21, 2020 | |
| D-MI | Haley M. Stevens | Feb 21, 2020 | |
| D-CA | Raul Ruiz | Feb 25, 2020 | |
| D-CA | Pete Aguilar | May 15, 2020 | |
| D-PA | Madeleine Dean | Jul 24, 2020 | |
| D-CA | Josh Harder | Nov 2, 2020 |
Committees 1
Where it was sent and what each committee and subcommittee did with it, in order.
| Chamber | Committee | What it did |
|---|---|---|
| House | Energy and Commerce Committee | Referred Aug 2, 2019 |
| Health Subcommittee | Referred Aug 5, 2019 |
Actions 3
Everything that happened, newest first.
- Aug 5, 2019Referred to the Subcommittee on Health.
- Aug 2, 2019Introduced in House
- Aug 2, 2019Referred to the House Committee on Energy and Commerce.
Research
What has been written about this bill: committee reports, cost estimates, the sponsor’s authority statement, printed hearings and the Congressional Research Service’s work.
Constitutional authority
The sponsor’s statement, as printed in the Congressional Record, vol. 165, no. 132, August 2, 2019, page H7489.
Related bills 1
Companion bills and other measures the record links to this one.
| Bill | Title | Relationship | Latest action |
|---|---|---|---|
| S 3116 | Ending the Diagnostic Odyssey Act of 2019 | Related bill | Dec 19, 2019 |
Titles 2
Every title it has carried, official and short, at each stage.
- Official Title as Introduced
- To enable States to better provide access to whole genome sequencing clinical services for certain undiagnosed children under the Medicaid program, and for other purposes.
- Short Title(s) as Introduced
- Ending the Diagnostic Odyssey Act of 2019
Subjects
Assigned by the Library of Congress. Policy area: Health.
- Adoption and foster care
- Cell biology and embryology
- Child health
- Emergency medical services and trauma care
- Genetics
- Health
- Health care costs and insurance
- Health care coverage and access
- Health care quality
- Health programs administration and funding
- Health technology, devices, supplies
- Hospital care
- Medicaid
- Medical tests and diagnostic methods
- State and local government operations
Text 1
Each version as it was printed, newest first.
- Aug 2, 2019Introduced in House
Everything here is as published by Congress: the summary is the Congressional Research Service's, the action wording is the clerks', and the subjects are the Library of Congress's. How far it got is read from the actions themselves, taking the most recent one of each kind, so a bill that failed a vote and later passed is shown as having passed. Records come from this bill on Congress.gov and govinfo.gov; cost estimates are the Congressional Budget Office's, and the hearings are the printed hearings GovInfo publishes, which can appear months after the hearing.
