North Carolina House bill in Session 2025.
Status: in_committee. Latest action: March 27, 2025.
Reorganize & Fund Rare Disease Adv. Council.
Amends Taylor’s Law, Establishing the Advisory Council on Rare Diseases, as follows. Amends GS 130A-33.65 by changing the location of the Advisory Council from within the UNC-Chapel Hill School of Medicine to the Department of Health and Human Services (DHHS). Changes the number of the Advisory Council to 19 members and removes the appointing authority of the Dean of the School of Medicine at UNC-Chapel Hill. Instead, allows the DHHS Secretary to appoint 15 members in line with the qualifications listed in the statute.
| Date | Event | Detail |
|---|---|---|
| 2025-03-26 | Introduced | Bill introduced |
| 2025-03-27 | Status | in_committee |
| 2025-03-27 | Latest Action | Ref to the Com on Appropriations, if favorable, Rules, Calendar, and Operations of the House |