BATTEN DISEASE AWARENESS DAY
- Introduced May 23, 2025
- In committee May 27, 2025
- Adopted by the House Next
What it does
The legislature's own summary of the bill, or its official long title.
Declares June 9, 2025 as Batten Disease Awareness Day in the State of Illinois in order to recognize and bring awareness to the rare disease population, including those living with Batten disease in Illinois, and to recognize the heroic and tireless efforts of Dr. Elizabeth Berry-Kravis and her esteemed colleagues at Rush University Medical Center as they attempt to save children afflicted with Batten disease by…
Read the full title (119 words)
Declares June 9, 2025 as Batten Disease Awareness Day in the State of Illinois in order to recognize and bring awareness to the rare disease population, including those living with Batten disease in Illinois, and to recognize the heroic and tireless efforts of Dr. Elizabeth Berry-Kravis and her esteemed colleagues at Rush University Medical Center as they attempt to save children afflicted with Batten disease by searching for treatments and a cure. Commends Charlie Sims for advancing the scientific development of treatments for Batten disease for children everywhere, his family and friends for valiantly facing the difficulties of Batten disease, and the ongoing efforts of Team Charlie in their continued work of finding hope, giving love, and being good.
Every action
2 steps, oldest first, as the legislature records them.
- HouseFiled with the Clerk by Rep. Janet Yang Rohr
- CommitteeReferred to Rules Committee · House Rules
Roll calls
No recorded votes on this bill yet.
Sponsors
The member who introduced it.
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Janet Yang RohrD Primary sponsor · District 41
From Illinois's official records (www.ilga.gov), checked Nov 13, 2026. Text links go to the official versions; LegiList does not copy bill text.