RARE DISEASE DAY

What it does

The legislature's own summary of the bill, or its official long title.

Declares March 5, 2025 as Rare Disease Day in the State of Illinois in order to raise awareness of rare diseases, support individuals and families who struggle with rare diseases, bring attention to the need for research and funding to support the discovery and development of therapies designed to treat and potentially cure rare diseases, and support the continued work of the Illinois Rare Disease Commission.

Every action

9 steps, oldest first, as the legislature records them.

1. Feb 24, 2025HouseFiled with the Clerk by Rep. Sonya M. Harper
2. Feb 25, 2025CommitteeReferred to Rules Committee · House Rules
3. Apr 22, 2025CommitteeAssigned to Public Health Committee · House Public Health
4. May 1, 2025CommitteeRecommends Be Adopted Public Health Committee; 009-000-000 · House Public Health
5. May 1, 2025HousePlaced on Calendar Order of Resolutions
6. May 31, 2025HouseAdded Co-Sponsor Rep. Patrick Sheehan
7. May 31, 2025HouseAdded Co-Sponsor Rep. William E Hauter
8. May 31, 2025HouseAdded Co-Sponsor Rep. Jason R. Bunting
9. May 31, 2025HouseResolution Adopted

Roll calls

1 recorded vote: 0 on the floor, 1 in committee. Each shows how every member voted.

Committee votes

Sponsors

The member who introduced it, joined by 3 cosponsors: 3 Republicans.

• Sonya M. HarperD Primary sponsor · District 6