Illinois · House Bill 3494 · 104th General Assembly

HEALTH DATA PRIVACY ACT

HB 3494 Sponsored by Mary Beth Canty In committee

  1. Introduced Feb 7, 2025
  2. In committee Feb 18, 2025
  3. Passed the House Next
  4. Passed the Senate  
  5. To the governor  
  6. Became law  

What it does

The legislature's own summary of the bill, or its official long title.

Creates the Protect Health Data Privacy Act. Provides that a regulated entity shall disclose and maintain a health data privacy policy that clearly and conspicuously discloses specified information. Sets forth provisions concerning health data privacy policies. Provides that a regulated entity shall not collect, share, or store health data, except in specified circumstances. Provides that it is unlawful for any…

Read the full title (351 words)

Creates the Protect Health Data Privacy Act. Provides that a regulated entity shall disclose and maintain a health data privacy policy that clearly and conspicuously discloses specified information. Sets forth provisions concerning health data privacy policies. Provides that a regulated entity shall not collect, share, or store health data, except in specified circumstances. Provides that it is unlawful for any person to sell or offer to sell health data concerning an individual without first obtaining valid authorization from the individual. Provides that a valid authorization to sell individual health data must contain specified information; a copy of the signed valid authorization must be provided to the individual; and the seller and purchaser of health data must retain a copy of all valid authorizations for sale of health data for 6 years after the date of its signature or the date when it was last in effect, whichever is later. Sets forth provisions concerning the consent required for collection, sharing, and storage of health data. Provides that an individual has the right to withdraw consent from the processing of the individual's health data. Provides that it is unlawful for a regulated entity to engage in discriminatory practices against individuals solely because they have not provided consent to the processing of their health data or have exercised any other rights provided by the provisions or guaranteed by law. Sets forth provisions concerning an individual's right to confirm whether a regulated entity is collecting, selling, sharing, or storing any of the individual's health data; an individual's right to have the individual's health data that is collected by a regulated entity deleted; prohibitions regarding geofencing; and individual health data security. Provides that any person aggrieved by a violation of the provisions shall have a right of action in a State circuit court or as a supplemental claim in federal district court against an offending party. Provides that the Attorney General may enforce a violation of the provisions as an unlawful practice under the Consumer Fraud and Deceptive Business Practices Act. Defines terms. Makes a conforming change in the Consumer Fraud and Deceptive Business Practices Act.

Every action

52 steps, oldest first, as the legislature records them.

Show the 44 earlier steps
  1. HouseFiled with the Clerk by Rep. Ann M. Williams
  2. HouseFirst Reading
  3. CommitteeReferred to Rules Committee · House Rules
  4. CommitteeAssigned to Judiciary - Civil Committee · House Judiciary - Civil
  5. CommitteeDo Pass / Short Debate Judiciary - Civil Committee; 013-007-000 · House Judiciary - Civil
  6. HousePlaced on Calendar 2nd Reading - Short Debate
  7. HouseAdded Co-Sponsor Rep. Anne Stava
  8. HouseAdded Co-Sponsor Rep. Kelly M. Cassidy
  9. HouseSecond Reading - Short Debate
  10. HouseHeld on Calendar Order of Second Reading - Short Debate
  11. HouseAdded Co-Sponsor Rep. Barbara Hernandez
  12. HouseAdded Co-Sponsor Rep. Camille Y. Lilly
  13. CommitteeRule 19(a) / Re-referred to Rules Committee · House Rules
  14. HouseChief Sponsor Changed to Rep. Mary Beth Canty
  15. CommitteeApproved for Consideration Rules Committee; 003-002-000 · House Rules
  16. HousePlaced on Calendar 2nd Reading - Short Debate
  17. HouseAdded Co-Sponsor Rep. Kam Buckner
  18. HouseAdded Co-Sponsor Rep. Tracy Katz Muhl
  19. HouseAdded Co-Sponsor Rep. Maura Hirschauer
  20. HouseAdded Co-Sponsor Rep. Will Guzzardi
  21. HouseAdded Co-Sponsor Rep. Theresa Mah
  22. HouseAdded Co-Sponsor Rep. Janet Yang Rohr
  23. HouseAdded Co-Sponsor Rep. Margaret Croke
  24. HouseAdded Chief Co-Sponsor Rep. Maurice A. West, II
  25. HouseAdded Chief Co-Sponsor Rep. Ann M. Williams
  26. HouseRemove Chief Co-Sponsor Rep. Ann M. Williams
  27. HouseAdded Chief Co-Sponsor Rep. Ann M. Williams
  28. HouseRemove Chief Co-Sponsor Rep. Maurice A. West, II
  29. HouseAdded Co-Sponsor Rep. Nabeela Syed
  30. HouseAdded Co-Sponsor Rep. Lilian Jiménez
  31. HouseAdded Co-Sponsor Rep. Dagmara Avelar
  32. HouseAdded Co-Sponsor Rep. Kevin John Olickal
  33. HouseAdded Co-Sponsor Rep. Anna Moeller
  34. HouseAdded Co-Sponsor Rep. Laura Faver Dias
  35. HouseAdded Co-Sponsor Rep. Katie Stuart
  36. HouseAdded Co-Sponsor Rep. Marcus C. Evans, Jr.
  37. HouseAdded Co-Sponsor Rep. Rita Mayfield
  38. HouseAdded Co-Sponsor Rep. Diane Blair-Sherlock
  39. HouseAdded Co-Sponsor Rep. Jennifer Gong-Gershowitz
  40. HouseAdded Co-Sponsor Rep. Robyn Gabel
  41. HouseAdded Co-Sponsor Rep. Aarón M. Ortíz
  42. CommitteeRule 19(a) / Re-referred to Rules Committee · House Rules
  43. HouseAdded Co-Sponsor Rep. Lisa Davis
  44. HouseAdded Co-Sponsor Rep. Michael Crawford
  1. HouseAdded Co-Sponsor Rep. Justin Cochran
  2. HouseAdded Co-Sponsor Rep. Justin Slaughter
  3. HouseAdded Co-Sponsor Rep. Norma Hernandez
  4. HouseAdded Co-Sponsor Rep. Jay Hoffman
  5. HouseAdded Co-Sponsor Rep. Elizabeth "Lisa" Hernandez
  6. HouseAdded Co-Sponsor Rep. Stephanie A. Kifowit
  7. HouseAdded Co-Sponsor Rep. Nicolle Grasse
  8. HouseAdded Co-Sponsor Rep. Daniel Didech

Roll calls

1 recorded vote: 0 on the floor, 1 in committee. Each shows how every member voted.

Committee votes

DateWhereQuestionResult
Mar 19, 2025 House Judiciary - Civil Judiciary - Civil - Do Pass
Members

Yes · 13

No · 7

 Passed 13–7

Sponsors

The member who introduced it, joined by 35 cosponsors: 35 Democrats.

All 35 cosponsors

From Illinois's official records (www.ilga.gov), checked Nov 13, 2026. Text links go to the official versions; LegiList does not copy bill text.