RARE DISEASE DAY
- Introduced Jan 26, 2024
- In committee Jan 26, 2024
- Adopted by the Senate Mar 6, 2024
What it does
The legislature's own summary of the bill, or its official long title.
Declares March 6, 2024 as Rare Disease Day in the State of Illinois in order to raise awareness of rare diseases, support individuals and families who struggle with rare diseases, bring attention to the need for research and funding to support the discovery and development of therapies designed to treat and potentially cure rare diseases, and support the continued work of the Illinois Rare Disease Commission.
Every action
6 steps, oldest first, as the legislature records them.
- SenateFiled with Secretary
- CommitteeReferred to Assignments · Senate Assignments
- CommitteeAssigned to Public Health · Senate Public Health
- CommitteeBe Adopted Public Health; 007-000-000 · Senate Public Health
- SenatePlaced on Calendar Order of Secretary's Desk Resolutions February 22, 2024
- SenateResolution Adopted
Roll calls
1 recorded vote: 0 on the floor, 1 in committee. Each shows how every member voted.
Committee votes
| Date | Where | Question | Result |
|---|---|---|---|
| Feb 20, 2024 | Senate Public Health | Public Health - Be Adopted MembersYes · 7
Not voting · 1 |
7–0 |
Sponsors
The member who introduced it.
-
Adriane L. JohnsonD Primary sponsor · District 30
From Illinois's official records (www.ilga.gov), checked Nov 2, 2026. Text links go to the official versions; LegiList does not copy bill text.