RARE DISEASE DAY
- Introduced Mar 12, 2024
- In committee Mar 13, 2024
- Adopted by the House May 23, 2024
What it does
The legislature's own summary of the bill, or its official long title.
Declares March 6, 2024 as Rare Disease Day in the State of Illinois in order to raise awareness of rare diseases, support individuals and families who struggle with rare diseases, bring attention to the need for research and funding to support the discovery and development of therapies designed to treat and potentially cure rare diseases, and support the continued work of the Illinois Rare Disease Commission.
Every action
9 steps, oldest first, as the legislature records them.
- HouseFiled with the Clerk by Rep. Sonya M. Harper
- CommitteeReferred to Rules Committee · House Rules
- CommitteeAssigned to Public Health Committee · House Public Health
- CommitteeRecommends Be Adopted Public Health Committee; 008-000-000 · House Public Health
- HousePlaced on Calendar Order of Resolutions
- HouseResolution Adopted
- HouseAdded Co-Sponsor Rep. Joyce Mason
- HouseAdded Co-Sponsor Rep. Sharon Chung
- HouseAdded Co-Sponsor Rep. Janet Yang Rohr
Roll calls
1 recorded vote: 0 on the floor, 1 in committee. Each shows how every member voted.
Committee votes
| Date | Where | Question | Result |
|---|---|---|---|
| May 2, 2024 | House Public Health | Public Health - Recommends Be Adopted MembersYes · 8
Not voting · 1 |
Passed 8–0 |
Sponsors
The member who introduced it, joined by 3 cosponsors: 3 Democrats.
-
Sonya M. HarperD Primary sponsor · District 6
All 3 cosponsors
From Illinois's official records (www.ilga.gov), checked Nov 2, 2026. Text links go to the official versions; LegiList does not copy bill text.