Illinois · House Bill 4093 · 103rd General Assembly

HEALTH DATA PRIVACY ACT

  1. Introduced May 16, 2023
  2. In committee May 16, 2023
  3. Died  
  4. Passed the Senate  
  5. To the governor  
  6. Became law  

What it does

The legislature's own summary of the bill, or its official long title.

Creates the Protect Health Data Privacy Act. Provides that a regulated entity shall disclose and maintain a health data privacy policy that clearly and conspicuously discloses specified information. Sets forth provisions concerning health data privacy policies. Provides that a regulated entity shall not collect, share, or store health data, except in specified circumstances. Provides that it is unlawful for any…

Read the full title (359 words)

Creates the Protect Health Data Privacy Act. Provides that a regulated entity shall disclose and maintain a health data privacy policy that clearly and conspicuously discloses specified information. Sets forth provisions concerning health data privacy policies. Provides that a regulated entity shall not collect, share, or store health data, except in specified circumstances. Provides that it is unlawful for any person to sell or offer to sell health data concerning a consumer without first obtaining valid authorization from the consumer. Provides that a valid authorization to sell consumer health data must contain specified information; a copy of the signed valid authorization must be provided to the consumer; and the seller and purchaser of health data must retain a copy of all valid authorizations for sale of health data for 6 years after the date of its signature or the date when it was last in effect, whichever is later. Sets forth provisions concerning the consent required for collection, sharing, and storage of health data. Provides that a consumer has the right to withdraw consent from the collection, sharing, sale, or storage of the consumer's health data. Provides that it is unlawful for a regulated entity to engage in discriminatory practices against consumers solely because they have not provided consent to the collection, sharing, sale, or storage of their health data or have exercised any other rights provided by the provisions or guaranteed by law. Sets forth provisions concerning a consumer's right to confirm whether a regulated entity is collecting, selling, sharing, or storing any of the consumer's health data; a consumer's right to have the consumer's health data that is collected by a regulated entity deleted; prohibitions regarding geofencing; and consumer health data security. Provides that any person aggrieved by a violation of the provisions shall have a right of action in a State circuit court or as a supplemental claim in federal district court against an offending party. Provides that the Attorney General may enforce a violation of the provisions as an unlawful practice under the Consumer Fraud and Deceptive Business Practices Act. Defines terms. Makes a conforming change in the Consumer Fraud and Deceptive Business Practices Act.

Every action

28 steps, oldest first, as the legislature records them.

Show the 20 earlier steps
  1. HouseFiled with the Clerk by Rep. Ann M. Williams
  2. HouseFirst Reading
  3. CommitteeReferred to Rules Committee · House Rules
  4. HouseAdded Co-Sponsor Rep. Katie Stuart
  5. HouseAdded Co-Sponsor Rep. Jennifer Gong-Gershowitz
  6. HouseAdded Co-Sponsor Rep. Theresa Mah
  7. HouseAdded Co-Sponsor Rep. Dagmara Avelar
  8. HouseAdded Co-Sponsor Rep. Rita Mayfield
  9. HouseAdded Co-Sponsor Rep. Anne Stava-Murray
  10. HouseAdded Co-Sponsor Rep. Lindsey LaPointe
  11. HouseAdded Co-Sponsor Rep. Eva-Dina Delgado
  12. HouseAdded Co-Sponsor Rep. Maura Hirschauer
  13. HouseAdded Co-Sponsor Rep. Kelly M. Cassidy
  14. HouseAdded Co-Sponsor Rep. Janet Yang Rohr
  15. HouseAdded Co-Sponsor Rep. Abdelnasser Rashid
  16. CommitteeAssigned to Judiciary - Civil Committee · House Judiciary - Civil
  17. HouseAdded Co-Sponsor Rep. Norma Hernandez
  18. HouseAdded Co-Sponsor Rep. Lilian Jiménez
  19. CommitteeDo Pass / Short Debate Judiciary - Civil Committee; 010-003-000 · House Judiciary - Civil
  20. HousePlaced on Calendar 2nd Reading - Short Debate
  1. HouseAdded Co-Sponsor Rep. Diane Blair-Sherlock
  2. HouseAdded Co-Sponsor Rep. Nabeela Syed
  3. HouseAdded Co-Sponsor Rep. Robert "Bob" Rita
  4. HouseSecond Reading - Short Debate
  5. HouseHeld on Calendar Order of Second Reading - Short Debate
  6. HouseAdded Co-Sponsor Rep. Kevin John Olickal
  7. CommitteeRule 19(a) / Re-referred to Rules Committee · House Rules
  8. HouseSession Sine Die

Roll calls

1 recorded vote: 0 on the floor, 1 in committee. Each shows how every member voted.

Committee votes

DateWhereQuestionResult
Apr 3, 2024 House Judiciary - Civil Judiciary - Civil - Do Pass
Members

Yes · 10

No · 3

Not voting · 2

Passed 10–3

Sponsors

The member who introduced it, joined by 18 cosponsors: 18 Democrats.

All 18 cosponsors

From Illinois's official records (www.ilga.gov), checked Nov 13, 2026. Text links go to the official versions; LegiList does not copy bill text.