HEALTH DATA PRIVACY ACT
- Introduced May 16, 2023
- In committee May 16, 2023
- Died
- Passed the Senate
- To the governor
- Became law
What it does
The legislature's own summary of the bill, or its official long title.
Creates the Protect Health Data Privacy Act. Provides that a regulated entity shall disclose and maintain a health data privacy policy that clearly and conspicuously discloses specified information. Sets forth provisions concerning health data privacy policies. Provides that a regulated entity shall not collect, share, or store health data, except in specified circumstances. Provides that it is unlawful for any…
Read the full title (359 words)
Creates the Protect Health Data Privacy Act. Provides that a regulated entity shall disclose and maintain a health data privacy policy that clearly and conspicuously discloses specified information. Sets forth provisions concerning health data privacy policies. Provides that a regulated entity shall not collect, share, or store health data, except in specified circumstances. Provides that it is unlawful for any person to sell or offer to sell health data concerning a consumer without first obtaining valid authorization from the consumer. Provides that a valid authorization to sell consumer health data must contain specified information; a copy of the signed valid authorization must be provided to the consumer; and the seller and purchaser of health data must retain a copy of all valid authorizations for sale of health data for 6 years after the date of its signature or the date when it was last in effect, whichever is later. Sets forth provisions concerning the consent required for collection, sharing, and storage of health data. Provides that a consumer has the right to withdraw consent from the collection, sharing, sale, or storage of the consumer's health data. Provides that it is unlawful for a regulated entity to engage in discriminatory practices against consumers solely because they have not provided consent to the collection, sharing, sale, or storage of their health data or have exercised any other rights provided by the provisions or guaranteed by law. Sets forth provisions concerning a consumer's right to confirm whether a regulated entity is collecting, selling, sharing, or storing any of the consumer's health data; a consumer's right to have the consumer's health data that is collected by a regulated entity deleted; prohibitions regarding geofencing; and consumer health data security. Provides that any person aggrieved by a violation of the provisions shall have a right of action in a State circuit court or as a supplemental claim in federal district court against an offending party. Provides that the Attorney General may enforce a violation of the provisions as an unlawful practice under the Consumer Fraud and Deceptive Business Practices Act. Defines terms. Makes a conforming change in the Consumer Fraud and Deceptive Business Practices Act.
Every action
28 steps, oldest first, as the legislature records them.
Show the 20 earlier steps
- HouseFiled with the Clerk by Rep. Ann M. Williams
- HouseFirst Reading
- CommitteeReferred to Rules Committee · House Rules
- HouseAdded Co-Sponsor Rep. Katie Stuart
- HouseAdded Co-Sponsor Rep. Jennifer Gong-Gershowitz
- HouseAdded Co-Sponsor Rep. Theresa Mah
- HouseAdded Co-Sponsor Rep. Dagmara Avelar
- HouseAdded Co-Sponsor Rep. Rita Mayfield
- HouseAdded Co-Sponsor Rep. Anne Stava-Murray
- HouseAdded Co-Sponsor Rep. Lindsey LaPointe
- HouseAdded Co-Sponsor Rep. Eva-Dina Delgado
- HouseAdded Co-Sponsor Rep. Maura Hirschauer
- HouseAdded Co-Sponsor Rep. Kelly M. Cassidy
- HouseAdded Co-Sponsor Rep. Janet Yang Rohr
- HouseAdded Co-Sponsor Rep. Abdelnasser Rashid
- CommitteeAssigned to Judiciary - Civil Committee · House Judiciary - Civil
- HouseAdded Co-Sponsor Rep. Norma Hernandez
- HouseAdded Co-Sponsor Rep. Lilian Jiménez
- CommitteeDo Pass / Short Debate Judiciary - Civil Committee; 010-003-000 · House Judiciary - Civil
- HousePlaced on Calendar 2nd Reading - Short Debate
- HouseAdded Co-Sponsor Rep. Diane Blair-Sherlock
- HouseAdded Co-Sponsor Rep. Nabeela Syed
- HouseAdded Co-Sponsor Rep. Robert "Bob" Rita
- HouseSecond Reading - Short Debate
- HouseHeld on Calendar Order of Second Reading - Short Debate
- HouseAdded Co-Sponsor Rep. Kevin John Olickal
- CommitteeRule 19(a) / Re-referred to Rules Committee · House Rules
- HouseSession Sine Die
Roll calls
1 recorded vote: 0 on the floor, 1 in committee. Each shows how every member voted.
Committee votes
| Date | Where | Question | Result |
|---|---|---|---|
| Apr 3, 2024 | House Judiciary - Civil | Judiciary - Civil - Do Pass | Passed 10–3 |
Sponsors
The member who introduced it, joined by 18 cosponsors: 18 Democrats.
-
Ann M. WilliamsD Primary sponsor · District 11
All 18 cosponsors
- Abdelnasser RashidD
- Anne Stava-MurrayD
- Dagmara AvelarD
- Diane Blair-SherlockD
- Eva-Dina DelgadoD
- Janet Yang RohrD
- Jennifer Gong-GershowitzD
- Katie StuartD
- Kelly M. CassidyD
- Kevin John OlickalD
- Lilian JiménezD
- Lindsey LaPointeD
- Maura HirschauerD
- Nabeela SyedD
- Norma HernandezD
- Rita MayfieldD
- Robert "Bob" RitaD
- Theresa MahD
From Illinois's official records (www.ilga.gov), checked Nov 13, 2026. Text links go to the official versions; LegiList does not copy bill text.