AN ACT TO AMEND TITLE 16 OF THE DELAWARE CODE RELATING TO A PARKINSON'S DISEASE REGISTRY.
- Introduced Oct 30, 2026
- In committee Oct 30, 2026
- Passed the Senate Next
- Passed the House
- To the governor
- Became law
What it does
The legislature's own summary of the bill, or its official long title.
This Act establishes a statewide registry for Parkinson's disease and Parkinsonisms under the regulatory oversight of the Department of Health and Social Services, with operational responsibilities delegated to a partnership between the University of Delaware and the Delaware Health Information Network. To minimize administrative burdens on providers and leverage existing infrastructure, the Act mandates that…
Read the full title (126 words)
This Act establishes a statewide registry for Parkinson's disease and Parkinsonisms under the regulatory oversight of the Department of Health and Social Services, with operational responsibilities delegated to a partnership between the University of Delaware and the Delaware Health Information Network. To minimize administrative burdens on providers and leverage existing infrastructure, the Act mandates that healthcare practitioners, facilities, and clinical laboratories report occurrences of these conditions within 180 days of initial diagnosis or treatment. Furthermore, the legislation establishes strict data confidentiality protections, authorizes the sharing of de-identified data for qualified scientific research, requires an annual report to the General Assembly beginning January 1, 2029, and provides an enforcement mechanism through the Department for persistent noncompliance, which is a fine of $100 per day for each violation.
Every action
1 step, oldest first, as the legislature records them.
- CommitteeIntroduced and Assigned to Executive Committee in Senate · Senate Executive
Roll calls
No recorded votes on this bill yet.
Sponsors
The member who introduced it.
- RS Ray SeigfriedD Primary sponsor · District 5
From Delaware's official records (legis.delaware.gov), checked Nov 1, 2026. Text links go to the official versions; LegiList does not copy bill text.