MUSCULAR DYSTROPHY ASSOCIATION, INC. for MUSCULAR DYSTROPHY ASSOCIATION, INC.
What was lobbied
9 issue areas, each in the filer's own words, with who lobbied on it and where.
Health Issues HCR
Advocated for the protection of the Medicaid program to the White House and Congress Supported CMSs efforts to cover seat elevation systems Supported enhanced funding for NCATS Supported the nomination of Duchenne muscular dystrophy in front of HRSAs ACHDNC Supported the Protecting Healthcare for All Patients Act Worked on the introduction of the ALS Better Care Act Supported the introduction of legislation that increases access to genetic testing and genetic counselors Supported the Right Drug, Right Dose Act Supported robust appropriations for the newborn screening program. Filed comments with CMS on their proposed drug pricing negotiations framework Supported efforts to strengthen anti-discrimination provisions in rulemaking within healthcare settings Supported funding of ALS research, expanded access, and more Advocated for the passage of the RARE ACT Provided comments to the FDA on their draft guidance on externally-controlled clinical trials. Advocated for provisions addressing problems within the pharmacy benefit manager industry Urged CMS to tread carefully with the Medicaid unwinding Provided comments on healthcare affordability to key congressional committees Joined a letter on Medicare Part D redesign proposals Advocated for the elimination of junk plans to Congress and supported the Administrations proposal Endorsed the Telehealth Benefit Expansion for Workers Act Advocated for access to ACA plans for DACA recipients Supported the Medicare Orthotics & Prosthetics Patient-Centered Care Act Joined coalition comments supporting Intermittent Catheter Coding Reform Commented on the Medicaid Managed Care Rule Continued efforts to reintroduce the Newborn Screening Saves Lives Reauthorization Act
| Lobbyist | Covered position, as disclosed |
|---|---|
| JOEL CARTNER New | — |
| MICHAEL KENNALLY LEWIS New | — |
| PAUL MELMEYER | — |
Aviation/Airlines/Airports AVI
Supported accessible air travel reforms to be included in the FAA Reauthorization Supported the MOBILE Act, legislation to make air travel more accessible Supported the Air Carrier Access Amendments Act, legislation to make air travel more accessible Supported the EVAC Act, legislation to ensure evacuations of airplanes considers those with disabilities Supported accessibility provisions within the American Aviation Act of 2023
| Lobbyist | Covered position, as disclosed |
|---|---|
| JOEL CARTNER | — |
| MICHAEL KENNALLY LEWIS | — |
| PAUL MELMEYER | — |
Budget/Appropriations BUD
Supported enhanced funding for NCATS Supported robust appropriations for the newborn screening program. Supported funding of ALS research, expanded access, and more
| Lobbyist | Covered position, as disclosed |
|---|---|
| JOEL CARTNER New | — |
| MICHAEL KENNALLY LEWIS | — |
| PAUL MELMEYER | — |
Medical/Disease Research/Clinical Labs MED
Supported enhanced funding for NCATS Supported the nomination of Duchenne muscular dystrophy in front of HRSAs ACHDNC Worked on the introduction of the ALS Better Care Act Supported the introduction of legislation that increases access to genetic testing and genetic counselors Supported the Right Drug, Right Dose Act Supported robust appropriations for the newborn screening program. Supported funding of ALS research, expanded access, and more Advocated for the passage of the RARE ACT Provided comments to the FDA on their draft guidance on externally-controlled clinical trials. Supported the Medicare Orthotics & Prosthetics Patient-Centered Care Act Joined coalition comments supporting Intermittent Catheter Coding Reform Continued efforts to reintroduce the Newborn Screening Saves Lives Reauthorization Act
| Lobbyist | Covered position, as disclosed |
|---|---|
| JOEL CARTNER New | — |
| PAUL MELMEYER | — |
Medicare/Medicaid MMM
Advocated for the protection of the Medicaid program to the White House and Congress Supported CMSs efforts to cover seat elevation systems Supported the Protecting Healthcare for All Patients Act Worked on the introduction of the ALS Better Care Act Supported the introduction of legislation that increases access to genetic testing and genetic counselors Supported the Right Drug, Right Dose Act Filed comments with CMS on their proposed drug pricing negotiations framework Supported efforts to strengthen anti-discrimination provisions in rulemaking within healthcare settings Advocated for provisions addressing problems within the pharmacy benefit manager industry Urged CMS to tread carefully with the Medicaid unwinding Provided comments on healthcare affordability to key congressional committees Joined a letter on Medicare Part D redesign proposals Endorsed the Telehealth Benefit Expansion for Workers Act Supported the Medicare Orthotics & Prosthetics Patient-Centered Care Act Joined coalition comments supporting Intermittent Catheter Coding Reform Commented on the Medicaid Managed Care Rule
| Lobbyist | Covered position, as disclosed |
|---|---|
| JOEL CARTNER New | — |
| PAUL MELMEYER | — |
Insurance INS
Advocated for the protection of the Medicaid program to the White House and Congress Supported CMSs efforts to cover seat elevation systems Supported the Protecting Healthcare for All Patients Act Worked on the introduction of the ALS Better Care Act Supported the introduction of legislation that increases access to genetic testing and genetic counselors Supported the Right Drug, Right Dose Act Filed comments with CMS on their proposed drug pricing negotiations framework Supported efforts to strengthen anti-discrimination provisions in rulemaking within healthcare settings Advocated for provisions addressing problems within the pharmacy benefit manager industry Urged CMS to tread carefully with the Medicaid unwinding Provided comments on healthcare affordability to key congressional committees Joined a letter on Medicare Part D redesign proposals Advocated for the elimination of junk plans to Congress and supported the Administrations proposal Endorsed the Telehealth Benefit Expansion for Workers Act Advocated for access to ACA plans for DACA recipients Supported the Medicare Orthotics & Prosthetics Patient-Centered Care Act Joined coalition comments supporting Intermittent Catheter Coding Reform Commented on the Medicaid Managed Care Rule
| Lobbyist | Covered position, as disclosed |
|---|---|
| JOEL CARTNER New | — |
| PAUL MELMEYER | — |
Pharmacy PHA
Supported the Protecting Healthcare for All Patients Act Worked on the introduction of the ALS Better Care Act Supported the introduction of legislation that increases access to genetic testing and genetic counselors Supported the Right Drug, Right Dose Act Filed comments with CMS on their proposed drug pricing negotiations framework Supported efforts to strengthen anti-discrimination provisions in rulemaking within healthcare settings Supported funding of ALS research, expanded access, and more Advocated for provisions addressing problems within the pharmacy benefit manager industry Provided comments on healthcare affordability to key congressional committees Joined a letter on Medicare Part D redesign proposals Advocated for the elimination of junk plans to Congress and supported the Administrations proposal Supported the Medicare Orthotics & Prosthetics Patient-Centered Care Act Joined coalition comments supporting Intermittent Catheter Coding Reform Commented on the Medicaid Managed Care Rule
| Lobbyist | Covered position, as disclosed |
|---|---|
| JOEL CARTNER New | — |
| PAUL MELMEYER | — |
Transportation TRA
Supported accessible air travel reforms to be included in the FAA Reauthorization Supported the MOBILE Act, legislation to make air travel more accessible Supported the Air Carrier Access Amendments Act, legislation to make air travel more accessible Supported the EVAC Act, legislation to ensure evacuations of airplanes considers those with disabilities
| Lobbyist | Covered position, as disclosed |
|---|---|
| JOEL CARTNER | — |
| MICHAEL KENNALLY LEWIS | — |
| PAUL MELMEYER | — |
Education EDU
Advocated for appropriations for education programs that serve those with disabilities Opposed the More Teaching Less Testing Act Provided recommendations regarding EDs Proposed Priority and Requirements for Technical Assistance on State Data Collection via a new National Technical Assistance Center To Improve State Capacity To Collect, Report, Analyze, and Use Accurate IDEA Data To Address Significant Disproportionality (The Center)
| Lobbyist | Covered position, as disclosed |
|---|---|
| MICHAEL KENNALLY LEWIS | — |
Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.