NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD) for NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)
A later version of this report replaces this one, so LegiList's totals use the current version instead. This page shows this version exactly as filed.
No amount is shown when the filer reports less than $5,000 for the period, which the form does not ask them to state.
Versions of this report
Every filing the register holds for this firm, client and period, oldest first. The most recent one is the version LegiList counts.
| Filing | Filed | Amount | Counted |
|---|---|---|---|
| 1st Quarter - Report (this page) | Apr 10, 2014 | — | Replaced |
| 1st Quarter - Amendment | Jul 30, 2019 | — | Yes |
What was lobbied
One issue area, each in the filer's own words, with who lobbied on it and where.
Health Issues HCR
Patients' Access to Treatment (HR 460) FDA Safety Over Sequestration At (HR 2725/S 1413) Preserving Access to Orphan Drugs Act (S 1128/HR 2315) Medical Foods for Inborn Errors of Metabolism
| Lobbyist | Covered position, as disclosed |
|---|---|
| DIANE EDQUIST DORMAN | — |
| PAUL MELMEYER | — |
Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.