4th Quarter - Report

NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD) for NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)

A later version of this report replaces this one, so LegiList's totals use the current version instead. This page shows this version exactly as filed.

Firm
Client
Income
—
Expenses
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No amount is shown when the filer reports less than $5,000 for the period, which the form does not ask them to state.

Versions of this report

Every filing the register holds for this firm, client and period, oldest first. The most recent one is the version LegiList counts.

Filing Filed Amount Counted
4th Quarter - Report (this page) Jan 28, 2015 — Replaced
4th Quarter - Amendment Aug 1, 2016 — Replaced
4th Quarter - Amendment Aug 1, 2016 — Yes

What was lobbied

One issue area, each in the filer's own words, with who lobbied on it and where.

Health Issues HCR

Newborn Screening Saves Lives Reauthorization Act - H.R.1281 Andrea Sloan CURE Act - H.R.5805 ABLE Act - H.R.647 Patients' Access to Treatment- H.R.460

LobbyistCovered position, as disclosed
DIANE EDQUIST DORMAN —
PAUL MELMEYER —

Contacted: HOUSE OF REPRESENTATIVES; Food & Drug Administration (FDA); Social Security Administration (SSA); SENATE

Bills named: H.R. 460 (113th), H.R. 1281 (113th), H.R. 647 (113th), H.R. 5805 (113th)

Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.