1st Quarter - Report — MUSCULAR DYSTROPHY ASSOCIATION, INC. for MUSCULAR DYSTROPHY ASSOCIATION, INC. (2023)

Health Issues HCR

Advocated for the protection of the Medicaid program to the White House and Congress Provided viewpoints on the unaffordability of healthcare to the Ways and Means Committee Supported CMSs efforts to cover seat elevation systems Provided comments to CMS on their proposed rule on prior authorization Supported enhanced funding for NIAMS and NCATS Provided comments to CMS on Medicare Advantage Rule Supported the nomination of Duchenne muscular dystrophy in front of HRSAs ACHDNC Provided comments to CMS on low income subsidies for those in Medicare Supported the Protecting Healthcare for All Patients Act Provided comments to HHS on Benefit and Payment Parameters Worked on the introduction of the ALS Better Care Act Supported the introduction of legislation that increases access to genetic testing and genetic counselors Supported the Right Drug, Right Dose Act Supported robust appropriations for the newborn screening program.

Lobbyist	Covered position, as disclosed
JOEL CARTNER New	—
MICHAEL KENNALLY LEWIS New	—
PAUL MELMEYER	—

Contacted: Centers For Disease Control & Prevention (CDC); Health Resources & Services Administration (HRSA); Centers For Medicare and Medicaid Services (CMS); Natl Institutes of Health (NIH); Labor, Dept of (DOL); Food & Drug Administration (FDA); SENATE; Health & Human Services, Dept of (HHS); HOUSE OF REPRESENTATIVES

Aviation/Airlines/Airports AVI

Supported accessible air travel reforms to be included in the FAA Reauthorization Supported the MOBILE Act, legislation to make air travel more accessible Supported the Air Carrier Access Amendments Act, legislation to make air travel more accessible Supported the EVAC Act, legislation to ensure evacuations of airplanes considers those with disabilities

Lobbyist	Covered position, as disclosed
MICHAEL KENNALLY LEWIS	—
PAUL MELMEYER	—

Contacted: Federal Aviation Administration (FAA); HOUSE OF REPRESENTATIVES; Transportation, Dept of (DOT); SENATE

Budget/Appropriations BUD

Sent a coalition letter to Congress supporting SSA Funding Supported enhanced funding for NIAMS and NCATS Supported robust appropriations for the newborn screening program.

Lobbyist	Covered position, as disclosed
JOEL CARTNER New	—
MICHAEL KENNALLY LEWIS	—
PAUL MELMEYER	—

Contacted: HOUSE OF REPRESENTATIVES; Social Security Administration (SSA); SENATE; Health Resources & Services Administration (HRSA); Food & Drug Administration (FDA); Centers For Disease Control & Prevention (CDC); Health & Human Services, Dept of (HHS); Natl Institutes of Health (NIH)

Medical/Disease Research/Clinical Labs MED

Supported enhanced funding for NIAMS and NCATS Supported the nomination of Duchenne muscular dystrophy in front of HRSAs ACHDNC Worked on the introduction of the ALS Better Care Act Supported the introduction of legislation that increases access to genetic testing and genetic counselors Supported the Right Drug, Right Dose Act Supported robust appropriations for the newborn screening program.

Lobbyist	Covered position, as disclosed
JOEL CARTNER New	—
PAUL MELMEYER	—

Contacted: Natl Institutes of Health (NIH); Centers For Medicare and Medicaid Services (CMS); Food & Drug Administration (FDA); SENATE; HOUSE OF REPRESENTATIVES; Health Resources & Services Administration (HRSA); Health & Human Services, Dept of (HHS)

Medicare/Medicaid MMM

Advocated for the protection of the Medicaid program to the White House and Congress Provided viewpoints on the unaffordability of healthcare to the Ways and Means Committee Supported CMSs efforts to cover seat elevation systems Provided comments to CMS on their proposed rule on prior authorization Provided comments to CMS on Medicare Advantage Rule Provided comments to CMS on low income subsidies for those in Medicare Supported the Protecting Healthcare for All Patients Act Worked on the introduction of the ALS Better Care Act Supported the introduction of legislation that increases access to genetic testing and genetic counselors

Lobbyist	Covered position, as disclosed
JOEL CARTNER New	—
PAUL MELMEYER	—

Contacted: SENATE; Health & Human Services, Dept of (HHS); Centers For Medicare and Medicaid Services (CMS); HOUSE OF REPRESENTATIVES

Insurance INS

Provided viewpoints on the unaffordability of healthcare to the Ways and Means Committee Provided comments to HHS on Benefit and Payment Parameters Supported the introduction of legislation that increases access to genetic testing and genetic counselors Supported the Right Drug, Right Dose Act

Lobbyist	Covered position, as disclosed
JOEL CARTNER New	—
PAUL MELMEYER	—

Contacted: Health & Human Services, Dept of (HHS); Centers For Medicare and Medicaid Services (CMS); HOUSE OF REPRESENTATIVES; SENATE

Pharmacy PHA

Provided comments to CMS on their proposed rule on prior authorization Provided comments to HHS on Benefit and Payment Parameters Supported the introduction of legislation that increases access to genetic testing and genetic counselors Supported the Right Drug, Right Dose Act

Lobbyist	Covered position, as disclosed
JOEL CARTNER New	—
PAUL MELMEYER	—

Contacted: Food & Drug Administration (FDA); Centers For Medicare and Medicaid Services (CMS); HOUSE OF REPRESENTATIVES; SENATE; Centers For Disease Control & Prevention (CDC)

Transportation TRA

Supported accessible air travel reforms to be included in the FAA Reauthorization Supported the MOBILE Act, legislation to make air travel more accessible Supported the Air Carrier Access Amendments Act, legislation to make air travel more accessible Supported the EVAC Act, legislation to ensure evacuations of airplanes considers those with disabilities

Lobbyist	Covered position, as disclosed
MICHAEL KENNALLY LEWIS	—
PAUL MELMEYER	—

Contacted: SENATE; Federal Aviation Administration (FAA); HOUSE OF REPRESENTATIVES; Transportation, Dept of (DOT)

Government Issues GOV

Opposed the REINS Act

Lobbyist	Covered position, as disclosed
JOEL CARTNER	—

Contacted: HOUSE OF REPRESENTATIVES; SENATE