4th Quarter - Report

CYSTIC FIBROSIS FOUNDATION for CYSTIC FIBROSIS FOUNDATION

Period 4th Quarter 2019 Filed Jan 21, 2020 Signed by Mary Dwight, SVP for Policy & CF Community Affairs

Official filing
Firm
CYSTIC FIBROSIS FOUNDATION
Client
CYSTIC FIBROSIS FOUNDATION
Income
—
Expenses
$130,000
Expense method
A: Lobbying Disclosure Act definitions

What was lobbied

8 issue areas, each in the filer's own words, with who lobbied on it and where.

Science/Technology SCI

Antibiotic Development Incentives discussions; all provisions

LobbyistCovered position, as disclosed
VICTORIA GEMME N/A

Contacted: HOUSE OF REPRESENTATIVES; Health & Human Services, Dept of (HHS); SENATE

Taxation/Internal Revenue Code TAX

S. 110:Medical Expense Savings Act; all provisions

LobbyistCovered position, as disclosed
JONATHAN DANIELS N/A
MARY B DWIGHT N/A
SARA SINGLETON N/A

Contacted: HOUSE OF REPRESENTATIVES; Health & Human Services, Dept of (HHS); SENATE

Bills named: S. 110 (116th)

Health Issues HCR

H.J. Res. 74: Providing for congressional disapproval under chapter 8 of title 5, United States Code, of the rule submitted by the Secretary of the Treasury and the Secretary of Health and Human Services relating to "State Relief and Empowerment Waivers"; all provisions H.R. 3: Elijah E. Cummings Lower Drug Costs Now Act; all provisions H.R. 19: Lower Costs, More Cures Act of 2019; all provisions H.R. 986: Protecting Americans with Preexisting Conditions Act of 2019; all provisions H.R. 987: Strengthening Health Care and Lowering Prescription Drug Costs Act; all provisions H.R. 1010: To provide that the rule entitled Short-Term, Limited Duration Insurance shall have no force or effect; all provisions H.R. 1425: State Health Care Premium Reduction Act; all provisions H.R. 1868: Health Care Affordability Act of 2019; all provisions H.R. 1870: Family Health Care Affordability Act of 2019; all provisions H.R. 2296: More Efficient Tools to Realize Information for Consumers Act; all provisions H.R. 2507: Newborn Screening Saves Lives Reauthorization Act of 2019; all provisions H.R. 3630: No Surprises Act; all provisions H.R. 4698: Medical Records Access Fairness Act; all provisions Ways & Means and Energy & Commerce discussion draft on capping Medicare Part D out-of-pocket costs; all provisions Draft Legislation related to 21st Century Cures Act 2.0; all provisions Antibiotic Development Incentives discussions; all provisions S.J. Res. 52: A joint resolution providing for congressional disapproval under chapter 8 of title 5, United States Code, of the rule submitted by the Secretary of the Treasury and the Secretary of Health and Human Services relating to "State Relief and Empowerment Waivers"; all provisions S. 110:Medical Expense Savings Act; all provisions S. 466: Protecting Americans with Pre-existing Conditions Act of 2019; all provisions S. 475: Reducing Existing Costs Associated with Pharmaceuticals for Seniors (RxCAP) Act of 2019; all provisions S. 961: Improving Health Insurance Affordability Act of 2019; all provisions S. 1531: Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; all provisions S. 1556: No Junk Plans Act; all provisions S. 1712: Developing an Innovative Strategy for Antimicrobial Resistant Microorganisms (DISARM) Act of 2019; all provisions S. 1895: Lower Health Care Costs Act; all provisions S. 1935: Family Coverage Act; all provisions S. 2158: Newborn Screening Saves Lives Reauthorization Act of 2019; all provisions S. 2543: Prescription Drug Pricing Reduction Act of 2019; all provisions Antibiotic Development Incentives discussions; all provisions

LobbyistCovered position, as disclosed
ZOE ALDRICH N/A
DANIEL CRAMER N/A
JONATHAN DANIELS N/A
MARY B DWIGHT N/A
DAVID ELIN N/A
LISA FENG N/A
VICTORIA GEMME N/A
KATHERINE HASWELL N/A
SARA SINGLETON N/A

Contacted: SENATE; HOUSE OF REPRESENTATIVES; Health & Human Services, Dept of (HHS)

Bills named: H.R. 986 (116th), S. 2158 (116th), S. 2543 (116th), S. 1895 (116th), S. 1712 (116th), H.R. 4698 (116th), S. 466 (116th), H.R. 3 (116th), H.R. 19 (116th), S. 1531 (116th), S. 110 (116th), S.J.Res. 52 (116th), H.J.Res. 74 (116th), H.R. 987 (116th), H.R. 1870 (116th), S. 1935 (116th), S. 1556 (116th), H.R. 1868 (116th), S. 475 (116th), H.R. 1010 (116th), H.R. 2296 (116th), H.R. 3630 (116th), H.R. 2507 (116th), H.R. 1425 (116th), S. 961 (116th)

Medicare/Medicaid MMM

H.R. 2113: Prescription Drug STAR Act; all provisions Ways & Means and Energy & Commerce discussion draft on capping Medicare Part D out-of-pocket costs; all provisions S. 475: Reducing Existing Costs Associated with Pharmaceuticals for Seniors (RxCAP) Act of 2019; all provisions S. 1712: Developing an Innovative Strategy for Antimicrobial Resistant Microorganisms (DISARM) Act of 2019; all provisions

LobbyistCovered position, as disclosed
JONATHAN DANIELS N/A
MARY B DWIGHT N/A
LISA FENG N/A
VICTORIA GEMME N/A
SARA SINGLETON N/A

Contacted: Health & Human Services, Dept of (HHS); SENATE; HOUSE OF REPRESENTATIVES

Bills named: S. 475 (116th), S. 1712 (116th), H.R. 2113 (116th)

Budget/Appropriations BUD

H.R. 1865: Further Consolidated Appropriations Act, 2020; provisions related to funding for the Health and Human Services, Food and Drug Administration, and related agencies H.R. 2740: Labor, Health and Human Services, Education, Defense, State, Foreign Operations, and Energy and Water Development Appropriations Act, 2020; provisions related to funding for the Health and Human Services and related agencies H.R. 3055: Further Continuing Appropriations Act, 2020, and Further Health Extenders Act of 2019; provisions related to funding for the Food and Drug Administration and related agencies H.R. 3164: Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2020; provisions related to funding for the Food and Drug Administration and related agencies H.R. 4378: Continuing Appropriations Act, 2020, and Health Extenders Act of 2019; provisions related to funding for the Health and Human Services and related agencies S. 2522: Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2020; provisions related to funding for the Food and Drug Administration and related agencies (Draft) Labor, Health and Human Services (LHHS) appropriations for Fiscal Year 2020; provisions related to funding for the Health and Human Services and related agencies

LobbyistCovered position, as disclosed
ZOE ALDRICH N/A
DANIEL CRAMER N/A
JONATHAN DANIELS N/A
MARY B DWIGHT N/A
DAVID ELIN N/A
VICTORIA GEMME N/A
KATHERINE HASWELL N/A
SARA SINGLETON N/A

Contacted: SENATE; HOUSE OF REPRESENTATIVES; Health & Human Services, Dept of (HHS)

Bills named: H.R. 1865 (116th), H.R. 2740 (116th), H.R. 3164 (116th), H.R. 3055 (116th), S. 2522 (116th), H.R. 4378 (116th)

Medical/Disease Research/Clinical Labs MED

H.R. 3: Elijah E. Cummings Lower Drug Costs Now Act; all provisions H.R. 19: Lower Costs, More Cures Act of 2019; all provisions H.R. 1865: Further Consolidated Appropriations Act, 2020; provisions related to funding for the Health and Human Services, Food and Drug Administration, and related agencies H.R. 2507: Newborn Screening Saves Lives Reauthorization Act of 2019; all provisions H.R. 2740: Labor, Health and Human Services, Education, Defense, State, Foreign Operations, and Energy and Water Development Appropriations Act, 2020; provisions related to funding for the Health and Human Services and related agencies H.R. 3055: Further Continuing Appropriations Act, 2020, and Further Health Extenders Act of 2019; provisions related to funding for the Food and Drug Administration and related agencies H.R. 3164: Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2020; provisions related to funding for the Food and Drug Administration and related agencies H.R. 4378: Continuing Appropriations Act, 2020, and Health Extenders Act of 2019; provisions related to funding for the Health and Human Services and related agencies Draft Legislation related to 21st Century Cures Act 2.0; all provisions S. 2158: Newborn Screening Saves Lives Reauthorization Act of 2019; all provisions S. 2522: Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2020; provisions related to funding for the Food and Drug Administration and related agencies S. 2543: Prescription Drug Pricing Reduction Act of 2019; all provisions (Draft) Labor, Health and Human Services (LHHS) appropriations for Fiscal Year 2020; provisions related to funding for the Health and Human Services and related agencies

LobbyistCovered position, as disclosed
ZOE ALDRICH N/A
DANIEL CRAMER N/A
JONATHAN DANIELS N/A
MARY B DWIGHT N/A
DAVID ELIN N/A
LISA FENG N/A
VICTORIA GEMME N/A
KATHERINE HASWELL N/A
SARA SINGLETON N/A

Contacted: HOUSE OF REPRESENTATIVES; SENATE; Health & Human Services, Dept of (HHS)

Bills named: H.R. 4378 (116th), H.R. 19 (116th), H.R. 2740 (116th), H.R. 3 (116th), H.R. 3055 (116th), S. 2158 (116th), S. 2522 (116th), H.R. 2507 (116th), S. 2543 (116th), H.R. 1865 (116th), H.R. 3164 (116th)

Insurance INS

H.J. Res. 74: Providing for congressional disapproval under chapter 8 of title 5, United States Code, of the rule submitted by the Secretary of the Treasury and the Secretary of Health and Human Services relating to "State Relief and Empowerment Waivers"; all provisions H.R. 986: Protecting Americans with Preexisting Conditions Act of 2019; all provisions H.R. 987: Strengthening Health Care and Lowering Prescription Drug Costs Act; all provisions H.R. 1010: To provide that the rule entitled "Short-Term, Limited Duration Insurance" shall have no force or effect; all provisions H.R. 1425: State Health Care Premium Reduction Act; all provisions H.R. 1868: Health Care Affordability Act of 2019; all provisions H.R. 1870: Family Health Care Affordability Act of 2019; all provisions H.R. 3630: No Surprises Act; all provisions Ways & Means and Energy & Commerce discussion draft on capping Medicare Part D out-of-pocket costs; all provisions S.J. Res. 52: A joint resolution providing for congressional disapproval under chapter 8 of title 5, United States Code, of the rule submitted by the Secretary of the Treasury and the Secretary of Health and Human Services relating to "State Relief and Empowerment Waivers"; all provisions S. 466: Protecting Americans with Pre-existing Conditions Act of 2019; all provisions S. 475: Reducing Existing Costs Associated with Pharmaceuticals for Seniors (RxCAP) Act of 2019; all provisions S. 961: Improving Health Insurance Affordability Act of 2019; all provisions S. 1531: Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; all provisions S. 1556: No Junk Plans Act; all provisions S. 1712: Developing an Innovative Strategy for Antimicrobial Resistant Microorganisms (DISARM) Act of 2019; all provisions S. 1895: Lower Health Care Costs Act; all provisions S. 1935: Family Coverage Act; all provisions

LobbyistCovered position, as disclosed
ZOE ALDRICH N/A
DANIEL CRAMER N/A
JONATHAN DANIELS N/A
MARY B DWIGHT N/A
DAVID ELIN N/A
LISA FENG N/A
VICTORIA GEMME N/A
KATHERINE HASWELL N/A
SARA SINGLETON N/A

Contacted: HOUSE OF REPRESENTATIVES; Health & Human Services, Dept of (HHS); SENATE

Bills named: S. 1556 (116th), S. 1895 (116th), H.R. 986 (116th), H.R. 3630 (116th), S. 1712 (116th), S.J.Res. 52 (116th), H.R. 987 (116th), H.J.Res. 74 (116th), H.R. 1010 (116th), H.R. 1425 (116th), S. 1531 (116th), S. 1935 (116th), S. 466 (116th), H.R. 1868 (116th), S. 475 (116th), H.R. 1870 (116th), S. 961 (116th)

Pharmacy PHA

H.R. 3: Elijah E. Cummings Lower Drug Costs Now Act; all provisions H.R. 19: Lower Costs, More Cures Act of 2019; all provisions H.R. 987: Strengthening Health Care and Lowering Prescription Drug Costs Act; all provisions H.R. 2113: Prescription Drug STAR Act; all provisions H.R. 2296: More Efficient Tools to Realize Information for Consumers Act; all provisions Ways & Means and Energy & Commerce discussion draft on capping Medicare Part D out-of-pocket costs; all provisions S. 475: Reducing Existing Costs Associated with Pharmaceuticals for Seniors (RxCAP) Act of 2019; all provisions S. 2543: Prescription Drug Pricing Reduction Act of 2019; all provisions

LobbyistCovered position, as disclosed
JONATHAN DANIELS N/A
MARY B DWIGHT N/A
DAVID ELIN N/A
LISA FENG N/A
KATHERINE HASWELL N/A
SARA SINGLETON N/A

Contacted: HOUSE OF REPRESENTATIVES; Health & Human Services, Dept of (HHS); SENATE

Bills named: H.R. 987 (116th), S. 2543 (116th), S. 475 (116th), H.R. 3 (116th), H.R. 2113 (116th), H.R. 2296 (116th), H.R. 19 (116th)

Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.