THE MICHAEL J. FOX FOUNDATION FOR PARKINSON'S RESEARCH for THE MICHAEL J. FOX FOUNDATION FOR PARKINSON'S RESEARCH
What was lobbied
7 issue areas, each in the filer's own words, with who lobbied on it and where.
Health Issues HCR
General Parkinson's disease information about symptoms, triggers, health coverage, health costs, social determinants of health related to Parkinson's disease and data collection, research, and health access for underserved communities Advocating for Parkinson's patients during COVID-19, including extension of health care subsidies Advocating for proposed repeal of Department of Health and Human Services rule entitled Securing Updated and Necessary Statutory Evaluations Timely Advocating on for more specific Parkinson's disease ICD-10-CM codes to assist in the continuation and coordination of care and allow researchers to have data to study the disease progression Advocating for expanding access to care via telehealth S.4906 Advocating for reauthorization of CDCs National Neurological Conditions Surveillance System (NNCSS) S. 3799, the Prepare for and Respond to Existing Viruses, Emerging New Threats (PREVENT), and Pandemics Act S. 253/H.R.8454, the Cannabidiol and Marihuana Research Expansion Act/ Medical Marijuana and Cannabidiol Research Expansion Act S. 1467/H.R. 2916, the VA Medicinal Cannabis Research Act H.R. 5657, the Medical Marijuana Research Act H.R. 3617, the Marijuana Opportunity Reinvestment and Expungement Act H.R. 2916/S. 1467, the VA Medical Cannabis Research Act of 2021 H.R. 3105, the Common Sense Cannabis Reform for Veterans, Small Businesses, and Medical Professionals Act S. 1670/H.R. 3321, the Credit for Caring Act H.R. 253, the Adult Day Care Center Enhancement Act S. 464/H.R. 2163, the Safe Step Act H.R. 3013, the COVID Vaccine Transportation Access Act H.R. 2503, the Social Determinants Accelerator Act of 2021 H.R. 6000, the Cures 2.0 Act H.R. 4521, the America COMPETES Act of 2022 H.R. 2565/S. 2952, the FDA Modernization Act of 2021 H.R. 5435 BRAIN Act of 2021 S. 3427, the Neuroscience Center of Excellence Act of 2021 H.R. 6584, the DEPICT Act S.Res. 577, A resolution designating April 2022 as "Parkinson's Awareness Month" S. 331, ABLE Age Adjustment Act H.R. 5376, the Inflation Reduction Act of 2022 H.R. 8585/S. 4851, the National Plan to End Parkinson's Act
| Lobbyist | Covered position, as disclosed |
|---|---|
| NORA EIGENBRODT New | — |
| GRACE KELLEY KRANSTOVER New | — |
| MEGAN MAY New | — |
| TED THOMPSON New | — |
| MASON ZEAGLER New | — |
Medicare/Medicaid MMM
Expanding Medicare benefits to include dental, hearing, and vision Extending and making permanent COVID-19 telehealth flexibilities Increasing drug affordability and accessibility via drug pricing, Medicare Part D redesign and benefits, capping out-of-pocket costs and smoothing, and streamlining prior authorization processes Advocating for improvements to Medicare Part C and Part D proposed rule Inflation Reduction Act of 2022 H.R. 4417, the Capping Drug Costs for Seniors Act S. 2327, the Seniors Prescription Drug Relief Act S. 828/H.R. 432, the Mental Health Access Improvement Act of 2021 H.R. 2080, the Seniors Access to Vaccine Ensured Act of 2021 H.R. 3173/S. 3018, the Improving Seniors Timely Access to Care Act H.R. 4011, the Capping Drug Costs for Seniors Act of 2022 H.R. 4479/S. 2609, the Facilitating Innovative Nuclear Diagnostics (FIND) Act of 2021 S. 2061/H.R. 4058, the Telemental Health Care Access Act of 2021 S. 1512/H.R. 2903, the Creating Opportunities Now for Necessary and Effective Care Technologies (CONNECT) for Health Act of 2021 H.R. 1332/S. 368, the Telehealth Modernization Act H.R. 366, the Protecting Access to Post-COVID-19 Telehealth Act of 2021 H.R. 3733: Essential Caregivers Act of 2021 H.R. 6202, the Telehealth Extension Act of 2021 S. 3575, the Stop the Wait Act of 2022 S. 3593, the Telehealth Extension and Evaluation Act S. 3675, the Beneficiary Enrollment Notification and Eligibility Simplification (BENES) 2.0 Act H.R. 7051/S. 3791, the Access to Prescription Digital Therapeutics Act of 2022 H.R. 5375, the Inflation Reduction Act of 2022
| Lobbyist | Covered position, as disclosed |
|---|---|
| NORA EIGENBRODT New | — |
| MEGAN MAY New | — |
| DUSTIN WATSON | Director of Government Relations |
| MASON ZEAGLER New | — |
Agriculture AGR
General education on triggers of Parkinson's disease, including TCE, paraquat, and other chemicals. Supporting creation of Neuroscience Center of Excellence at FDA. S. 3427, the Neuroscience Center of Excellence Act H.R. 5435, the BRAIN Act H.R. 6000, the Cures 2.0 Act S. 3282, the Protect Americas Children from Toxic Pesticides Act H.R. 3967 / S. 3373 Honoring our Promise to Address Comprehensive Toxics (PACT) Act and other associated legislation
| Lobbyist | Covered position, as disclosed |
|---|---|
| MEGAN MAY New | — |
| TED THOMPSON New | — |
| DUSTIN WATSON | Director of Government Relations |
Budget/Appropriations BUD
FY 2022 Appropriation bills including Parkinson's research funding requests for: Department of Defense National Institute of Health Centers for Disease Control and Prevention Food and Drug Administration FY 2023 Appropriations bills including Parkinson's research funding requests for: Department of Defense National Institute of Health Centers for Disease Control and Prevention Food and Drug Administration Department of Veterans Affairs
| Lobbyist | Covered position, as disclosed |
|---|---|
| NORA EIGENBRODT New | — |
| GRACE KELLEY KRANSTOVER New | — |
| MEGAN MAY New | — |
| TED THOMPSON New | — |
| DUSTIN WATSON | — |
| MASON ZEAGLER New | — |
Pharmacy PHA
General education around pharmaceuticals related to Parkinson's disease Increasing drug affordability and accessibility via drug pricing, Medicare Part D redesign and benefits, and streamlining prior authorization processes and step therapy protocols Prescription Drug User Fee Act H.R. 4417, the Capping Drug Costs for Seniors Act H.R. 4479/S. 2609, the Facilitating Innovative Nuclear Diagnostics Act of 2021 S. 2327, the Seniors Prescription Drug Relief Act H.R. 3173/S. 3018, the Improving Seniors Timely Access to Care Act of 2021 H.R. 2163, the Safe Step Act H.R. 5801, the Help Ensure Lower Patient (HELP) Copays Act H.R. 5376, the Inflation Reduction Act of 2022
| Lobbyist | Covered position, as disclosed |
|---|---|
| MEGAN MAY New | — |
| DUSTIN WATSON | Director of Government Relations |
| MASON ZEAGLER New | — |
Veterans VET
General education regarding the importance of the Department of Defense medical research programs for military service personnel and Veterans living with Parkinson's disease. Inclusion of Parkinson's disease and PD-related diseases as presumptive conditions when military Veterans are exposed to associated toxins Support for VA's Parkinson's Disease Research, Education and Clinical Center H.R. 3967, the Honoring Our PACT Act and associated legislation H.R. 6774, the Boxing Therapy for Parkinson's Access Act of 2022 H.R. 6659/S. 3541, the Health Care for Burn Pit Veterans Act
| Lobbyist | Covered position, as disclosed |
|---|---|
| NORA EIGENBRODT New | — |
| GRACE KELLEY KRANSTOVER New | — |
| MEGAN MAY New | — |
| TED THOMPSON New | — |
| DUSTIN WATSON | Director of Government Relations |
| MASON ZEAGLER New | — |
Environment/Superfund ENV
General education regarding environmental triggers of neurological disease and support for more research. S. 3283, the Protect America's Children from Toxic Pesticides Act
| Lobbyist | Covered position, as disclosed |
|---|---|
| MEGAN MAY New | — |
| TED THOMPSON New | — |
| DUSTIN WATSON | Director of Government Relations |
Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.