3rd Quarter - Amendment

CYSTIC FIBROSIS FOUNDATION for CYSTIC FIBROSIS FOUNDATION

Period 3rd Quarter 2019 Filed Nov 26, 2019 Signed by Mary Dwight, SVP for Policy & CF Community Affairs

Official filing
Firm
CYSTIC FIBROSIS FOUNDATION
Client
CYSTIC FIBROSIS FOUNDATION
Income
—
Expenses
$160,000
Expense method
A: Lobbying Disclosure Act definitions

Versions of this report

Every filing the register holds for this firm, client and period, oldest first. The most recent one is the version LegiList counts.

Filing Filed Amount Counted
3rd Quarter - Report Oct 21, 2019 $160,000 Replaced
3rd Quarter - Amendment (this page) Nov 26, 2019 $160,000 Yes

What was lobbied

7 issue areas, each in the filer's own words, with who lobbied on it and where.

Medical/Disease Research/Clinical Labs MED

H.R. 3: Lower Drug Costs Now Act of 2019; all provisions H.R. 987: Strengthening Health Care and Lowering Prescription Drug Costs Act; all provisions H.R. 2507: Newborn Screening Saves Lives Reauthorization Act of 2019; all provisions H.R. 2740: Labor, Health and Human Services, Education, Defense, State, Foreign Operations, and Energy and Water Development Appropriations Act, 2020; provisions related to funding for the Health and Human Services and related agencies H.R. 3055: Commerce, Justice, Science, Agriculture, Rural Development, Food and Drug Administration, Interior, Environment, Military Construction, Veterans Affairs, Transportation, and Housing and Urban Development Appropriations Act, 2020; provisions related to funding for the Food and Drug Administration and related agencies H.R. 4378 - Continuing Appropriations Act, 2020, and Health Extenders Act of 2019; provisions related to funding for the Health and Human Services and related agencies S. 2158: Newborn Screening Saves Lives Reauthorization Act of 2019; all provisions S. 2522 - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2020; provisions related to funding for the Food and Drug Administration and related agencies S. 2543 - Prescription Drug Pricing Reduction Act of 2019; all provisions Labor, Health and Human Services (LHHS) appropriations for Fiscal Year 2020 draft; provisions related to funding for the Health and Human Services and related agencies

LobbyistCovered position, as disclosed
ZOE ALDRICH N/A
DANIEL CRAMER N/A
JONATHAN DANIELS N/A
MARY B DWIGHT N/A
DAVID ELIN N/A
LISA FENG N/A
VICTORIA GEMME N/A
KATHERINE HASWELL N/A
SARA SINGLETON N/A

Contacted: SENATE; HOUSE OF REPRESENTATIVES

Bills named: H.R. 2507 (116th), S. 2543 (116th), H.R. 3055 (116th), H.R. 2740 (116th), S. 2158 (116th), H.R. 987 (116th), S. 2522 (116th), H.R. 4378 (116th), H.R. 3 (116th)

Immigration IMM

General discussions regarding Medical Deferred Action

LobbyistCovered position, as disclosed
JONATHAN DANIELS N/A
MARY B DWIGHT N/A
LISA FENG N/A
KATHERINE HASWELL N/A
LESLIE POWELL N/A
SARA SINGLETON N/A

Contacted: SENATE; HOUSE OF REPRESENTATIVES

Insurance INS

H.J. Res. 74: Providing for congressional disapproval under chapter 8 of title 5, United States Code, of the rule submitted by the Secretary of the Treasury and the Secretary of Health and Human Services relating to "State Relief and Empowerment Waivers"; all provisions H.R. 986: Protecting Americans with Preexisting Conditions Act of 2019; all provisions H.R. 987: Strengthening Health Care and Lowering Prescription Drug Costs Act; all provisions H.R. 1010: To provide that the rule entitled "Short-Term, Limited Duration Insurance" shall have no force or effect; all provisions H.R. 1425: State Health Care Premium Reduction Act; all provisions H.R. 1868: Health Care Affordability Act of 2019; all provisions H.R. 1870: Family Health Care Affordability Act of 2019; all provisions Ways & Means and Energy & Commerce discussion draft on capping Medicare Part D out-of-pocket costs; all provisions S.J. Res. 52: A joint resolution providing for congressional disapproval under chapter 8 of title 5, United States Code, of the rule submitted by the Secretary of the Treasury and the Secretary of Health and Human Services relating to "State Relief and Empowerment Waivers"; all provisions S. 466: Protecting Americans with Pre-existing Conditions Act of 2019; all provisions S. 475: Reducing Existing Costs Associated with Pharmaceuticals for Seniors (RxCAP) Act of 2019; all provisions S. 961: Improving Health Insurance Affordability Act of 2019; all provisions S. 1556: No Junk Plans Act; all provisions S. 1712: Developing an Innovative Strategy for Antimicrobial Resistant Microorganisms (DISARM) Act of 2019; all provisions S. 1895: Lower Health Care Costs Act; all provisions S. 1935: Family Coverage Act; all provisions

LobbyistCovered position, as disclosed
ZOE ALDRICH N/A
DANIEL CRAMER N/A
JONATHAN DANIELS N/A
MARY B DWIGHT N/A
DAVID ELIN N/A
LISA FENG N/A
VICTORIA GEMME N/A
KATHERINE HASWELL N/A
SARA SINGLETON N/A

Contacted: SENATE; HOUSE OF REPRESENTATIVES

Bills named: H.R. 1868 (116th), S.J.Res. 52 (116th), S. 1556 (116th), H.R. 986 (116th), H.R. 1870 (116th), S. 1935 (116th), S. 1895 (116th), H.J.Res. 74 (116th), H.R. 987 (116th), S. 475 (116th), S. 466 (116th), S. 1712 (116th), H.R. 1425 (116th), H.R. 1010 (116th), S. 961 (116th)

Pharmacy PHA

H.R. 3: Lower Drug Costs Now Act of 2019; all provisions H.R. 987: Strengthening Health Care and Lowering Prescription Drug Costs Act; all provisions H.R. 2113: Prescription Drug STAR Act; all provisions H.R. 2296: FAIR Drug Pricing Act of 2019; all provisions Ways & Means and Energy & Commerce discussion draft on capping Medicare Part D out-of-pocket costs; all provisions S. 475: Reducing Existing Costs Associated with Pharmaceuticals for Seniors (RxCAP) Act of 2019; all provisions S. 2543 - Prescription Drug Pricing Reduction Act of 2019; all provisions

LobbyistCovered position, as disclosed
DANIEL CRAMER N/A
JONATHAN DANIELS N/A
MARY B DWIGHT N/A
DAVID ELIN N/A
LISA FENG N/A
SARA SINGLETON N/A

Contacted: SENATE; HOUSE OF REPRESENTATIVES

Bills named: H.R. 987 (116th), H.R. 2113 (116th), H.R. 3 (116th), H.R. 2296 (116th), S. 2543 (116th), S. 475 (116th)

Health Issues HCR

H.J. Res. 74: Providing for congressional disapproval under chapter 8 of title 5, United States Code, of the rule submitted by the Secretary of the Treasury and the Secretary of Health and Human Services relating to "State Relief and Empowerment Waivers"; all provisions H.R. 3 - Lower Drug Costs Now Act of 2019; all provisions H.R. 986: Protecting Americans with Preexisting Conditions Act of 2019; all provisions H.R. 987: Strengthening Health Care and Lowering Prescription Drug Costs Act; all provisions H.R. 1010: To provide that the rule entitled Short-Term, Limited Duration Insurance shall have no force or effect; all provisions H.R. 1425: State Health Care Premium Reduction Act; all provisions H.R. 1868: Health Care Affordability Act of 2019; all provisions H.R. 1870: Family Health Care Affordability Act of 2019; all provisions H.R. 2296: FAIR Drug Pricing Act of 2019; all provisions H.R. 2507: Newborn Screening Saves Lives Reauthorization Act of 2019; all provisions Ways & Means and Energy & Commerce discussion draft on capping Medicare Part D out-of-pocket costs; all provisions S.J. Res. 52: A joint resolution providing for congressional disapproval under chapter 8 of title 5, United States Code, of the rule submitted by the Secretary of the Treasury and the Secretary of Health and Human Services relating to "State Relief and Empowerment Waivers"; all provisions S. 466: Protecting Americans with Pre-existing Conditions Act of 2019; all provisions S. 475: Reducing Existing Costs Associated with Pharmaceuticals for Seniors (RxCAP) Act of 2019; all provisions S. 961: Improving Health Insurance Affordability Act of 2019; all provisions S. 1556: No Junk Plans Act; all provisions S. 1712: Developing an Innovative Strategy for Antimicrobial Resistant Microorganisms (DISARM) Act of 2019; all provisions S. 1895: Lower Health Care Costs Act; all provisions S. 1935: Family Coverage Act; all provisions S. 2158: Newborn Screening Saves Lives Reauthorization Act of 2019; all provisions S. 2543 - Prescription Drug Pricing Reduction Act of 2019; all provisions The Medical Records Access Fairness Act draft; all provisions

LobbyistCovered position, as disclosed
ZOE ALDRICH N/A
DANIEL CRAMER N/A
JONATHAN DANIELS N/A
MARY B DWIGHT N/A
DAVID ELIN N/A
LISA FENG N/A
VICTORIA GEMME N/A
KATHERINE HASWELL N/A
SARA SINGLETON N/A

Contacted: SENATE; HOUSE OF REPRESENTATIVES

Bills named: S. 2158 (116th), S.J.Res. 52 (116th), H.R. 2296 (116th), S. 475 (116th), S. 1556 (116th), S. 466 (116th), H.R. 1868 (116th), H.R. 1010 (116th), H.R. 1870 (116th), H.R. 986 (116th), H.R. 2507 (116th), S. 1712 (116th), S. 2543 (116th), S. 1935 (116th), S. 961 (116th), H.J.Res. 74 (116th), H.R. 3 (116th), S. 1895 (116th), H.R. 987 (116th), H.R. 1425 (116th)

Medicare/Medicaid MMM

H.R. 2113: Prescription Drug STAR Act; all provisions Ways & Means and Energy & Commerce discussion draft on capping Medicare Part D out-of-pocket costs; all provisions S. 475: Reducing Existing Costs Associated with Pharmaceuticals for Seniors (RxCAP) Act of 2019; all provisions S. 1712: Developing an Innovative Strategy for Antimicrobial Resistant Microorganisms (DISARM) Act of 2019; all provisions

LobbyistCovered position, as disclosed
JONATHAN DANIELS N/A
MARY B DWIGHT N/A
DAVID ELIN N/A
LISA FENG N/A
VICTORIA GEMME N/A
SARA SINGLETON N/A

Contacted: HOUSE OF REPRESENTATIVES; SENATE

Bills named: H.R. 2113 (116th), S. 475 (116th), S. 1712 (116th)

Budget/Appropriations BUD

H.R. 2740: Labor, Health and Human Services, Education, Defense, State, Foreign Operations, and Energy and Water Development Appropriations Act, 2020; provisions related to funding for the Health and Human Services and related agencies H.R. 3055: Commerce, Justice, Science, Agriculture, Rural Development, Food and Drug Administration, Interior, Environment, Military Construction, Veterans Affairs, Transportation, and Housing and Urban Development Appropriations Act, 2020; provisions related to funding for the Food and Drug Administration and related agencies H.R. 4378 - Continuing Appropriations Act, 2020, and Health Extenders Act of 2019; provisions related to funding for the Health and Human Services, Food and Drug Administration and related agencies S. 2522 - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2020; provisions related to funding for the Food and Drug Administration and related agencies Labor, Health and Human Services (LHHS) appropriations for Fiscal Year 2020 draft; provisions related to funding for the Health and Human Services and related agencies

LobbyistCovered position, as disclosed
ZOE ALDRICH N/A
DANIEL CRAMER N/A
JONATHAN DANIELS N/A
MARY B DWIGHT N/A
VICTORIA GEMME N/A
KATHERINE HASWELL N/A
SARA SINGLETON N/A

Contacted: HOUSE OF REPRESENTATIVES; SENATE

Bills named: H.R. 2740 (116th), S. 2522 (116th), H.R. 4378 (116th), H.R. 3055 (116th)

Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.