2nd Quarter - Amendment

NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD) for NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)

Firm
Client
Income
—
Expenses
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No amount is shown when the filer reports less than $5,000 for the period, which the form does not ask them to state.

Versions of this report

Every filing the register holds for this firm, client and period, oldest first. The most recent one is the version LegiList counts.

Filing Filed Amount Counted
2nd Quarter - Report (No Activity) Aug 14, 2014 — Replaced
2nd Quarter - Amendment Aug 14, 2014 — Replaced
2nd Quarter - Amendment (this page) Aug 14, 2014 — Yes

What was lobbied

One issue area, each in the filer's own words, with who lobbied on it and where.

Health Issues HCR

Medical Foods Equity Act (H.R. 3665) Patient's Access to Treatment (H.R. 460) Preserving Access to Orphan Drugs Act (S.1128/H.R.2315) 21st Century Cures

LobbyistCovered position, as disclosed
DIANE EDQUIST DORMAN Vice President Public Policy
PAUL MELMEYER Associate Director of Public Policy

Contacted: Social Security Administration (SSA); Food & Drug Administration (FDA); SENATE

Bills named: H.R. 2315 (113th), S. 1128 (113th), H.R. 460 (113th), H.R. 3665 (113th)

Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.