THE MICHAEL J. FOX FOUNDATION FOR PARKINSON'S RESEARCH for THE MICHAEL J. FOX FOUNDATION FOR PARKINSON'S RESEARCH
What was lobbied
7 issue areas, each in the filer's own words, with who lobbied on it and where.
Budget/Appropriations BUD
FY 2022 Appropriation bills including Parkinson's research funding requests for: Department of Defense National Institute of Health Centers for Disease Control and Prevention Food and Drug Administration FY 2023 Appropriations bills including Parkinson's research funding requests for: Department of Defense National Institute of Health Centers for Disease Control and Prevention Food and Drug Administration Department of Veterans Affairs H.R.2617 Consolidated Appropriations Act, 2023 H.R.5376 Inflation Reduction Act of 2022
| Lobbyist | Covered position, as disclosed |
|---|---|
| NORA EIGENBRODT New | — |
| GRACE KELLEY KRANSTOVER New | — |
| MEGAN MAY New | — |
| TED THOMPSON New | — |
| DUSTIN WATSON | — |
| MASON ZEAGLER New | — |
Health Issues HCR
General Parkinson's disease information about symptoms, triggers, health coverage, health costs, social determinants of health related to Parkinson's disease and data collection, research, and health access for underserved communities. H.R. 8585/S. 4851, the National Plan to End Parkinson's Act - to require the U.S. Department of Health and Human Services (HHS) to carry out a project to prevent and cure Parkinson's disease. Among other components of the project, HHS must (1) implement and periodically update a national plan to coordinate and guide efforts to prevent and cure the disease; (2) improve diagnosis, treatment, and care of those with the disease; and (3) address health and other disparities related to the disease. HHS must also conduct annual assessments on the preparation for and response to the increased burden of Parkinson's disease. In addition, the bill establishes a council, comprised of federal and nonfederal stakeholders, to advise HHS on and make recommendations concerning the prevention and cure of Parkinson's disease. Establishing Parkinson's disease ICD-10-CM codes to assist in the continuation and coordination of care and to allow researchers to gather more data to study the progression of Parkinson's among people living with the disease. Expanding access to health care for people living with Parkinson's via telehealth by removing Medicare telehealth geographic and originating site restrictions, extending coverage and reimbursement for health care providers who bill Medicare for providing services via telehealth (including seeing new patients and audio-only telehealth for clinically appropriate services/visits), ensuring payment parity for telehealth and in-person services, and removing Medicare in-person requirements for accessing mental health services via telehealth. H.R. 2617, the Consolidated Appropriations Act, 2023 Establishing separate Medicare payment requirements for diagnostic radiopharmaceuticals, including DaTscans, so health care providers are adequately reimbursed for furnishing diagnostic tests to help validate patients Parkinsons diagnoses. S. 2609/H.R. 4479, Facilitating Innovative Nuclear Diagnostics (FIND) Act of 2021 S. 464/H.R. 2163, the Safe Step Act - to amend the Employee Retirement Income Security Act of 1974 (ERISA) to require a group health plan or health insurance coverage offered in connection with such a plan to provide an exceptions process for any medication step therapy protocol to enable people living with Parkinsons disease to access the medications they need to best manage their disease S.4906 Advocating for reauthorization of CDCs National Neurological Conditions Surveillance System (NNCSS) S. 3799, the Prepare for and Respond to Existing Viruses, Emerging New Threats (PREVENT), and Pandemics Act S. 253/H.R.8454, the Cannabidiol and Marihuana Research Expansion Act/ Medical Marijuana and Cannabidiol Research Expansion Act S. 1467/H.R. 2916, the VA Medicinal Cannabis Research Act H.R. 5657, the Medical Marijuana Research Act H.R. 3617, the Marijuana Opportunity Reinvestment and Expungement Act H.R. 2916/S. 1467, the VA Medical Cannabis Research Act of 2021 H.R. 3105, the Common Sense Cannabis Reform for Veterans, Small Businesses, and Medical Professionals Act S. 1670/H.R. 3321, the Credit for Caring Act H.R. 253, the Adult Day Care Center Enhancement Act H.R. 6000, the Cures 2.0 Act H.R. 4521, the America COMPETES Act of 2022 H.R. 2565/S. 2952, the FDA Modernization Act of 2021 H.R. 5435 BRAIN (Bringing Regulatory Advances Into Neuroscience) Act of 2021 S. 3427, the Neuroscience Center of Excellence Act of 2021 H.R. 6584, the DEPICT (Diverse and Equitable Participation in Clinical Trials) Act S. 331, ABLE (Achieving a Better Life Experience) Age Adjustment Act
| Lobbyist | Covered position, as disclosed |
|---|---|
| NORA EIGENBRODT New | — |
| GRACE KELLEY KRANSTOVER New | — |
| MEGAN MAY New | — |
| TED THOMPSON New | — |
| MASON ZEAGLER New | — |
Medicare/Medicaid MMM
Expanding dental health coverage in Medicare by clarifying CMS's interpretation of the statutory dental exclusion. Expanding access to health care for people living with Parkinson's via telehealth by removing Medicare telehealth geographic and originating site restrictions, extending coverage and reimbursement for health care providers who bill Medicare for providing services via telehealth (including seeing new patients and audio-only telehealth for clinically appropriate services/visits), ensuring payment parity for telehealth and in-person services, and removing Medicare in-person requirements for accessing mental health services via telehealth. H.R. 2617, Consolidated Appropriations Act, 2023; S. 2061/H.R. 4058, Telemental Health Care Access Act of 2021; CY 2023 Payment Policies Under the Physician Fee Schedule and Other Changes to Part B Payment Policies Increasing drug affordability and accessibility for people living with Parkinsons via drug pricing, Medicare Part D redesign and benefits, capping out-of-pocket costs and smoothing, and streamlining prior authorization processes. H.R. 5375, Inflation Reduction Act of 2022; H.R. 4417, Capping Drug Costs for Seniors Act; S. 4011, Capping Drug Costs for Seniors Act of 2022 Establishing separate Medicare payment requirements for diagnostic radiopharmaceuticals, including DaTscans, so health care providers are adequately reimbursed for furnishing diagnostic tests to help validate patients Parkinsons diagnoses. S. 2609/H.R. 4479, Facilitating Innovative Nuclear Diagnostics (FIND) Act of 2021 H.R. 3733: Essential Caregivers Act of 2021
| Lobbyist | Covered position, as disclosed |
|---|---|
| NORA EIGENBRODT New | — |
| MEGAN MAY New | — |
| DUSTIN WATSON | Director of Government Relations |
| MASON ZEAGLER New | — |
Agriculture AGR
General education on triggers of Parkinson's disease, including TCE, paraquat, and other chemicals. Supporting creation of Neuroscience Center of Excellence at FDA. S. 3427, the Neuroscience Center of Excellence Act H.R. 5435, the BRAIN (Bringing Regulatory Advances Into Neuroscience Act of 2021 H.R. 6000, the Cures 2.0 Act S. 3282, the Protect Americas Children from Toxic Pesticides Act (PACTPA) H.R. 3967 / S. 3373 Honoring our Promise to Address Comprehensive Toxics (PACT) Act and other associated legislation
| Lobbyist | Covered position, as disclosed |
|---|---|
| MEGAN MAY New | — |
| TED THOMPSON New | — |
| DUSTIN WATSON | Director of Government Relations |
Pharmacy PHA
General education around pharmaceuticals related to Parkinson's disease. Increasing drug affordability and accessibility for people living with Parkinsons via drug pricing, Medicare Part D redesign and benefits, capping out-of-pocket costs and smoothing, and streamlining prior authorization processes. H.R. 5375, Inflation Reduction Act of 2022; H.R. 4417, Capping Drug Costs for Seniors Act; S. 4011, Capping Drug Costs for Seniors Act of 2022. S. 464/H.R. 2163, the Safe Step Act - to amend the Employee Retirement Income Security Act of 1974 (ERISA) to require a group health plan or health insurance coverage offered in connection with such a plan to provide an exceptions process for any medication step therapy protocol to enable people living with Parkinsons disease to access the medications they need to best manage their disease Establishing separate Medicare payment requirements for diagnostic radiopharmaceuticals, including DaTscans, so health care providers are adequately reimbursed for furnishing diagnostic tests to help validate patients Parkinsons diagnoses. S. 2609/H.R. 4479, Facilitating Innovative Nuclear Diagnostics (FIND) Act of 2021
| Lobbyist | Covered position, as disclosed |
|---|---|
| MEGAN MAY New | — |
| DUSTIN WATSON | Director of Government Relations |
| MASON ZEAGLER New | — |
Veterans VET
General education regarding the importance of the Department of Defense medical research programs for military service personnel and Veterans living with Parkinson's disease. Inclusion of Parkinson's disease and PD-related diseases as presumptive conditions when military Veterans are exposed to associated toxins. Support for VA's Parkinson's Disease Research, Education and Clinical Center H.R. 3967, the Honoring Our PACT Act and associated legislation H.R. 6774, the Boxing Therapy for Parkinson's Access Act of 2022 H.R. 6659/S. 3541, the Health Care for Burn Pit Veterans Act
| Lobbyist | Covered position, as disclosed |
|---|---|
| NORA EIGENBRODT New | — |
| GRACE KELLEY KRANSTOVER New | — |
| MEGAN MAY New | — |
| TED THOMPSON New | — |
| DUSTIN WATSON | Director of Government Relations |
| MASON ZEAGLER New | — |
Environment/Superfund ENV
General education regarding environmental triggers of neurological disease and Parkinson's along with support for more research. S. 3283, the Protect America's Children from Toxic Pesticides Act (PACTPA)
| Lobbyist | Covered position, as disclosed |
|---|---|
| MEGAN MAY New | — |
| TED THOMPSON New | — |
| DUSTIN WATSON | Director of Government Relations |
Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.