1st Quarter - Report — NATIONAL ORGANIZATION FOR RARE DISORDER… for NATIONAL ORGANIZATION FOR RARE DISORDER… (2016)

Firm

NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)

Client

NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)

Income

—

Expenses

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No amount is shown when the filer reports less than $5,000 for the period, which the form does not ask them to state.

What was lobbied

One issue area, each in the filer's own words, with who lobbied on it and where.

Health Issues HCR

H.R. 6 - The 21st Century Cures Act H.R. 1537/S. 1878 - Advancing Hope Act of 2015 H.R. 3731 - RAD Fund Act H.R. 3678 - Preserving Access to Orphan Drug Act S. 2030 - Advancing Targeted Therapies for Rare Diseases Act S. 1421 - OPEN Act H.R. 3742 - Access to Marketplace Insurance Act S. 1597 - Patient-Focused Impact Assessment Act of 2016 H.R. 1600 - Patients' Access to Treatments Act of 2015 S. 1767 - Combination Product Regulatory Fairness Act of 2016 FDA Appropriations S. 2700 - FDA and NIH Workforce Authorities Modernization Act Dr. Robert Califf FDA Commissioner Nomination H.R. 4909 - Fiscal 2017 National Defense Authorization Act (NDAA) Funding for Pediatric Device Consortia Grant Program

Lobbyist	Covered position, as disclosed
PAUL MELMEYER	—
MARTHA L RINKER New	Vice President of Public Policy

Contacted: Social Security Administration (SSA); Food & Drug Administration (FDA); SENATE; HOUSE OF REPRESENTATIVES; Natl Institutes of Health (NIH); Centers For Medicare and Medicaid Services (CMS); Health & Human Services, Dept of (HHS)

Bills named: H.R. 3742 (114th), H.R. 6 (114th), H.R. 1600 (114th), H.R. 4909 (114th), S. 2700 (114th), H.R. 3678 (114th), S. 1878 (114th), S. 2030 (114th), S. 1421 (114th), H.R. 1537 (114th), S. 1767 (114th), H.R. 3731 (114th), S. 1597 (114th)

Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.