1st Quarter - Report

MUSCULAR DYSTROPHY ASSOCIATION, INC. for MUSCULAR DYSTROPHY ASSOCIATION, INC.

Period 1st Quarter 2025 Filed May 1, 2025 Signed by Paul Melmeyer

Official filing
Firm
MUSCULAR DYSTROPHY ASSOCIATION, INC.
Client
MUSCULAR DYSTROPHY ASSOCIATION, INC.
Income
—
Expenses
$60,000
Expense method
A: Lobbying Disclosure Act definitions

What was lobbied

10 issue areas, each in the filer's own words, with who lobbied on it and where.

Budget/Appropriations BUD

Submitted a joint request for Fiscal Year 2026 Appropriations for ALS Programs (3.18.2025) Supported appropriations for newborn screening programs at HRSA and CDC

LobbyistCovered position, as disclosed
JOEL CARTNER —
PAUL MELMEYER —
SHANNON WOOD —

Contacted: Health & Human Services, Dept of (HHS); Food & Drug Administration (FDA); Defense, Dept of (DOD); SENATE; Health Resources & Services Administration (HRSA); HOUSE OF REPRESENTATIVES; Centers For Disease Control & Prevention (CDC); Natl Institutes of Health (NIH)

Medical/Disease Research/Clinical Labs MED

Filed MDA Comments in Response to NIH Strategic Plan Request for Comment (3.12.2025) Opposed Funding Cuts in Recently Introduced Continuing Resolution (3.11.2025) Expressed opposition to effort that caps indirect costs in NIH grants to 15% Supported efforts to add FSHD to the Peer Reviewed Medical Research Program Commenced efforts to reauthorize the ACT for ALS

LobbyistCovered position, as disclosed
JOEL CARTNER —
PAUL MELMEYER —
SHANNON WOOD —

Contacted: Centers For Medicare and Medicaid Services (CMS); Health Resources & Services Administration (HRSA); Natl Institutes of Health (NIH); SENATE; Food & Drug Administration (FDA); Health & Human Services, Dept of (HHS); Defense, Dept of (DOD); HOUSE OF REPRESENTATIVES

Medicare/Medicaid MMM

Supported the Accelerating Kids' Access to Care Act (3.26.2025) Joined a coalition comments in Support of Preserving Patient Access to Home Infusion Act (3.13.2025) Opposed U.S. House Adoption of Budget Resolution (2.26.2025) Supported legislation on Securing Access to Telehealth Services (2.24.2025) Defended Medicaid from potential harmful cuts Supported legislation to expand access to HCBS Supported the reintroduction of the MVP Act Supported the reintroduction of the ALS Better Care Act Supported the reintroduction of the Access to Genetic Counseling Services Act

LobbyistCovered position, as disclosed
JOEL CARTNER —
PAUL MELMEYER —
SHANNON WOOD —

Contacted: HOUSE OF REPRESENTATIVES; SENATE; Centers For Medicare and Medicaid Services (CMS); Health & Human Services, Dept of (HHS)

Health Issues HCR

Supported the Accelerating Kids' Access to Care Act (3.26.2025) Submitted a joint request for Fiscal Year 2026 Appropriations for ALS Programs (3.18.2025) Joined a coalition comments in Support of Preserving Patient Access to Home Infusion Act (3.13.2025) Filed MDA Comments in Response to NIH Strategic Plan Request for Comment (3.12.2025) Opposed Funding Cuts in Recently Introduced Continuing Resolution (3.11.2025) Joined Coalition Comments on U.S. Department of Health and Human Services Removal of Notice and Comment Opportunities (3.6.2025) Joined Comments on Legislative Efforts to Undermine the Regulatory Process and Weaken Public Health Protections (3.4.2025) Opposed U.S. House Adoption of Budget Resolution (2.26.2025) Supported Pharmacy Benefit Manager (PBM) Reform Patient Priorities (2.25.2025) Supported legislation on Securing Access to Telehealth Services (2.24.2025) Expressed opposition to effort that caps indirect costs in NIH grants to 15% Joined Coalition Comments on Wheelchair Repairs and Maintenance Policy Recommendations (2.5.2025) Joined Coalition Comments on Trump Administration Defending No-Cost Preventive Care in Braidwood Case (1.30.2025) Joined Coalition Comments on Wheelchair Repair Solutions and Principles (1.29.2025) Joined Coalition Comments to President Trump on Rare Disease Community Priorities (1.24.2025) Supported efforts to add FSHD to the Peer Reviewed Medical Research Program Commenced efforts to reauthorize the Newborn Screening Saves Lives Reauthorization Act Supported the reauthorization of the Rare Pediatric Disease PRV Program as part of the Gives Kids a Chance Act Defended Medicaid from potential harmful cuts Commenced efforts to reauthorize the ACT for ALS Supported the reintroduction and passage of the RARE Act Supported Pharmacy Benefit Manager (PBM) Reform Patient Priorities (2.25.2025) Supported the reauthorization of the Rare Pediatric Disease PRV Program as part of the Gives Kids a Chance Act Commenced efforts to reauthorize the ACT for ALS Supported the reintroduction and passage of the RARE Act Supported the reintroduction of the MVP Act Supported the reintroduction of the Patient Access Act

LobbyistCovered position, as disclosed
JOEL CARTNER —
PAUL MELMEYER —
SHANNON WOOD —

Contacted: Natl Institutes of Health (NIH); Health Resources & Services Administration (HRSA); SENATE; Food & Drug Administration (FDA); Defense, Dept of (DOD); Centers For Medicare and Medicaid Services (CMS); HOUSE OF REPRESENTATIVES; Centers For Disease Control & Prevention (CDC); Health & Human Services, Dept of (HHS)

Aviation/Airlines/Airports AVI

Joined a letter to Secretary of Transportation Duffy on the Air Travel Experience for Disabled Veterans and Passengers with Disabilities (2.25.2025) Filed MDA Comments on Airline Passenger Rights Notice of Proposed Rulemaking (NPRM) (2.10.2025) Filed MDA Comments on Nondiscrimination on the Basis of Disability Air Travel Information Collection Advanced NPRM (2.10.2025)

LobbyistCovered position, as disclosed
PAUL MELMEYER —
SHANNON WOOD —

Contacted: Transportation, Dept of (DOT); Federal Aviation Administration (FAA); SENATE; HOUSE OF REPRESENTATIVES

Insurance INS

Supported the Accelerating Kids' Access to Care Act (3.26.2025) Joined a coalition comments in Support of Preserving Patient Access to Home Infusion Act (3.13.2025) Supported legislation on Securing Access to Telehealth Services (2.24.2025) Joined Coalition Comments on Trump Administration Defending No-Cost Preventive Care in Braidwood Case (1.30.2025) Supported legislation to expand access to HCBS Supported the reintroduction of the Patient Access Act

LobbyistCovered position, as disclosed
JOEL CARTNER —
PAUL MELMEYER —
SHANNON WOOD —

Contacted: Health & Human Services, Dept of (HHS); SENATE; Centers For Medicare and Medicaid Services (CMS); HOUSE OF REPRESENTATIVES

Transportation TRA

Joined a letter to Secretary of Transportation Duffy on the Air Travel Experience for Disabled Veterans and Passengers with Disabilities (2.25.2025) Filed MDA Comments on Airline Passenger Rights Notice of Proposed Rulemaking (NPRM) (2.10.2025) Filed MDA Comments on Nondiscrimination on the Basis of Disability Air Travel Information Collection Advanced NPRM (2.10.2025)

LobbyistCovered position, as disclosed
PAUL MELMEYER —
SHANNON WOOD —

Contacted: Transportation, Dept of (DOT); Federal Aviation Administration (FAA); SENATE; HOUSE OF REPRESENTATIVES

Education EDU

Joined Coalition Comments on U.S. Secretary of Education Nominee Linda McMahon (2.6.2025) Opposed efforts by the Administration to dismantle the Department of Education

LobbyistCovered position, as disclosed
PAUL MELMEYER —
SHANNON WOOD —

Contacted: HOUSE OF REPRESENTATIVES; SENATE; Education, Dept of

Retirement RET

Expressed concern to Congress on Ongoing Developments at the Social Security Administration (SSA) (3.20.2025) Joined Coalition Comments in Support of the SSI Savings Penalty Elimination Act (3.10.2025)

LobbyistCovered position, as disclosed
PAUL MELMEYER —
SHANNON WOOD —

Contacted: Social Security Administration (SSA); SENATE; HOUSE OF REPRESENTATIVES

Taxation/Internal Revenue Code TAX

Supported the Credit for Caring Act

LobbyistCovered position, as disclosed
PAUL MELMEYER —
SHANNON WOOD —

Contacted: Internal Revenue Service (IRS); SENATE; HOUSE OF REPRESENTATIVES

Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.