NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD) for NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)
A later version of this report replaces this one, so LegiList's totals use the current version instead. This page shows this version exactly as filed.
Versions of this report
Every filing the register holds for this firm, client and period, oldest first. The most recent one is the version LegiList counts.
| Filing | Filed | Amount | Counted |
|---|---|---|---|
| 1st Quarter - Report (this page) | Apr 20, 2022 | $40,000 | Replaced |
| 1st Quarter - Amendment | May 6, 2022 | $40,000 | Yes |
What was lobbied
4 issue areas, each in the filer's own words, with who lobbied on it and where.
Health Issues HCR
Rare disease initiatives. Newborn screening. Genetic testing. Affordable Care Act (ACA) Issues and Enhancements as it Relates to H.R.5376 - Build Back Better Act. Telehealth legislation.
| Lobbyist | Covered position, as disclosed |
|---|---|
| CORINNE ALBERTS | — |
| RUBY DEHKHARGHANI | — |
| HEIDI ROSS | — |
Medicare/Medicaid MMM
Medicare / Medicaid issues impacting patients with rare diseases.
| Lobbyist | Covered position, as disclosed |
|---|---|
| CORINNE ALBERTS | — |
| RUBY DEHKHARGHANI | — |
| HEIDI ROSS | — |
Pharmacy PHA
Pharmaceutical issues impacting patients with rare diseases. Orphan Drug Act. User Fee Agreements. Prescription Drug User Fee Act (PDUFA).
| Lobbyist | Covered position, as disclosed |
|---|---|
| CORINNE ALBERTS | — |
| RUBY DEHKHARGHANI | — |
| HEIDI ROSS | — |
Taxation/Internal Revenue Code TAX
Orphan Drug Tax Credit Issues.
| Lobbyist | Covered position, as disclosed |
|---|---|
| HEIDI ROSS | — |
Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.