4th Quarter - Report

NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD) for NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)

Period 4th Quarter 2013 Filed Jan 2, 2014 Signed by Diane Dorman, Vice President Public Policy

Official filing
Firm
NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
Client
NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)
Income
—
Expenses
—

No amount is shown when the filer reports less than $5,000 for the period, which the form does not ask them to state.

What was lobbied

One issue area, each in the filer's own words, with who lobbied on it and where.

Health Issues HCR

Patients' Access to Treatment (HR 460) FDA Safety Over Sequestration Act (HR 2725/S 1413) Preserving Access to Orphan Drugs Act (S 1128/HR 2315) Medical Foods for Inborn Errors of Metabolism

LobbyistCovered position, as disclosed
DIANE EDQUIST DORMAN —
PAUL MELMEYER —

Contacted: Social Security Administration (SSA); Food & Drug Administration (FDA); HOUSE OF REPRESENTATIVES; SENATE

Bills named: H.R. 460 (113th), H.R. 2315 (113th), H.R. 2725 (113th)

Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.