NATIONAL PSORIASIS FOUNDATION for NATIONAL PSORIASIS FOUNDATION
What was lobbied
3 issue areas, each in the filer's own words, with who lobbied on it and where.
Health Issues HCR
Urge Congress to support efforts that increase access to care for individuals living with psoriasis and psoriatic arthritis by supporting the Restoring the Patient's Voice Act (HR 2077). The bill reforms step therapy insurance protocols to ensure patients and providers have access to a clear exemption process. It establishes a patient and provider friendly step therapy guidelines in ERISA regulated health insurance plans. Urge Congress to support efforts that increase access to care for individuals living with psoriasis and psoriatic arthritis by supporting the Patients' Access to Treatments Act (HR 2999). This bill limits copayments, coinsurance and other cost-sharing and out of pocket expenses for so-called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them.
| Lobbyist | Covered position, as disclosed |
|---|---|
| JESSICA NAGRO | — |
| PATRICK STONE | — |
Medicare/Medicaid MMM
In relation to the President's Drug Pricing Blueprint, the NPF advocated for patient priorities as they relate to potential Congressional proposals to move Medicare Part B drugs into Part D, adjust out of pocket expenses in Medicare Part D, and increase access to therapies. There was a particular focus on Congress's role in new policies around allowing step therapy protocols in Medicare Advantage plans.
| Lobbyist | Covered position, as disclosed |
|---|---|
| JESSICA NAGRO | — |
| PATRICK STONE | — |
Budget/Appropriations BUD
FY19 Appropriations for Psoriatic Disease Allocate $1 million in the Fiscal Year 2019 Labor, Health and Human Services, Education and Related Agencies (LHHS) Appropriations bill to implement a public health agenda for psoriasis and psoriatic arthritis at the Centers for Disease Control and Prevention (CDC). Within this funding, the CDC would: - Better understand linkages between psoriasis and psoriatic arthritis and other multiple chronic conditions, to develop a focused public health applied research agenda for psoriatic disease.
| Lobbyist | Covered position, as disclosed |
|---|---|
| JESSICA NAGRO | — |
| PATRICK STONE | — |
Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.