ALSTON & BIRD LLP for TRAVERE THERAPEUTICS
What was lobbied
5 issue areas, each in the filer's own words, with who lobbied on it and where.
Pharmacy PHA
Support for H.R.946, Optimizing Research Progress Hope And New Cures Act (ORPHAN Cures Act). Pub. L. No. 119-21, One Big Beautiful Bill Act, provisions regarding orphan drugs. Most-Favored Nation and International Reference Pricing proposals. PDUFA/regulatory review process.
| Lobbyist | Covered position, as disclosed |
|---|---|
| MARK RAYDER | — |
Health Issues HCR
Support for H.R.946, Optimizing Research Progress Hope And New Cures Act (ORPHAN Cures Act). Legislation regarding the Orphan Drug Act and rare disease diagnosis, treatment, and care. Legislation regarding kidney disease and in particular rare kidney disease. Legislation regarding newborn screening. H.R.1518, New Era of Preventing End-Stage Kidney Disease Act. Support of reauthorization of priority review voucher program. Pub. L. No. 119-21, One Big Beautiful Bill Act, provisions regarding orphan drugs.
| Lobbyist | Covered position, as disclosed |
|---|---|
| JAMES PATRICK PALUSKIEWICZ | — |
| MARK RAYDER | — |
| ROBERT SIGGINS | — |
Medicare/Medicaid MMM
H.R.1518, New Era of Preventing End-Stage Kidney Disease Act. Pub. L. No. 119-21, One Big Beautiful Bill Act, provisions regarding orphan drugs, Medicare and Medicaid.
| Lobbyist | Covered position, as disclosed |
|---|---|
| JAMES PATRICK PALUSKIEWICZ | — |
| MARK RAYDER | — |
| ROBERT SIGGINS | — |
Medical/Disease Research/Clinical Labs MED
Legislation regarding clinical research for rare diseases and orphan drug development, and the Accelerated Approval pathway. H.R.1262/S.932, Give Kids a Chance Act to renew PRV program. Related provisions in Pub. L. No. 119-21, One Big Beautiful Bill Act. The Newborn Screening Reauthorization Act. Importance of patient voice in rare kidney disease.
| Lobbyist | Covered position, as disclosed |
|---|---|
| JAMES PATRICK PALUSKIEWICZ | — |
| MARK RAYDER | — |
| ROBERT SIGGINS | — |
Taxation/Internal Revenue Code TAX
H.R.1414, Camerons Law, to restore the amount of the Orphan Drug Tax Credit. Pub. L. No. 119-21, One Big Beautiful Bill Act, provisions regarding orphan drugs.
| Lobbyist | Covered position, as disclosed |
|---|---|
| MARK RAYDER | — |
| ROBERT SIGGINS | — |
Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.