NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD) for NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)
A later version of this report replaces this one, so LegiList's totals use the current version instead. This page shows this version exactly as filed.
No amount is shown when the filer reports less than $5,000 for the period, which the form does not ask them to state.
Versions of this report
Every filing the register holds for this firm, client and period, oldest first. The most recent one is the version LegiList counts.
| Filing | Filed | Amount | Counted |
|---|---|---|---|
| 2nd Quarter - Report (this page) | Jul 25, 2018 | — | Replaced |
| 2nd Quarter - Amendment | Jul 23, 2019 | $60,000 | Yes |
What was lobbied
One issue area, each in the filer's own words, with who lobbied on it and where.
Health Issues HCR
Medicare Part D Right to Try Act; S.204 Rare disease Advancement, Research, and Education Act of 2018; H.R.5115 National Institutes of Health funding Food and Drug Administration Appropriations Orphan Drug Act Medical Nutrition Equity Act; H.R.2587, S.1194 Congressionally Directed Medical Research Program Short-term, limited-duration health plans Association health plans Accelerated Approval Medicaid waivers Inpatient prospective payment system (IPPS) proposed rule Patient Advocacy Transparency Act; S.3000 HHS Blueprint to Lower Drug Prices and Reduce Out-of-Pocket Costs
| Lobbyist | Covered position, as disclosed |
|---|---|
| PAUL MELMEYER | — |
| MELANIE SWICK BUZZELLI New | — |
Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.