EPILEPSY FOUNDATION for EPILEPSY FOUNDATION

Civil Rights/Civil Liberties CIV

-H.R. 1549, Air Carrier Access Amendments Act, support passage to make air travel more accessible for people with disabilities

Contacted: SENATE; Food & Drug Administration (FDA); Health & Human Services, Dept of (HHS); Centers For Medicare and Medicaid Services (CMS); HOUSE OF REPRESENTATIVES

Bills named: H.R. 1549 (116th)

Health Issues HCR

-H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 712, VA Medicinal Cannabis Research Act, support addition of epilepsy -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -FDA-2019-N-1428, Scientific Data and Information about Products Containing Cannabis or Cannabis-Derived Compounds, support preservation of meaningful access to cannabis and cannabis-derived products, including CBD tinctures with therapeutic levels of the cannabinoid, and creation of a regulatory framework that ensures that there is consistency in available products, manufacturing, safety, testing, and labeling standards, and increases the availability of important information such as potential side effects and drug interactions so that consumers and practitioners may be better informed -H.R. 2328/H.R. 3439, support reauthorization of the Patient-Centered Outcomes Research Institute (PCORI) for a minimum of 7 years -HHS Docket No. HHS-OCR-2019-0007, RIN 0945-AA11, oppose weakening of anti-discrimination provisions of Section 1557 of the Affordable Care Act -H.R. 3, Lower Drug Costs Now Act, support specific provisions that are relevant to the epilepsy community such as an out-of-pocket cap in Medicare Part D and addition of language to ban the use of QALYs -FY 2020 Revisions to Payment Policies under the Physician Fee Schedule and Other Changes to Part B Payment Policies (CMS-1715-P) and CY 2020 Medicare Hospital Outpatient Prospective Payment System Proposed Rule (CMS-1717-P), expressed concern with reductions in the values for the new long-term EEG (electroencephalograph) and video EEG (VEEG) professional and technical service codes and urge appropriate values be assigned -RIN:0938-AT41, oppose proposed rescission of the existing regulations on Medicaid equal access

Contacted: Food & Drug Administration (FDA); Centers For Medicare and Medicaid Services (CMS); Health & Human Services, Dept of (HHS); HOUSE OF REPRESENTATIVES; SENATE

Bills named: H.R. 3439 (116th), H.R. 3 (116th), S. 2400 (116th), H.R. 127 (116th), S. 2546 (116th), H.R. 4322 (116th), H.R. 2093 (116th), S. 1028 (116th), H.R. 2279 (116th), H.R. 2328 (116th), H.R. 712 (116th)

Budget/Appropriations BUD

-H.R. 3877, Bipartisan Budget Act, support raising budget caps -H.R. 4378, Continuing Resolution Act, support -H.R. 2740, FY 2020 Labor, Health and Human Services and Education Appropriations Act, support $11.5 million for the Centers for Disease Controls National Center for Chronic Disease Prevention and Health Promotion; $41.6 billion for the National Institutes of Health; $8.56 billion for the Health Resources & Services Administrations (HRSA) discretionary budget authority; $46 million for the Agency for Healthcare Research and Quality (AHRQ); support $20 million for the Lifespan Respite Care Program; and a $1.7 billion increase over 2019 levels for the Individuals with Disabilities Education Act. -H.R. 2968, FY Defense Appropriations Act, support continued funding for the Congressionally Directed Medical Research Program (CDMRP).

Contacted: SENATE; Centers For Medicare and Medicaid Services (CMS); Food & Drug Administration (FDA); Health & Human Services, Dept of (HHS); HOUSE OF REPRESENTATIVES

Bills named: H.R. 3877 (116th), H.R. 2740 (116th), H.R. 2968 (116th), H.R. 4378 (116th)