FAEGRE DRINKER BIDDLE & REATH LLP for RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
What was lobbied
3 issue areas, each in the filer's own words, with who lobbied on it and where.
Health Issues HCR
Issues pertaining to FDA review of application for rare disease therapies; Issues pertaining to interagency coordination and management of rare disease activities; Legislation to reauthorize the Pediatric Priority Review Voucher; S. 4426 Promising Pathways Act
| Lobbyist | Covered position, as disclosed |
|---|---|
| NICHOLAS PETER MANETTO | Press Secretary and Legislative Assistant, Rep. Christopher H. Smith (R-NJ) |
| NISHA QUASBA | — |
| RYAN SHAY | — |
Budget/Appropriations BUD
FY 25 appropriations legislation and provisions pertaining to coordination of rare disease activities within the FDA and HHS and funding for rare disease policies and programs.
| Lobbyist | Covered position, as disclosed |
|---|---|
| NICHOLAS PETER MANETTO | Press Secretary and Legislative Assistant, Rep. Christopher H. Smith (R-NJ) |
| NISHA QUASBA | — |
| RYAN SHAY | — |
Medicare/Medicaid MMM
Accelerating Kids' Access to Care Act (H.R. 4758, S. 2372) and issues pertaining to out-of-state care; Impact of Inflation Reduction Act on rare disease therapies.
| Lobbyist | Covered position, as disclosed |
|---|---|
| NICHOLAS PETER MANETTO | Legislative Assistant, Rep. Christopher H. Smith (R-NJ) |
| NISHA QUASBA | — |
Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.