CYSTIC FIBROSIS FOUNDATION for CYSTIC FIBROSIS FOUNDATION
What was lobbied
7 issue areas, each in the filer's own words, with who lobbied on it and where.
Health Issues HCR
H.R. 2902: SUPPLEMENTAL OXYGEN ACCESS REFORM (SOAR) ACT OF 2025; ALL PROVISIONS H.R. 6423: HELP ENSURE LOWER PATIENT (HELP) COPAYS ACT; ALL PROVISIONS H.R 7352: PIONEERING ANTIMICROBIAL SUBSCRIPTIONS TO END UPSURGING RESISTANCE (PASTEUR) ACT OF 2026; ALL PROVISIONS S. 864: HELP ENSURE LOWER PATIENT (HELP) COPAYS ACT; ALL PROVISIONS S. 1406: SUPPLEMENTAL OXYGEN ACCESS REFORM (SOAR) ACT OF 2025; ALL PROVISIONS S. 4875: PIONEERING ANTIMICROBIAL SUBSCRIPTIONS TO END UPSURGING RESISTANCE (PASTEUR) ACT OF 2026; ALL PROVISIONS GENERAL DISCUSSIONS SURROUNDING ANTIBIOTICS REIMBURSEMENT AND INCENTIVIZING THE DEVELOPMENT OF NOVEL ANTIMICROBIALS GENERAL DISCUSSIONS SURROUNDING MAINTAINING ACCESS TO MEDICAID AND PROPOSED CHANGES TO THE PROGRAM GENERAL DISCUSSIONS ON NEW MEDICAID WORK REPORTING REQUIREMENTS AND DEFINITION OF MEDICAL FRAILTY DESCRIBED IN CMS-2454-IFC GENERAL DISCUSSIONS SURROUNDING NON-COMPREHENSIVE INSURANCE PRODUCTS, EXPANSION OF HIGH-DEDUCTIBLE HEALTH PLANS (HDHPs) PAIRED WITH HEALTH SAVINGS ACCOUNTS (HSAs) GENERAL DISCUSSION ON ALTERNATIVE FUNDING PROGRAMS (AFPS) GENERAL DISCUSSION ON DRUG PRICING REFORM GENERAL DISCUSSION ON HEALTH COVERAGE REFORM GENERAL DISCUSSIONS ON PHARMACY BENEFIT MANAGERS (PBMs) REFORM INCLUDING TRANSPARENCY AND ACCOUNTABILITY, SPREAD PRICING AND PRICE-LINKED COMPENSATION GENERAL DISCUSSIONS SURROUNDING RESTRICTIONS ON ADVANCE FUNDING FOR MULTI-YEAR NATIONAL INSTITUTES OF HEALTH (NIH) RESEARCH GRANTS; PROVISIONS RELATED TO PRESERVING THE LANGUAGE RESTRICTING ADVANCE FUNDING OF MULTI-YEAR RESEARCH GRANTS BY THE NIH GENERAL DISCUSSIONS PREVENTING FUTURE CUTS TO HEALTHCARE IN POTENTIAL RECONCILIATION LEGISLATION CFF SUBMITS COMMENTS TO CENTERS FOR MEDICARE AND MEDICAID SERVICES (CMS) IN RESPONSE TO THEIR REQUEST FOR INFORMATION ON THE AFFORDABLE CARE ACT'S (ACA) ESSENTIAL HEALTH BENEFITS CFF SUBMITS COMMENTS IN RESPONSE TO DEPARTMENT OF HEALTH AND HUMAN SERVICES (HHS) AND CENTERS FOR MEDICARE AND MEDICAID SERVICES (CMS) REQUEST FOR INFORMATION ON HOW TO IMPLEMENT PBM MEASURES INCLUDED IN THE LAST CONSOLIDATED APPROPRIATIONS ACT CFF SUBMITS COMMENTS IN RESPONSE TO CENTERS FOR MEDICARE AND MEDICAID SERVICES (CMS) INTERIM FINAL RULE ON THE MEDICAID WORK REPORTING REQUIREMENTS
| Lobbyist | Covered position, as disclosed |
|---|---|
| MARY B DWIGHT | — |
| DAVID ELIN | — |
| SCOTT SHERWOOD | — |
Insurance INS
H.R. 6423: HELP ENSURE LOWER PATIENT (HELP) COPAYS ACT; ALL PROVISIONS S. 864: HELP ENSURE LOWER PATIENT (HELP) COPAYS ACT; ALL PROVISIONS GENERAL DISCUSSIONS SURROUNDING MAINTAINING ACCESS TO MEDICAID AND PROPOSED CHANGES TO THE PROGRAM GENERAL DISCUSSIONS ON NEW MEDICAID WORK REPORTING REQUIREMENTS AND DEFINITION OF MEDICAL FRAILTY DESCRIBED IN CMS-2454-IFC GENERAL DISCUSSIONS SURROUNDING NON-COMPREHENSIVE INSURANCE PRODUCTS, EXPANSION OF HIGH-DEDUCTIBLE HEALTH PLANS (HDHPs) PAIRED WITH HEALTH SAVINGS ACCOUNTS (HSAs) GENERAL DISCUSSION ON ALTERNATIVE FUNDING PROGRAMS (AFPS) GENERAL DISCUSSION ON DRUG PRICING REFORM GENERAL DISCUSSION ON HEALTH COVERAGE REFORM GENERAL DISCUSSIONS ON PHARMACY BENEFIT MANAGERS (PBMs) REFORM INCLUDING TRANSPARENCY AND ACCOUNTABILITY, SPREAD PRICING AND PRICE-LINKED COMPENSATION GENERAL DISCUSSIONS SURROUNDING RESTRICTIONS ON ADVANCE FUNDING FOR MULTI-YEAR NATIONAL INSTITUTES OF HEALTH (NIH) RESEARCH GRANTS; PROVISIONS RELATED TO PRESERVING THE LANGUAGE RESTRICTING ADVANCE FUNDING OF MULTI-YEAR RESEARCH GRANTS BY THE NIH GENERAL DISCUSSIONS PREVENTING FUTURE CUTS TO HEALTHCARE IN POTENTIAL RECONCILIATION LEGISLATION CFF SUBMITS COMMENTS TO CENTERS FOR MEDICARE AND MEDICAID SERVICES (CMS) IN RESPONSE TO THEIR REQUEST FOR INFORMATION ON THE AFFORDABLE CARE ACT'S (ACA) ESSENTIAL HEALTH BENEFITS CFF SUBMITS COMMENTS IN RESPONSE TO DEPARTMENT OF HEALTH AND HUMAN SERVICES (HHS) AND CENTERS FOR MEDICARE AND MEDICAID SERVICES (CMS) REQUEST FOR INFORMATION ON HOW TO IMPLEMENT PBM MEASURES INCLUDED IN THE LAST CONSOLIDATED APPROPRIATIONS ACT CFF SUBMITS COMMENTS IN RESPONSE TO CENTERS FOR MEDICARE AND MEDICAID SERVICES (CMS) INTERIM FINAL RULE ON THE MEDICAID WORK REPORTING REQUIREMENTS
| Lobbyist | Covered position, as disclosed |
|---|---|
| MARY B DWIGHT | — |
| DAVID ELIN | — |
| SCOTT SHERWOOD | — |
Budget/Appropriations BUD
GENERAL DISCUSSIONS SURROUNDING RESTRICTIONS ON ADVANCE FUNDING FOR MULTI-YEAR NATIONAL INSTITUTES OF HEALTH (NIH) RESEARCH GRANTS; PROVISIONS RELATED TO PRESERVING THE LANGUAGE RESTRICTING ADVANCE FUNDING OF MULTI-YEAR RESEARCH GRANTS BY THE NIH GENERAL DISCUSSIONS PREVENTING FUTURE CUTS TO HEALTHCARE IN POTENTIAL RECONCILIATION LEGISLATION GENERAL DISCUSSION OPPOSING OFFICE OF MANAGEMENT AND BUDGET'S (OMB) PROPOSED RULE, REGULATION FOR FEDERAL FINANCIAL ASSISTANCE (RELEASED 5/29/26) GENERAL DISCUSSION ON FY2027 APPROPRIATIONS; PROVISIONS RELATED TO DEPARTMENT OF HEALTH AND HUMAN SERVICES (HHS) AND RELATED AGENCIES, FOOD AND DRUG ADMINISTRATION (FDA) AND RELATED AGENCIES, CENTERS FOR DISEASE CONTROL AND PREVENTION AND RELATED AGENCIES, NATIONAL INSTITUTES OF HEALTH (NIH) AND RELATED AGENCIES, OBLIGATE STABLE PACE OF SPENDING FY26 FUNDS
| Lobbyist | Covered position, as disclosed |
|---|---|
| MARY B DWIGHT | — |
| DAVID ELIN | — |
| SCOTT SHERWOOD | — |
Medical/Disease Research/Clinical Labs MED
H.R. 2902: SUPPLEMENTAL OXYGEN ACCESS REFORM (SOAR) ACT OF 2025; ALL PROVISIONS H.R 7352: PIONEERING ANTIMICROBIAL SUBSCRIPTIONS TO END UPSURGING RESISTANCE (PASTEUR) ACT OF 2026; ALL PROVISIONS S. 1406: SUPPLEMENTAL OXYGEN ACCESS REFORM (SOAR) ACT OF 2025; ALL PROVISIONS S. 4875: PIONEERING ANTIMICROBIAL SUBSCRIPTIONS TO END UPSURGING RESISTANCE (PASTEUR) ACT OF 2026; ALL PROVISIONS (DRAFT) CLINICAL TRIAL MODERNIZATION ACT; ALL PROVISIONS GENERAL DISCUSSIONS SURROUNDING ANTIBIOTICS REIMBURSEMENT AND INCENTIVIZING THE DEVELOPMENT OF NOVEL ANTIMICROBIALS GENERAL DISCUSSION ON FY2027 APPROPRIATIONS; PROVISIONS RELATED TO DEPARTMENT OF HEALTH AND HUMAN SERVICES (HHS) AND RELATED AGENCIES, FOOD AND DRUG ADMINISTRATION (FDA) AND RELATED AGENCIES, CENTERS FOR DISEASE CONTROL AND PREVENTION AND RELATED AGENCIES, NATIONAL INSTITUTES OF HEALTH (NIH) AND RELATED AGENCIES, OBLIGATE STABLE PACE OF SPENDING FY26 FUNDS GENERAL DISCUSSIONS SURROUNDING RESTRICTIONS ON ADVANCE FUNDING FOR MULTI-YEAR NATIONAL INSTITUTES OF HEALTH (NIH) RESEARCH GRANTS; PROVISIONS RELATED TO PRESERVING THE LANGUAGE RESTRICTING ADVANCE FUNDING OF MULTI-YEAR RESEARCH GRANTS BY THE NIH GENERAL DISCUSSION OPPOSING OFFICE OF MANAGEMENT AND BUDGET'S (OMB) PROPOSED RULE, REGULATION FOR FEDERAL FINANCIAL ASSISTANCE (RELEASED 5/29/26) CFF SUBMITS COMMENTS TO ORGAN PROCUREMENT & TRANSPLANT NETWORK (OPTN)/HEALTH RESOURCES & SERVICES ADMINISTRATION (HRSA) IN RESPONSE TO OPTN'S UPDATE ON LUNG CONTINUOUS DISTRIBUTION POLICY PROPOSAL CFF SUBMITS COMMENTS IN RESPONSE TO A REQUEST FOR INFORMATION (RFI) FROM THE FOOD AND DRUG ADMINISTRATION (FDA) ON EXPEDITED INVESTIGATIONAL NEW DRUG PILOT PROGRAM CFF SUBMITS COMMENTS TO DEPARTMENT OF HEALTH AND HUMAN SERVICES (HHS) IN RESPONSE TO PROPOSED REGULATION ON CLINICAL TRIALS CFF SUBMITS COMMENT TO FOOD AND DRUG ADMINISTRATION (FDA) IN RESPONSE TO DRAFT GUIDANCE ON LEVERAGING PRIOR KNOWLEDGE IN THE DEVELOPMENT OF HUMAN GENE THERAPY PRODUCTS INCORPORATING GENOME EDITING
| Lobbyist | Covered position, as disclosed |
|---|---|
| MARY B DWIGHT | — |
| DAVID ELIN | — |
| SCOTT SHERWOOD | — |
Medicare/Medicaid MMM
GENERAL DISCUSSIONS SURROUNDING MAINTAINING ACCESS TO MEDICAID AND PROPOSED CHANGES TO THE PROGRAM GENERAL DISCUSSIONS ON NEW MEDICAID WORK REPORTING REQUIREMENTS AND DEFINITION OF MEDICAL FRAILTY DESCRIBED IN CMS-2454-IFC GENERAL DISCUSSION ON HEALTH COVERAGE REFORM GENERAL DISCUSSIONS PREVENTING FUTURE CUTS TO HEALTHCARE IN POTENTIAL RECONCILIATION LEGISLATION CFF SUBMITS COMMENTS TO CENTERS FOR MEDICARE AND MEDICAID SERVICES (CMS) IN RESPONSE TO THEIR REQUEST FOR INFORMATION ON THE AFFORDABLE CARE ACT'S (ACA) ESSENTIAL HEALTH BENEFITS CFF SUBMITS COMMENTS IN RESPONSE TO CENTERS FOR MEDICARE AND MEDICAID SERVICES (CMS) INTERIM FINAL RULE ON THE MEDICAID WORK REPORTING REQUIREMENTS
| Lobbyist | Covered position, as disclosed |
|---|---|
| MARY B DWIGHT | — |
| DAVID ELIN | — |
| SCOTT SHERWOOD | — |
Pharmacy PHA
GENERAL DISCUSSION ON DRUG PRICING REFORM
| Lobbyist | Covered position, as disclosed |
|---|---|
| MARY B DWIGHT | — |
| DAVID ELIN | — |
| SCOTT SHERWOOD | — |
Science/Technology SCI
(DRAFT) CLINICAL TRIAL MODERNIZATION ACT; ALL PROVISIONS CFF SUBMITS COMMENTS IN RESPONSE TO AN REQUEST FOR INFORMATION (RFI) FROM THE FOOD AND DRUG ADMINISTRATION (FDA) ON EXPEDITED INVESTIGATIONAL NEW DRUG PILOT PROGRAM
| Lobbyist | Covered position, as disclosed |
|---|---|
| MARY B DWIGHT | — |
| DAVID ELIN | — |
| SCOTT SHERWOOD | — |
Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.