EPILEPSY FOUNDATION for EPILEPSY FOUNDATION
What was lobbied
4 issue areas, each in the filer's own words, with who lobbied on it and where.
Budget/Appropriations BUD
-H.R. 1968, Full-Year Continuing Appropriations and Extensions Act, support funding for epilepsy programs and research including $12.5 Million for the CDC Epilepsy Program; $48.9 Billion for the National Institutes of Health; $680.4 Million for the BRAIN Initiative; $26.8 Million for the VA Epilepsy Centers of Excellence; and within the Congressionally Directed Medical Research Programs: $12 Million for the Epilepsy Research Program, $8 Million for the Tuberous Sclerosis Complex Program, and $175 Million for the TBI and Psychological Health Program.
| Lobbyist | Covered position, as disclosed |
|---|---|
| TYLER BECK | — |
| LAURA WEIDNER | — |
| ROXANNE YAGHOUBI | — |
Health Issues HCR
S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -Urge patient priorities like standardized health plans, network adequacy, and keeping insurance brokers accountable in the ACA marketplace exchanges. -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the National Institutes of Health, including opposing changes to the Facilities & Administrative Cost Reimbursements -Support legislation and regulations to reduce the burden of medical debt -S. Con. Res. 7/H. Con. Res. 14, Oppose any cuts to Medicaid -Express concern with HHS Reductions in Force related to epilepsy -Oppose changes to the regulatory process and limits on opportunities for public comment -Support PBM reform, including the Safe Step Act -Support programs that assist caregivers
| Lobbyist | Covered position, as disclosed |
|---|---|
| TYLER BECK | — |
| LAURA WEIDNER | — |
| ROXANNE YAGHOUBI | — |
Civil Rights/Civil Liberties CIV
-Support implementation of disability provisions in FAA reauthorization
| Lobbyist | Covered position, as disclosed |
|---|---|
| TYLER BECK | — |
| ROXANNE YAGHOUBI | — |
Education EDU
-Oppose changes to the Department of Education that could impede the rights of students with disabilities
| Lobbyist | Covered position, as disclosed |
|---|---|
| TYLER BECK | — |
| ROXANNE YAGHOUBI | — |
Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.