BLOOD CANCER UNITED (FKA THE LEUKEMIA & LYMPHOMA SOCIETY) for BLOOD CANCER UNITED (FKA THE LEUKEMIA & LYMPHOMA SOCIETY)

Budget/Appropriations BUD

FY25 appropriations for the National Cancer Institute, specifically funding for programs related to the Childhood Cancer STAR Reauthorization Act and the Childhood Cancer Data Initiative (CCDI); FY25 appropriations for the Department of Defense Congressionally-directed Medical Research Programs; FY25 appropriations for the Food and Drug Administration

Contacted: SENATE; HOUSE OF REPRESENTATIVES; Natl Institutes of Health (NIH)

Health Issues HCR

HR 1692 / S 8, the Health Care Affordability Act; HR 2630 / S 652, the Safe Step Act; HR 3433 / S 2897, the Give Kids a Chance Act; HR 3503 / S 1701, The NIH Clinical Trial Diversity Act; HR 3991 / S 1624, the Gabriella Miller Kids First Act; HR 4363 / S 2213, Comprehensive Cancer Survivorship Act; HR 6003 / S 3103, the Medical Debt Relief Act; HR 6301 / S. 2039, The Cancer Drug Parity Act; HR 7383 / S 1214, the RARE Act; HR 824, the Telehealth Benefit Expansion for Workers Act; HR 1773, the Consumer Protection for Medical Debt Collections Act; HR 2813, Self-Insurance Protection Act; HR 2868, the Association Health Plans; HR 2880, the Protecting Patients Against PBM Abuses Act; HR 3799, CHOICE Arrangement Act; HR 3800, the Chronic Disease Flexible Coverage Act; HR 5609, the Advancing Health Savings Act; HR 5688, the Bipartisan HSA Improvement Act; HR 5687, the HSA Modernization Act; HR 6664, the Innovation in Pediatric Drugs Act; HR 6963, the Pediatric Cancer Drug Supply Chain Act; HR 7384, the Creating Hope Reauthorization Act; S 113, the Prescription Pricing for the People Act; S 127, the Pharmacy Benefit Manager Transparency Act; S 1339, the Pharmacy Benefit Manager Reform Act; S 1542, the DRUG Act; S 1967 the Patients Before Middlemen Act; S 2243, the Palliative Care and Hospice Education and Training Act; S 2483, the Strengthening Consumer Protections and Medical Debt Transparency Act; S 2973, the Modernizing and Ensuring PBM Accountability Act; S 3167, Multiple Employer Welfare Arrangement (MEWA) Act; Legislation to protect insurance purchasers interacting with insurance brokers; Implementation of the No Surprises Act; Federal rulemaking related to Short-term Limited Duration Insurance (STLDI) plans; Insurance appeals and denials; Federal rulemaking related to Association Health Plans; Consumer protections related to consumers who will lose insurance due to the end of certain federal Medicaid maintenance-of-effort requirements; FDA draft guidance related to dose optimization studies in clinical trials

Contacted: SENATE; HOUSE OF REPRESENTATIVES; Natl Institutes of Health (NIH); Centers For Medicare and Medicaid Services (CMS); Health & Human Services, Dept of (HHS); Food & Drug Administration (FDA); White House Office

Bills named: H.R. 1773 (118th), H.R. 2880 (118th), H.R. 5609 (118th), H.R. 4363 (118th), H.R. 6963 (118th), H.R. 7384 (118th), H.R. 6301 (118th), H.R. 824 (118th), H.R. 5687 (118th), H.R. 6664 (118th), H.R. 5688 (118th), H.R. 3503 (118th), H.R. 6003 (118th), H.R. 3799 (118th), H.R. 3991 (118th), H.R. 2630 (118th), H.R. 2813 (118th), H.R. 3800 (118th), H.R. 7383 (118th), S. 2039 (118th), H.R. 1692 (118th), H.R. 2868 (118th), H.R. 3433 (118th)

Medicare/Medicaid MMM

HR 4758 / S 2372, the Accelerating Kids Access to Care Act; HR 5526 / S 3458, the Seniors' Access to Critical Medications Act; HR 1613, the Drug Price Transparency in Medicaid Act; HR 4473, the Medicare Patient Access to Cancer Treatment Act; HR 5378, The Lower Costs, More Transparency Act; HR 7512, the Real-Time Benefit Tool Implementation Act; S 2186, the Improving Access to Transfusion Care for Hospice Patients Act; S. 1869, the Site-based Invoicing and Transparency Enhancement (SITE) Act Implementation of the Inflation Reduction Act, specifically provisions relating to the Medicare Part D annual and monthly maximum out-of-pocket caps; Proposals to add work requirements to Medicaid programs; Medicaid policies related to the end of certain federal Medicaid maintenance-of-effort requirements; Proposals to promote parity in certain Medicare reimbursement across hospital outpatient and provider office settings;

Contacted: SENATE; Centers For Medicare and Medicaid Services (CMS); Health & Human Services, Dept of (HHS); White House Office; HOUSE OF REPRESENTATIVES

Bills named: H.R. 5378 (118th), H.R. 4758 (118th), H.R. 5526 (118th), H.R. 1613 (118th), H.R. 7512 (118th), S. 1869 (118th), H.R. 4473 (118th)

Medical/Disease Research/Clinical Labs MED

HR 3991 / S 1624, the Gabriella Miller Kids First Act; Implementation of the Childhood Cancer STAR Act (enacted in 2022);

Contacted: HOUSE OF REPRESENTATIVES; Natl Institutes of Health (NIH); SENATE

Bills named: H.R. 3991 (118th)