EPILEPSY FOUNDATION for EPILEPSY FOUNDATION
What was lobbied
2 issue areas, each in the filer's own words, with who lobbied on it and where.
Budget/Appropriations BUD
BUDGET -H.R. 2471, Consolidated Appropriations Act, 2022, support passage to ensure funding for important epilepsy-related programs, research and services including the CDC epilepsy program and the VA Epilepsy Centers of Excellence. -Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2023, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program; $164 million for the CDC's Safe Motherhood & Infant Health Program including more funding for the SUID & SDY Case Registry; $49 billion for the NIH; and $5 million for the National Neurological Conditions Surveillance System. - Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2023, support $19 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2023, support $3.653 billion for the Food & Drug Administrations BA. -Defense Appropriations Act, 2023, support robust funding for epilepsy-related research through the Congressionally Directed Medical Research Programs.
| Lobbyist | Covered position, as disclosed |
|---|---|
| RACHEL PATTERSON | — |
| LAURA WEIDNER | — |
Health Issues HCR
-Build Back Better Act or similar legislation, support $400 billion for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; creating a comprehensive paid family and medical leave program; add vision, dental, and hearing coverage to Medicare; expand Medicaid. -S. 3799 PREVENT Pandemics Act, incorporate disability into pandemic preparedness legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and H.R. 5657, Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations.
| Lobbyist | Covered position, as disclosed |
|---|---|
| RACHEL PATTERSON | — |
| LAURA WEIDNER | — |
Shown as published by the Senate Office of Public Records and the House Clerk under the Lobbying Disclosure Act. The official filing is the record; open it for the full form.